Neuroendocrine Cancer UK

18/12/2025

✨ As 2025 draws to a close ✨

This year has been one shaped by courage, collaboration, and a community determined to make things better for everyone affected by neuroendocrine cancer.

Although I am only a few months into my role as CEO, I have been part of Neuroendocrine Cancer UK for some time - and stepping into this role has deepened my appreciation of the strength, generosity and resilience of this community. It is a privilege to work alongside you.

In 2025, together we have:
❤️ Supported almost 3,000 patients and families through our helpline, counselling and support groups
❤️ Expanded webinars, newsletters and online resources to help people feel informed and less alone
❤️ Celebrated our community through the Hero Awards, sharing inspiring stories of courage and compassion
❤️ Strengthened GP education and awareness to support earlier diagnosis
❤️ Put patient voices at the heart of research through the James Lind Alliance Priority Setting Partnership
❤️ Increased investment in research and strengthened our data and policy work to improve outcomes

None of this would be possible without you - patients, families, carers, clinicians, fundraisers, volunteers and supporters. Your voices guide our work, and your generosity drives everything we do.

🎄 Please note: Our office and helpline are now closed, and the team is taking a short break. We’ll be back on Tuesday 6th January and ready to continue supporting our community in the new year.

As we move into 2026, we remain committed to a future of earlier diagnosis, expert care and better outcomes for everyone affected by neuroendocrine cancer.

Lisa, CEO, Neuroendocrine Cancer UK

12/12/2025

🎉 Fundraiser Friday 🎉

This week, we’re celebrating our incredible AJ Bell Great South Run fundraisers - each running in honour of someone they love, and helping raise awareness of neuroendocrine cancer through every mile.

🏃‍♀️ Lois took on the Great South Run in honour of her uncle, who lived with neuroendocrine cancer for 12 years before passing away earlier this year. Despite the rain, she completed the challenge and raised an amazing £1,001.25 for our cause.

🏃 Holly - completed the Great South Run in honour of her partner, Steve, who loved running and sadly passed away from neuroendocrine cancer in 2021. She finished in 2 hours 51 minutes, raising £783.88 - an incredible tribute.

🏃‍♀️🏃‍♂️ Team Julie Bruce - Amelia & Harry

Running in memory of their mum, Julie, this incredible team took on the Great South Run as part of their ongoing fundraising efforts. Across multiple events, along with other family members, they have already raised an unbelievable £85,000 for Neuroendocrine Cancer UK.

🏃 Daniel completed the Great South Run, raising £912.50 in honour of his dad, who is living with neuroendocrine cancer. His run was a heartfelt thank-you for the treatment and support that has given his family more precious time together.

THANK YOU ALL.

11/12/2025

🌟 Neuroendocrine Cancer UK – Hero Awards 2025 - Meet this year’s Healthcare Heroes!

Today, we celebrate three remarkable professionals who go above and beyond for people affected by neuroendocrine cancer.

🏅 Neuroendocrine Cancer Nurse – Erin B
Described as “my advocate and my lifeline,” Erin changed the entire direction of her patient’s care, challenged a diagnosis, enabled life-saving surgery, and supported the family every step of the way - even standing beside her patient in theatre. A true hero in every sense.

🏅 Doctor/Surgeon – Dr Bradley
For over 15 years, she has given exceptional, compassionate care - expanding access to PRRT, advocating for her patients through every challenge. Her dedication has been life-changing.

🏅 Allied Health Professional – Helen A
Often, the unsung heroes, Helen’s kindness and commitment, have supported her patients for years. From urgent weekend paperwork to helping arrange safe travel abroad, she goes far beyond what is expected - always with care.

✨ Thank you, Erin, Dr Bradley, and Helen, for the incredible difference you make.
Our community is stronger because of you.

10/12/2025

🌟 Neuroendocrine Cancer UK - 2025 HERO AWARDS 🌟

Thank you to everyone who nominated, voted, and helped celebrate the incredible heroes across our neuroendocrine cancer community. We’re delighted to announce this year’s winners…

🏅 Family, Friend & Supporter Award - Colin

After emergency surgeries, a sudden cancer diagnosis, and caring for three young children, Colin held his family together during the most frightening time of their lives - all while coping with the unexpected loss of his sister. His strength, love, and unwavering support make him a true hero.

🏅 Living With Neuroendocrine Cancer Award - John

Diagnosed as terminal in 2016, John created “Johnnie’s Journey” to raise awareness of NETs and support his community. He has raised tens of thousands of pounds and inspired countless people with his courage and dedication.

🏅 Fundraiser Award - Olivia

Olivia passed away in March 2025 at just 34, but left behind a powerful legacy.
In her final weeks, she designed what became the O.K. 10k, now a sold-out annual event - as well as the newly formed Olivia Kazimiera Foundation. Her compassion continues to inspire and support others.

💛 Please join us in celebrating our 2025 Heroes.
Your votes helped shine a light on the remarkable people who make this community what it is.

✨ Healthcare category winners announced tomorrow!

10/12/2025

09/12/2025

Supporting Neuroendocrine Cancer Research – Your Voice Matters

This morning, Lisa had the privilege of attending a meeting at the House of Lords, hosted by Cancer Research UK, bringing together patients, clinicians, and politicians to openly discuss the challenges of conducting research in the UK - and more importantly, how we can overcome them.

There was powerful recognition of something our community knows all too well:
👉 Those with less common cancers, like neuroendocrine cancer, face additional barriers in research, diagnosis, and care.

