The Pernicious Anaemia Society

06/12/2025

🛒 When you shop with PAS, you’re doing more than just making a purchase - you’re supporting resources that make a real difference.

Our webinars help you better understand Pernicious Anaemia (PA) by providing expert-led guidance for anyone affected — whether you’re newly diagnosed, a family member, or a healthcare professional. They offer:

✔ In-depth knowledge about PA symptoms, diagnosis, and treatment
✔ Practical advice on managing day-to-day life with PA
✔ The latest updates on research and medical advances
✔ A chance to connect with others who understand the journey
By joining or purchasing access to these webinars, you’re not only gaining valuable insights but also directly supporting PAS’s vital work. Every contribution helps us:
✔ Keep our helpline running to provide personalised support
✔ Fund research into lesser-known symptoms like iron deficiency
✔ Organise more support groups and educational events across the UK and beyond
✔ Advocate for better diagnosis and treatment through national policy change

Plus, you can support us in other ways - by exploring our shop’s range of awareness items and eco-friendly eCards, all designed to help raise funds and spread knowledge.

🎁 So whether you’re learning, gifting, or both, you’re making a real difference for the PA community.

🛍️ Explore our webinars and shop: https://shop.pernicious-anaemia-society.org/

06/12/2025

fans
Hoping to see you at 10am. Don’t forget to register!

PAS support group meetings are an excellent way to meet other members of the society, share experiences, learn of how PA has impacted on their lives and how they have developed coping strategies to deal with the ongoing symptoms in a welcoming and friendly environment.
Our Support Group Coordinator, Karyl, will be holding an online Support Group Meeting on the 6th of December at 10am.
https://pernicious-anaemia-society.org/event/wales-online-support-group-meeting/
Whilst Karyl is based in Wales, you don’t have to live there to attend. It doesn’t matter where you live as this is a Zoom meeting and all members are welcome to attend. Hope you can make it!

05/12/2025

Carrie-Anne is fundraising for Pernicious Anaemia Society, and she would really appreciate your support. Read her story on her JustGiving page as to why she wants to meet her target.

Carrie has worked hard at raising funds for our small charity as it is very close to her heart after being diagnosed with PA in her 20's.

Carrie's efforts have been amazing so far and it would be great if you could help push her over the final target line. She is involved in the wider B12 deficiency community being a supporter of PAS and B12Deficiency charities.

Donating through JustGiving is simple, fast and totally secure. Once you donate, they'll send your money directly to her fund within the Pernicious Anaemia Society, so it's the most efficient way to give — saving time and cutting costs for the charity. Carrie ultimately has a say in what the fund is spent on so you can be sure you are supporting her passion directly.

https://www.justgiving.com/page/carrie-carr-2?utm_medium=FR&utm_source=EM

05/12/2025

Have you registered yet?
Members don’t have to live in South Wales to attend.

PAS support group meetings are an excellent way to meet other members of the society, share experiences, learn of how PA has impacted on their lives and how they have developed coping strategies to deal with the ongoing symptoms in a welcoming and friendly environment.
Our Support Group Coordinator, Karyl, will be holding an online Support Group Meeting on the 6th of December at 10am.
https://pernicious-anaemia-society.org/event/wales-online-support-group-meeting/
Whilst Karyl is based in Wales, you don’t have to live there to attend. It doesn’t matter where you live as this is a Zoom meeting and all members are welcome to attend. Hope you can make it!

05/12/2025

🌟 Your Membership with the Pernicious Anaemia Society! 🌟

Annual Membership - £20/year: Unlock a world of ongoing benefits! After your first year, we make it seamless—your membership renews automatically for just £10 annually. The hassle-free way to stay connected and supported. Cancel anytime in your membership account.

Lifetime Membership - £125: Experience the gold membership journey! Become a cherished Lifetime Member and Supporter of the Society. Your generosity comes with perks—receive an exclusive Welcome Pack, complete with a copy of the former Chairman’s book and unique PAS merchandise. It's a lifetime of connection, support, and gratitude.

✨ Why Join?
🌍 International Representation: We are the sole international charity advocating for Pernicious Anaemia patients.

🧪 Research Advocacy: Your support helps commission and fund crucial research.

🤝 Informed Community: Benefit from a community of knowledgeable members actively contributing to research.

🏥 Healthcare Collaboration: We value healthcare providers and strive to collaborate for enhanced patient quality of life, focusing on improved diagnosis and treatment.

🔗 Join us now, Your support makes a significant impact: https://pernicious-anaemia-society.org/member/

Support our charity by becoming a member or donating, and follow our page for more insights and useful information about PA!

05/12/2025

PAS support group meetings are an excellent way to meet other members of the society, share experiences, learn of how PA has impacted on their lives and how they have developed coping strategies to deal with the ongoing symptoms in a welcoming and friendly environment.
Our Support Group Coordinator, Karyl, will be holding an online Support Group Meeting on the 6th of December at 10am.
https://pernicious-anaemia-society.org/event/wales-online-support-group-meeting/
Whilst Karyl is based in Wales, you don’t have to live there to attend. It doesn’t matter where you live as this is a Zoom meeting and all members are welcome to attend. Hope you can make it!

