Neuroendocrine Cancer UK

20/02/2026

🎉 Fundraiser Friday 🎉

Once again, we’re blown away by the strength, determination, and love shown by our incredible fundraisers. From first-time half marathons to international races and winter runs, every mile taken this week was fuelled by purpose - to raise awareness of neuroendocrine cancer and support those affected.

❄️ Wendy completed the London Winter Run, raising £1,281 in support of two close friends affected by neuroendocrine cancer. She ran with love, urgency, and compassion — proving that every step truly counts.

💙 Xanthi took on the Birmingham Running Festival Half Marathon in memory of her beloved Yiayia, raising £920.87 to honour her strength and help change the future for others facing neuroendocrine cancer.

🌍 Tamara completed the Burj 2 Burj Half Marathon in Dubai, running in memory of her uncle Michael and raising an amazing £1,010.00. Knowing she was running for our cause carried her all the way to the finish line.

🏃‍♂️ Conor is using his passion for running to raise awareness of a cancer that is often hidden, misdiagnosed, and misunderstood, after a family member was diagnosed with neuroendocrine cancer. Even battling tough weather, he pushed on - because visibility matters.

If you’re thinking, “I’d love to do something like this,” get in touch. Whether it’s running, walking, swimming, or something unique, we’d love to support you on your fundraising journey.

19/02/2026

💬 Support when you need it – in person and online 💬

We know how important it is to connect with others who truly understand life with neuroendocrine cancer. That’s why we offer a mix of online and face-to-face support groups across the UK – and we’re so pleased to be adding a brand new one.

🌿 NEW – North Wales Patient Support Group 🌿
📅 Monday 9th March 2026
⏰ 1:00pm – 3:00pm
📍 Maggie's North Wales, Steve Morgan Foundation Building
Glan Clwyd Hospital, Rhuddlan Rd, Bodelwyddan, Rhyl LL18 5UJ

This long-awaited group will provide a safe, supportive space to share experiences, ask questions, and connect with others living with neuroendocrine cancer in North Wales.

Whether you prefer local, in-person support or online groups from home, there is a place for you in our community ❤️

👉 Visit our website to find a support group near you and learn more - https://www.neuroendocrinecancer.org.uk/events/

18/02/2026

🍰 Cakes for a Cause isn’t just about cake. 🍰

It’s about colleagues gathering around a table at work.
Families bringing a bake to Sunday lunch.
Neighbours meeting in gardens.
Support groups sharing cake, stories, and understanding.

Over the years, Cakes for a Cause has brought people together in the most meaningful way – raising awareness of neuroendocrine cancer and helping fund vital support services for those who need them most.

📅 Choose any day in March 2026
🎁 Sign up for free and receive a fundraising pack
🍰 Host it your way

Together, we bake connection, conversation, and support.

👉 Join Cakes for a Cause 2026: https://neuroendocrinecanceruk.enthuse.com/cf/cakes-for-a-cause-2026

17/02/2026

📰 The Invisible Cancer: Stories Behind the Headlines

Last week, following the launch of our Invisible Cancer report on World Cancer Day, neuroendocrine cancer was covered widely in the national and regional press.

This week, we’re sharing one of those stories.

Neuroendocrine Cancer UK's Craig, from Glasgow, spent five years attending GP appointments before his neuroendocrine cancer was finally diagnosed. During that time, he was told there was nothing wrong, that his symptoms were stress-related, and that he should “go home and calm down”.

Craig’s experience is not unusual.

⏳ On average, it takes 4.5 years to diagnose neuroendocrine cancer
🏥 Many patients are turned away multiple times
📊 More than 50% are diagnosed at an advanced stage

Neuroendocrine cancer is often called “invisible” because symptoms are vague, affect multiple body systems, and are frequently misdiagnosed as IBS, asthma, menopause or anxiety.

Our report highlights the real human cost of delayed diagnosis - the years of uncertainty, the progression of disease, and the emotional toll on patients and families.

This is why we will keep talking about it.
This is why visibility matters.

📖 Read the full Invisible Cancer report via our website
📢 Share the message - it could change someone’s future

https://www.edinburghlive.co.uk/news/uk-world-news/10-symptoms-invisible-cancer-can-33358662

6,000 people are diagnosed every year

17/02/2026

We've almost sold 50% of our tickets within the first week!

Sing It Otterbourne presents 'A Night at the West End' -

Celebrating the beloved songs of London's West End and New York's Broadway. We've curated a special playlist of the finest and most memorable music, featuring everything from heartfelt ballads to those unforgettable, musical hits!