What inspired us most was the clear acknowledgement that patient voices must guide future research. Decisions about what to study, and how, should reflect the real experiences and priorities of those living with the condition.

And right now, we have an opportunity to do exactly that.

📣 We’re asking our community to help shape the future of neuroendocrine cancer research.
Here, you’ll find a questionnaire designed to capture the research priorities of:
✔️ People living with neuroendocrine cancer
✔️ Families and carers
✔️ Clinicians and healthcare professionals

By sharing your perspective, you will help us build a focused, meaningful research agenda that reflects what matters most.

💬 “Research isn’t a ‘nice to have’ - it’s urgent.”

Let’s make sure neuroendocrine cancer is heard, recognised, and acted upon.

📝 Complete the questionnaire today - your insight truly makes a difference - https://www.surveymonkey.com/r/93885SM

Thank you for your continued support.

09/12/2025

🎬 NEW VIDEO NOW LIVE - NETWorking for Life – New Normal, New Horizons: Living with Neuroendocrine Cancer

Our wonderful Ambassadors, Chrissie, Kath and Jon, return for their second powerful, patient-led webinar, sharing their personal experiences of living with neuroendocrine cancer.

In this session, New Normal, New Horizons, they explore the true power of peer support and cover:
💬 Emotional support for patients and carers
💡 Practical, real-life tips
📘 Making sense of medical terminology
🤝 Finding your “new normal” after diagnosis

If you or someone you love is affected by neuroendocrine cancer, this is a must-watch.

▶️ Watch now on our YouTube channel and share with anyone who might need this support today: https://ow.ly/5vHF50XBOq3

There's still time to register for this month's webinar, which focuses on 'Diet and Nutrition'. Register here: https://register.enthuse.com/ps/event/WebinarDietandNutrition

Neuroendocrine Cancer UK Ambassadors, Chrissie, Kath and Jon return for their second patient led webinar to share their experiences of neuroendocrine cancer....

08/12/2025

Details of our few support groups, and our last webinar of the year here! Register: https://www.neuroendocrinecancer.org.uk/events/

05/12/2025

🌟 Fundraiser Friday 🌟

This week, we’re celebrating an inspiring group of fundraisers who have pushed themselves physically, creatively, and emotionally to support everyone affected by neuroendocrine cancer. From mountain challenges and community walks to art portraits and livestreams - every single effort makes a real difference.

🏔️ Marc & Brothers – 3 Peaks Challenge

Marc, Sean and Dermot took on the famous 3 Peaks Challenge in memory of their dad, Michael, who sadly passed away from neuroendocrine cancer. Battling horrific weather and 70mph winds, they completed all three mountains in 23 hours and 32 minutes, raising an amazing £2,589.29 in his honour.

🎨 Jules – Portrait Fundraiser for Research

After being diagnosed with stage 4 high grade neuroendocrine cancer, Jules began creating portraits to raise funds for vital research. Despite facing a return of active disease this summer and restarting chemotherapy, Jules raised an incredible £1,311.25, helping to fund better futures for patients nationwide.

🚶‍♂️ Nigel – 15 Mile Charity Walk for Carolyn

Nigel completed a challenging 15-mile coastal walk alongside retired police and military colleagues, dedicating every step to his partner Carolyn, who has lived with neuroendocrine cancer since 2005. Walking across soft sand and steep hills, the group raised a phenomenal £3,589.50 to support patients and families across the UK.

🏃‍♂️ Robert – Manchester Half Marathon

After postponing his race due to surgery for his own neuroendocrine tumour, Robert returned determined to fundraise. He completed the Manchester Half Marathon and raised £773.76, supporting others navigating the same diagnosis he now lives with.

🎮 Kat – 24 Hour Livestream

Kat hosted a 24-hour livestream to give back to the charity that supported her through a confusing cancer journey. With the help of friends and supporters, she surpassed her target and raised £135.00 - every pound helping us continue our work.

💛

04/12/2025

🍽️ WEBINAR: Diet & Nutrition – “Hold All the Trimmings?” 🍽️

What should you eat? What should you avoid? How does neuroendocrine cancer impact nutrition, digestion, and energy levels?

Join us for our next monthly webinar, where we’ll be focusing on diet and nutrition in neuroendocrine cancer, with expert guidance and practical advice to support everyday living.

🗓️ Date: 11th December 2025
⏰ Time: 6:00pm – 7:30pm
💻 Location: Online via Zoom
🎤 Speaker: James Wimbury, Advanced Specialist Diabetes Dietitian

Whether you’re living with neuroendocrine cancer, supporting someone else, or simply wanting to learn more, this session is open to all.

✨ Our webinars offer expert insight, real-world advice, and a supportive space to ask questions and connect with others who understand.

🔗 Register now and save your place! - https://register.enthuse.com/ps/event/WebinarDietandNutrition

03/12/2025

This week, one of our incredible team members and Patient Ambassadors, Craig, took to the stage at the annual UKINETS Conference to represent the and share the real-life impact of living long-term with a cancer diagnosis.

Craig bravely spoke about his own journey, including undergoing open heart surgery and receiving 180 monthly injections to help control his disease. He also highlighted how cancer affects so many of the life decisions others often take for granted - from careers and relationships to future plans.

We are so proud of Craig for sharing his story with such honesty, strength, and courage. Thank you for ensuring that the patient voice continues to be heard where it truly matters.