04/12/2025

💬 Michael’s Journey with Pernicious Anaemia

At just 30, Michael began to experience strange symptoms - numbness, fatigue, and loss of balance. For years, the cause remained a mystery.

It wasn’t until decades later that he finally got answers: Pernicious Anaemia, an autoimmune condition that prevents the body from absorbing vitamin B12.

His path to diagnosis was long and complex, spanning multiple countries, countless tests, and a lot of self-advocacy.

Now, with regular B12 injections and the right supplements, Michael has regained control of his health - but it took persistence, research, and support to get there.

“Joining the Pernicious Anaemia Society was a turning point,” Michael shares. “I finally found the information and community that helped me understand what was happening and how to manage it.”

Michael’s story is a powerful reminder that understanding the why behind your symptoms can change everything and that no one should have to face this journey alone.

🌐 Learn more about Pernicious Anaemia and how we support people: https://pernicious-anaemia-society.org/

04/12/2025

📣 IMPORTANT ANNOUNCEMENT!! 📣

I am pleased to confirm our CEO, Katrina Burchell, will be joining us on Saturday where she will share with you, some fantastic news!!!!

Don’t forget, you must register to attend:

https://pernicious-anaemia-society.us8.list-manage.com/track/click?u=69ba73620e4221e32b449418b&id=db0428f95c&e=86584372b2

PAS support group meetings are an excellent way to meet other members of the society, share experiences, learn of how PA has impacted on their lives and how they have developed coping strategies to deal with the ongoing symptoms in a welcoming and friendly environment.
Our Support Group Coordinator, Karyl, will be holding an online Support Group Meeting on the 6th of December at 10am.
https://pernicious-anaemia-society.org/event/wales-online-support-group-meeting/
Whilst Karyl is based in Wales, you don’t have to live there to attend. It doesn’t matter where you live as this is a Zoom meeting and all members are welcome to attend. Hope you can make it!

04/12/2025

Make a difference this holiday season with cards and gifts that also benefit Pernicious Anaemia research and support! Every personalised card or e-card you send helps support the work of the Pernicious Anaemia Society. There are cards for Christmas, Hanukkah, New Year, as well as other holidays, life events, Thanks and Thinking of You cards.

https://gb.makingadifference.cards/supporting/pernicious-anaemia-society

The Pernicious Anaemia Society also offers a selection of books for sale — there are books about Pernicious Anaemia and B12, but also books for living a healthy life, and a selection of hand-picked fiction!

https://uk.bookshop.org/shop/PAS

If you would like to help us raise funds this holiday season (or anytime!), check out our fundraising page for ideas of how you too can be a fundraising star!

https://pernicious-anaemia-society.org/fundraise/

03/12/2025

fans

I’m looking forward to meeting some of you on Saturday at the online support group. Don’t forget - you need to register to get the Zoom link. Details below and on our website.
Also, The Pernicious Anaemia Society knows it can sometimes be difficult to get a firm diagnosis of PA. You don’t need a firm diagnosis to become a member, and membership will give you access to a wealth of information on our website.
Thanks, as ever, for your support.

PAS support group meetings are an excellent way to meet other members of the society, share experiences, learn of how PA has impacted on their lives and how they have developed coping strategies to deal with the ongoing symptoms in a welcoming and friendly environment.
Our Support Group Coordinator, Karyl, will be holding an online Support Group Meeting on the 6th of December at 10am.
https://pernicious-anaemia-society.org/event/wales-online-support-group-meeting/
Whilst Karyl is based in Wales, you don’t have to live there to attend. It doesn’t matter where you live as this is a Zoom meeting and all members are welcome to attend. Hope you can make it!

02/12/2025

🩺 Listening to the Patient Voice Matters

The latest GMC Barometer Survey (2023) shows that while most doctors enjoy working with patients, 43% report finding it difficult to provide sufficient care at least once a week.

With increasing workloads and burnout, it’s never been more important for healthcare professionals to truly listen to their patients.

For those living with Pernicious Anaemia (PA), being heard can make the difference between years of misdiagnosis and getting the right treatment — including learning how to self-inject where appropriate.

That’s why the Pernicious Anaemia Society’s new education programme for NHS professionals is now live on the NHS Learning Hub, offering 12 modules designed to improve understanding of PA and the NICE guideline across primary and secondary care.

💬 We’re reaching out to our healthcare professional members and the wider GP community to encourage them to take the training and help ensure better awareness, empathy, and patient-centred care.

02/12/2025

Today is !

https://pernicious-anaemia-society.org/donate/

Donate TODAY to support our society's vital operations, fuel research
projects, drive awareness campaigns, and so much more. Every
contribution counts, and together, we can make a impact on the journey
toward improved lives for patients.

If you are a UK tax payer you can gift aid any donations which means the
Society gets some additional money from the government on top of your
donation.