Ivy's Battle with AML- Leukaemia

26/02/2026

💔💔💔

A post from Jackie !!

🙏PLEASE SHARE - WE NEED ANSWERS🙏

Tonight I am angry.

Angry that the options for Max are so limited.
Angry that every clinical trial for paediatric brain tumours seems to come with the same crushing sentence — “He doesn’t qualify.”

Each time we hear those words, a door closes.

There are around 30 children a year diagnosed with the same type of tumour as Max. Just 30.
But 30 is 30 too many.

That’s 30 children with no cure.
30 children with little to no trials available to them.
30 families living this nightmare.

And it feels like they are being let down simply because their cancer is rare — because the numbers are small, the funding is small, and the research is limited.

That is not okay.

Our children deserve better.
They deserve to be researched.
They deserve treatments designed for their tumours.
They deserve access to trials.
They deserve a real chance at life.

Every door we knock on asking for help for Max is met with sympathy… and then, “Sorry, we can’t help.”

The USA offered a potential trial and quoted us 2.5 million!!!!!! 2.5 million!!!!!!

If no one else that we know of can help, then who can?

We need help.
Max deserves help.

We need answers.
Why are there so few trials?
Why is there so little research?
Who decides which tumours are “worth” investing in?
Who do we speak to so that our son isn’t just another statistic in a rare category?

As his parents, our hearts break every single day. We would do anything to fix this for him. To protect him. To take his place. To make it all go away.

But right now, we are met with silence, closed doors, and unanswered emails.

So I am asking — loudly — who do we need to speak to?
Where do we turn?
How do we change this, not just for Max, but for the other children fighting the same battle?

For Max.
For the 30.
For every family who feels like their child’s life doesn’t carry enough “numbers” to matter.

Please share far and wide.
Someone, somewhere, must be able to help. 💔

Max, I’m so, so sorry you are being let down! Me and your dad will fight for you and for this cause, every single day of our lives until it changes. We love you and WE won’t let you down! ❤️❤️❤️

04/02/2026

‼️TW-Infant loss and graphic pictures‼️
🌍 World Cancer Day

Today is about every single person whose life has been touched by cancer.

The adults fighting quietly.
The families grieving loudly.
The survivors learning how to live again.
And the children who should never have to know this fight at all.

Cancer does not discriminate. It doesn’t care about age, plans, or the life you were living before it arrived.

For us, this day is deeply personal.

My niece Ivy was just 4 years old when she was diagnosed with Acute myeloid leukaemia in January 2024. One appointment, one blood test, and our world changed forever.

She spent months in Queen’s Medical Centre Nottingham having intensive chemotherapy, transfusions, procedures and facing things no child should ever face.

She is now in remission- her last dose of chemo was May 2024🩷🙌🏼
And we are grateful every single day she is here.

But today isn’t just about Ivy.

It’s about the parents, grandparents, friends, siblings, and loved ones who are fighting cancer right now.
It’s about those who have survived.
And it’s about those we miss every single day.

Cancer leaves a mark on every family it touches. The fear, the trauma, the heartbreak — it never fully goes away.

So today, we raise awareness.
We remember.
We support.
And we hold our loved ones a little tighter.

🎗 For the fighters.
🎗 For the survivors.
🎗 For the ones we’ve lost.
———
Because we have been mostly affected by childhood cancer here is a little video of only a small percentage of little warriors I got to know about during but journey!!
This was made in September 2024- the child in this video are all slightly older now, fame fear and heartbreakingly some of the little ones are no longer here💔❤️‍🩹

02/09/2025

🎗🩷🪽Meet Everly🪽🩷🎗
Here is Everly’s story…
“From the moment Everly was born, she brought a brightness into the world that will never be replicated. So pure, so bold & so perfect in every way. At only 16 months old, she was diagnosed with stage 4 neuroblastoma cancer. After 7 months of treatment at our home hospital, we discovered they had misdiagnosed her tumor risk as low risk when it was high risk all along. She had to be airlifted to UCSF where they saved her life and gave us an entire extra year with our sweet girl. Sadly, like everly, her cancer was far to smart for the research and medicine that is offered in todays world. We brought her home for 3 peaceful weeks at home before she officially won her battle and claimed victory. She now flies with the fairies and our world has become dull and void in her absence. However, we are doing our best to live FOR EVERLY, it has been enough to keep her daddy & I here. We miss her so much.”

