Myheart

31/03/2026

The myheart booklet has become an important source of support and comfort for young people diagnosed with a cardiac condition.

Created for and by young people, it reflects the experiences of young people who—thanks to increased awareness and earlier diagnosis—are learning to live with a potentially fatal heart condition.

You can read the booklet online here - https://issuu.com/cardiacriskintheyoung/docs/myheart_booklet

09/03/2026

While attending Reading festival on a summer evening in 2019, Dylan collapsed and suffered a cardiac arrest. By the end of the day, Dylan had survived 4 cardiac arrests! What followed was being on beta blockers and an ICD implantation.

Dylan shares his story with AFC Bournemouth. To Read the full story visit: https://www.myheart.org.uk/myheart-member-dylan-milners-story-on-afc-bournemouth-website/

26/02/2026

This February, we’re asking you to help save young lives. 12 young people die every week in the UK from undiagnosed heart conditions. These deaths are preventable. Help this Heart month by:

✅Finding your MP
✅ Use our template letter
✅Sign the petition
✅Share your story
✅Tag us when you take action!

Every voice counts. https://www.c-r-y.org.uk/help-us-save-young-lives-this-heart-month/

23/02/2026

Registration closing date extended!

There is still time to register for the Spring face to face myheart meeting taking place on Saturday, 14th March, 2026

Anyone aged 18 - 35 with a cardiac condition can attend the meeting if they:

1. Have been offered or already have an ICD
2. Have suffered a cardiac arrest
3. Have been diagnosed with an inherited or potentially inherited cardiac disease.

Dr Raghav Bhatia, a CRY Cardiologist, will be attending the meeting to lead a Q&A session. During this time, members will have the opportunity to ask questions about their condition, the exercise/s they can do, or any other cardiac concerns they may have.

To see more information about the meeting and to register, go to:
https://www.myheart.org.uk/spring-national-myheart-meeting-saturday14th-march-2026/

18/02/2026

The petition calling for cardiac screening at age 14 was created by Gill and Stephen Ayling in memory of their son Nathan Bryan. Their advocacy honours Nathan’s memory and all those lost to a and could save countless young lives. Will you add your signature? Every name counts.

Fund population cardiac screening for every young person when they reach age 14 years. The screening should be undertaken with a review of family history and electrocardiogram (ECG) followed up where necessary with echocardiogram (heart scan).

09/02/2026

Last chance to register for The Spring face to face myheart meeting taking place on Saturday, 14th March, 2026

Anyone aged 18 - 35 with a cardiac condition can attend the meeting if they:

1. Have been offered or already have an ICD
2. Have suffered a cardiac arrest
3. Have been diagnosed with an inherited or potentially inherited cardiac disease.

Dr Raghav Bhatia, a CRY Cardiologist, will be attending the meeting to lead a Q&A session. During this time, members will have the opportunity to ask questions about their condition, the exercise/s they can do, or any other cardiac concerns they may have.

To see more information about the meeting and to register, go to:
https://www.myheart.org.uk/spring-national-myheart-meeting-saturday14th-march-2026/

Register before Tuesday, 10th February, 2026

07/02/2026

Register for The Spring face to face myheart meeting taking place on Saturday, 14th March, 2026

Anyone aged 18 - 35 with a cardiac condition can attend the meeting if they:

1. Have been offered or already have an ICD
2. Have suffered a cardiac arrest
3. Have been diagnosed with an inherited or potentially inherited cardiac disease.

Dr Raghav Bhatia, a CRY Cardiologist, will be attending the meeting to lead a Q&A session. During this time, members will have the opportunity to ask questions about their condition, the exercise/s they can do, or any other cardiac concerns they may have.

To see more information about the meeting and to register, go to:
https://www.myheart.org.uk/spring-national-myheart-meeting-saturday14th-march-2026/

Register before Tuesday, 10th February, 2026

27/01/2026

Register for The Spring face to face myheart meeting taking place on Saturday, 14th March, 2026 at etc.venues County Hall.

Anyone aged 18 - 35 with a cardiac condition can attend the meeting if they:

1. Have been offered or already have an ICD
2. Have suffered a cardiac arrest
3. Have been diagnosed with an inherited or potentially inherited cardiac disease.

Dr Raghav Bhatia, a CRY Cardiologist, will be attending the meeting to lead a Q&A session. During this time, members will have the opportunity to ask questions about their condition, the exercise/s they can do, or any other cardiac concerns they may have.

To see more information about the meeting and to register, go to:
https://www.myheart.org.uk/spring-national-myheart-meeting-saturday14th-march-2026/

Register before Tuesday, 10th February, 2026

23/01/2026

"Coming across CRY has been the best thing after such an overwhelming period. I have been able to listen to different cardiologists discuss my condition & been in touch with others who experience my condition"

Read myheart member Kaitlin Lawrence's story https://bit.ly/4gqTBbh

19/01/2026

Vital Beat has created a specialised protection & comfort solution for people with medical devices such as an ICD, EV-ICD or S-ICD. Vital Beat has partnered with CRY to offer myheart members a €40 (aprx £35) discount on selected items! Find out more at: http://myheart.org.uk/vital-beat/

12/12/2025

myheart member Kaitlin Lawrence appeared on Woman's Hour along side Gabby Logan yesterday to share her experience of being diagnosed with a heart condition at just 22, and the impact it has had on her life and having to finish her sporting career earlier than expected. Since her diagnosis, she has campaigned for cardiac screening to be introduced into the Netball Super League, aiming to prevent others from facing a similar journey.

Listen to Kaitlin's full interview of BBC Sounds -

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