10/08/2025
🪷A wee personal post today….not masaage related in the slightest but I just want to bring awareness to my daughter’s illness 🪷
Two days late to post, but better late than never.
💙Friday was severe ME day💙
💕Holly has been living with moderate ME (myalgic encephalomyelitis) since January 2024, but her condition drastically worsened earlier this year. She was hospitalized in February and had an NG feeding tube placed due to severe weight loss and experiencing chronic pain every day leaving her unable to eat orally.
💕Severe ME is not “just being tired.” It’s a serious, complex neurological illness that can take away the ability to walk, talk, eat, or even tolerate light and sound. Only recently has Holly been able to enjoy watching some TV again something so small for people without this illness but something huge for Holly and us as a family.
💕Even the smallest activity can cause pain, exhaustion, and a severe worsening of symptoms that can last for days, weeks, or even months.
💕Right now, Holly is mostly housebound, and her life has changed dramatically over the past 20 months. This awful illness has essentially paused her life — and unfortunately, it’s still often misunderstood or dismissed.
💕I’m not writing this for sympathy — we don’t need a pity party. I’m sharing this to raise awareness. The more people understand what ME really is, the more likely we are to see change in research, treatment, and compassion.
💕I will always advocate for Holly. Throughout this journey, she has shown immense strength, resilience, and courage. I am forever proud to be her mum.
💕If you’ve read this far, thank you! To our friends and family who have been there for us throughout this challenging time we are forever grateful.