✨I’m sharing Everly’s story in honor of Childhood Cancer Awareness Month 🎗🩷. No family should have to endure this pain, and no child should run out of options. Awareness brings research, and research brings hope. Let’s keep fighting for children like Everly.🎗️

01/09/2025

https://www.justgiving.com/page/firah-dunn-1751017264379?utm_medium=FR&utm_source=CL
_________________________________________
🎗️Childhood cancer awareness month has begun…
—————————————————————————
Every single day, families hear the words no parent should ever hear: “Your child has cancer.”
These aren’t just statistics — they are babies, toddlers and children who should be living carefree, happy lives.

Throughout this month, I’ll be sharing stories daily of brave little warriors — those still fighting, those who have survived, and those we will always remember 💛 (all with parental consent). Please read, share, and help spread awareness.

‼️ Think about what you spend each month on luxuries — a coffee, a takeaway, a subscription. Why not dedicate that same amount to helping save a child’s life?
Every single pound makes a difference.
_________________________________________
🎗FACTS FOR YOU:
~ Around 1,900 new cancer cases are diagnosed annually in children aged 0–14 in the UK — that’s over five every single day. 💔
~ Despite advances, about 250 young children lose their lives to cancer each year in the UK — that’s roughly five every week💔
~Treatments are harsh, outdated, and often leave life-long damage.❤️‍🩹
~Only a small fraction of cancer research funding goes to childhood cancers.🤯😤
_________________________________________
These children should be running, laughing, and playing.
Instead, they are hooked up to tubes, lying in hospital beds, fighting battles far too big for their little bodies. 💛

Every one of them is someone’s whole world.
A child with dreams, laughter, and a life worth living.

This is why I will never stop raising awareness, fundraising, and fighting for change.
For the fighters.
For the survivors.
For the angels we’ll never forget. 🎗
_________________________________________

My reason- IVY 🎀
She was just 4 years old when she was diagnosed with leukaemia in January 2024. Our whole world changed in an instant.

She is now just over one year in remission 🩷😭 and for that I am beyond grateful. Every single day she is here, we take as a win 🙌🏼.

But since Ivy’s diagnosis, I’ve spoken to wayyyy too many families whose little ones have had cancer, are still fighting cancer and who’ve passed from cancer💔. Every story breaks my heart — but I will not shy away, and neither should you.
_________________________________________Hold your babies a little tighter. Be grateful they are here and healthy. Because for so many families, this isn’t the case.

Together, we can make a difference.
Together, we can fight for our children.

💛🎗 🎀

01/09/2025

26/08/2025

Today, my niece Ivy turns six.
And I need the world to understand how much that means.😭🥹

This isn’t just a birthday.
It’s a milestone we once weren’t sure we’d ever see.

Just last year, we were living through the kind of fear you can’t explain — watching Ivy fight childhood cancer with more strength than most adults could ever imagine. There were moments where we genuinely didn’t know if she would reach her fifth birthday… and now, here she is. Six. Smiling. Laughing. Alive. A little firecracker that continues to shine. ✨

Ivy is so much more than a survivor.🙌🏼
She’s bold. She’s strong-willed. She’s sassy and smart. She knows what she wants, and she doesn’t let anyone dull her sparkle. She’s the kind of girl who walks into a room and owns it — even if she’s the smallest person there.

And what she’s been through… it breaks my heart.
No child should ever have to fight the battles she has. The trauma. The pain. The hospital beds and long nights. But Ivy faced it with a strength I will never forget.

She’s the reason I speak up, loudly and unapologetically, about childhood cancer. Because of Ivy, I refuse to stay silent. I share her story to raise awareness, to bring light to something people often want to look away from. I will never stop fighting for children like her — not when I’ve watched firsthand what this fight looks like.