Sunday 29th March 2026 3:00pm & 7:30pm
Otterbourne Village Hall
Tickets £8
All money raised will be donated to Neuroendocrine Cancer UK

Book Tickets via our website: www.sing-it-choirs.co.uk

17/02/2026

SIGN UP IS 50% FULL - Sign up at www.bangersandcashrally.co.uk

Any Car. Any Team.
Got a car? You’re in.

It doesn’t matter if it’s a banger, a classic, a daily driver or something wild — this rally is open to ANY vehicle.

💷 £295pp + VAT
❤️ Raising money for charity
🚗 Adventure guaranteed

👉 Secure your place: www.bangersandcashrally.co.uk

Raising money for Hospice Neuroendocrine Cancer UK and Hugs Childrens Cancer Charity

17/02/2026

16/02/2026

Support groups and events, including our February webinar. We hope to see you there.

Register here: https://www.neuroendocrinecancer.org.uk/events/

14/02/2026

Every week, we’re humbled by the love, strength and determination of our community. This week’s fundraisers are all turning heartbreak into hope - and helping to raise awareness of neuroendocrine cancer while supporting others who may face the same journey.

💛 Christie and family – £2,920.37 raised
In memory of their much-loved sister, daughter, mum and wife, Ceri, Christie and her family came together to raise awareness and funds for Neuroendocrine Cancer UK. They are now determined to ensure Ceri’s legacy lives on - and to continue making her proud.

🌊 Rebecca, Megan & Amber – £1,255 raised
Rebecca and her daughters took on a Boxing Day Dip at Seaton Carew beach in support of Rebecca’s mum, Barbara, who is living with neuroendocrine cancer.
Dressed in zebra colours to raise awareness, the family bravely faced the cold to shine a light on this rare and often accidentally-diagnosed cancer - and to give something back to a mum who has always put others first.

🏃‍♂️ Amolak – £2,010.01 raised (so far)
After losing his mum in June to neuroendocrine cancer, Amolak is honouring her memory in an incredibly powerful way. In 2026, he will run seven half-marathons - one for each month and in remembrance of the 7th of June, the day he lost his mum.

🧁 Sheila – £1,128 raised
Sheila has once again shown that every kind of fundraiser matters. Through a bake sale and handmade decorations, she raised an amazing amount to support people living with neuroendocrine cancer and their families.

12/02/2026

🍰✨ Cakes for a Cause 2026 is officially live! ✨🍰

We’re excited to launch Cakes for a Cause 2026, running throughout March 2026 – and we’d love you to get involved 💜

Whether you’re:
🏡 hosting a get-together at home
🏢 organising a cake sale at work
🧁 bringing friends and family together
🍰 or asking a local bakery to support

…every bake helps raise vital awareness and funds for people affected by neuroendocrine cancer.

✔️ Sign up for free
✔️ Choose any date in March 2026
✔️ Receive your free fundraising pack with recipes, bunting, cake flags and more

Let’s bake, share and make a difference together.

👉 Sign up today: https://register.enthuse.com/ps/event/CakesforaCause2026

11/02/2026

February Webinar – Somatostatin Analogues: Octreotide & Lanreotide

Join us for our next monthly webinar, designed to offer clear, practical information and a supportive space for everyone affected by neuroendocrine cancer.

This session will focus on somatostatin analogues – what they are, how they work and how they may affect you.

These treatments are a mainstay for many people living with neuroendocrine tumours (NETs), particularly those experiencing hormone-related symptoms such as carcinoid syndrome.

Understanding your treatment can help you feel more prepared, know what to expect and manage any treatment-related challenges.

💬 There will be time for questions during the session.

📍 Details
🗓️ 25th February 2026
⏰ 6:00pm – 7:30pm
💻 Online via Zoom
🎤 Speakers:
Nikie Jervis and Kate Quirk – Neuroendocrine Cancer UK

🔗 Register: Select here to register - https://register.enthuse.com/ps/event/WebinarSomatostatinAnalogues

10/02/2026

💬 “Self-advocacy is vital – I check and question everything.”

Andy was diagnosed with a Grade 3 pancreatic neuroendocrine tumour in 2024.

In his story, Andy shares what it has really been like navigating treatment, unexpected complications such as Type 3c diabetes and sight loss – and how learning to question, research, and advocate for himself completely changed his care.

From challenging decisions about surgery to questioning possible bone metastases and pushing for clearer answers, Andy’s experience shows just how important it can be to feel confident asking questions and being involved in your own treatment decisions.

📖 Read Andy’s full story - https://www.neuroendocrinecancer.org.uk/faces-of-ncuks/self-advocacy-andy/