Ivy is not just my niece — she’s my best friend, my inspiration, my little hero.
And today, I am overwhelmed with gratitude that I get to celebrate another birthday with her.

Happy birthday to the strongest girl I know. , Firah loves you more than words will ever say and I can’t wait to celebrate with you today 🎂🩷🌸

Happy birthday, my girl.
We celebrate YOU today. And always.🎀🌎

18/08/2025

💔 Gracie’s Story – Childhood Cancer Awareness 💔

On 1st March, what seemed like just a simple stomach bug soon became something far more serious. After four days of sickness, it was clear something wasn’t right.

On 13th March, Gracie was taken to hospital. She was in pain, her stomach felt hard, but the doctors sent her home with what they said was just a water infection. Gracie’s mum knew this wasn’t the answer.

The pain got worse. When she took her back, the doctors again tried to send her home. But her mum refused to accept it this time — she demanded an X-ray and then an ultrasound.

That’s when their whole world fell apart. A nurse asked Gracie’s mum to step aside “for a little chat.” They had found a large mass on Gracie’s liver. She was immediately blue-lighted to Birmingham Children’s Hospital.

After CT scans, MRIs, and biopsies, the devastating news was delivered: Gracie had neuroblastoma — one of the most aggressive forms of childhood cancer. 💔

At first, the tumour measured 7x7cm. But by the time of her second biopsy, it had grown to 15x10cm — in such a tiny, delicate little body. The cruel speed and aggression of this cancer was beyond comprehension.

Gracie fought with all the bravery a child could ever show. For seven long, gruelling months, she went through treatment after treatment, hospital stays, endless tests, and so much pain — yet still managed to smile and bring light to those around her.

But despite all the love, prayers, and treatment, on 19th October 2023, Gracie passed away at just 3 years old. 🕊️

No parent should ever have to bury their child. No child should have to face a fight like this. Childhood cancer is not rare — it is real, it is devastating, and it steals far too many young lives.

Gracie’s story is a heartbreaking reminder of why more awareness, more funding, and more research are desperately needed. 💛🎗️

Forever 3. Forever loved. Forever missed. 💔

https://www.justgiving.com/page/firah-dunn-1751017264379?utm_medium=FR&utm_source=CL

https://www.instagram.com/clairelouise8912?igsh=ZGI3b3oxNmlkazBq

15/08/2025

💔

‼️UPDATE ON CARTER‼️

♥️We just received the news that little warrior, Carter, is fighting a hard battle with his breathing right now and could use your loving prayers.
He remains in ICU.

📍His momma updated last night:
“This is not news I wanted to post. Today, they said Carter is very sick and they have to intubate him.”

📍Momma’s Current Update:

“Carter's lungs are very sick. They are stiff and filled with fluid because of the TMA. This is not fluid that they can drain because it's in the vessels. Tomorrow, they're doing 2 tests to see how extensive the lung damage is. The second part of this is the TMA. They have him on every medication they can to treat TMA. He started meds to treat the TMA about 3 weeks ago and it's not getting better. At this point, he needs time. Our first hurdle is going to be finding out the condition of his lungs. If that is okay, we can only wait and pray for the TMA medications to do something. Please, pray for him.”

♥️PLEASE EVERYONE, send your comforting thoughts, good vibes, grace and infinite HOPE to this very BRAVE child❗️Prayers for healing, courage, and comfort❗️
WE FIGHT WITH YOU CARTER‼️
STAY STRONG‼️

# CarterStrong
#🎗️
The Jack Strong Foundation

13/08/2025

02/08/2025

In just 31 days, Childhood Cancer Awareness Month begins—and we’re inviting YOU to stand with us every step of the way.

Throughout September, we’ll be sharing:
💛 Ways to
💛 Fundraising ideas to support families
💛 Tips to raise awareness in your community
💛 Special stories, tools, and resources to uplift kids and families affected by childhood cancer

Let’s come together to honor the fighters, celebrate the survivors, and remember the children we’ve lost.

13/07/2025

https://www.justgiving.com/page/firah-dunn-1751017264379?utm_source=IG