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Monday 10am - 5pm Tuesday 10am - 5pm Wednesday 10am - 5pm Thursday 10am - 5pm Friday 10am - 5pm

Myheart

If you have been suddenly diagnosed with a congenital or inherited heart condition we would love to hear from you.

myheart offers help and support to people with cardiac conditions. If you are a between the ages of 12 and 35 and have been diagnosed with one of the following conditions, myheart can help you.
- Cardiomyopathies such as hypertrophic cardiomyopathy (HCM), arrhythmogenic right ventricular cardiomyopathy (ARVC) and dilated cardiomyopathy (DCM)
- Ion channelopathies such as long QT syndrome (LQTS), Brugada syndrome, catecholaminergic polymorphic ventricular tachycardia (CPVT), progressive cardiac conduction defect (PCCD) and short QT syndrome (SQTS)
- Wolff-Parkinson-White syndrome (WPW)
- Marfan syndrome
- Myocarditis
- Coronary artery anomalies
- Premature coronary artery disease
- Familial hypercholesterolemia

26/11/2025

"I truly believe if cardiac screening was available to me, I wouldn’t have had to go through this in the traumatic way I did and I would’ve been able to help my condition before it got to the point it did."

Read myheart member Cara Bunn's story here:
https://www.myheart.org.uk/if-cardiac-screening-was-available-to-me-i-wouldnt-have-had-to-go-through-this-trauma-by-cara-bunn/

24/11/2025

News Article - Kaitlin Lawrence heart rate hit 294

“Everyone talks about anterior cruciate ligament and ankle injuries..... But people don’t realise the danger of undetected heart conditions until a tragedy strikes, so it’s important that everyone realises cardiac screening can save lives,” Lawrence says.

Kaitlin now part of CRY's Myheart network is working with the Netball Players’ Association and CRY, and has successfully campaigned for cardiac screening to be introduced in the Super League next season.

https://www.telegraph.co.uk/netball/2025/11/24/kaitlin-lawrence-heart-rate-294-netball-cardiac-screening/

21/11/2025

Ben Aldred’s MyHeart Fund Events & Updates

"Our 2 main fundraising events in 2025 have been a 2nd CRYket Dinner & Dance which we held at Sidcup RFC along with our 3rd year of riding the static bike for 7 days!

"As a family we will continue to support CRY and raise funds and we feel incredibly blessed that 3 years on from his cardiac arrest, Ben continues to live a full and sporting life as he enters his 3rd year at university."

Read more here - https://www.myheart.org.uk/ben-aldreds-myheart-fund-events-and-updates-2025/

11/11/2025

Did data save me?

"My world changed in an instant; I had a week to try and stay present with my family whilst holding onto the immense fear of the unknown path ahead. "

Read myheart member Sam Morgan's story here - https://www.myheart.org.uk/did-data-save-me-by-sam-morgan/

10/11/2025

It's Raising Awareness Week! ♥️

Help us raise awareness of cardiac conditions in young people this week by joining an event, sharing our messages across social media or telling your own story of diagnosis

Find out more & get involved at https://www.c-r-y.org.uk/raising-awareness-week

05/11/2025

CRY Patron Andy Scott spoke at Brentford’s Heart of West London Takeover Day during the Brentford vs. Manchester City match on October 5th.

He shared his personal experience of being diagnosed with a heart condition, his involvement with CRY and the Heart of West London Partnership, and why heart screening is so important.

Brentford FC Brentford FC Community Sports Trust Resuscitation Council UK

10/10/2025

Lat chance to register for the Autumn virtual myheart meeting taking place on Sat,18th October

In this session, members can ask Consultant Cardiologist, Dr Raghav Bhatia, questions they have about their condition.

Find out more here: https://t.co/ujFtdKJWgE

03/10/2025

Register now for the Autumn virtual myheart meeting taking place on Saturday,18th October 2025.

There will be a question and answer session with Dr. Raghav Bhatia, Consultant Cardiologist. In this session, members can ask questions they have about their condition, the exercise/s they can do or any other cardiac concerns they may have especially with regards to current circumstances.

To see more information about the meeting and to register, go to: https://bit.ly/4goTRJG

Register before Monday, 13th October.

02/10/2025

My life has changed forever but it will not define me!

"I hope that people reading this will realise these things can truly happen to anyone, anywhere, anytime. Therefore, awareness of every aspect whether that is screening or diagnosis to dealing with the aftermath of a cardiac arrest, it can be managed and there is people who can help."

Read myheart member Nick Cassidy's story here - https://bit.ly/4mKvrLY

26/09/2025

Getting diagnosed with a heart condition at 26 and pregnant

"It was a tough recovery period but I now feel better than I ever have and have a beautiful 6 month baby boy. I will forever by grateful to my consultant for pushing for that 24 hour tape when others had put it down to just fainting."

Read myheart member Lucia Bradbury's story here https://www.myheart.org.uk/getting-diagnosed-with-a-heart-condition-at-26-and-pregnant/

23/09/2025

Vital Beat has created a unique and specialized protection and comfort solution for people with medical devices such as an ICD, EV-ICD or S-ICD. Wearing the Vital Beat shirt and protection shields will allow you to safely and comfortably enjoy your sports, hobbies and work.

After meeting at a cardiology convention last year, Vital Beat has collaborated with CRY to offer myheart members a €40 (aprx £35) discount on selected items!

Find out more at: https://www.myheart.org.uk/vital-beat/

19/09/2025

If you were diagnosed with a cardiac condition at a young age and would like to share your story for the benefit of others, please send it to us! We will add it our website & social media to raise awareness of cardiac conditions in young.

Please send to myheart@c-r-y.org.uk

Address

Unit 1140B The Axis Centre, Cleeve Road
Leatherhead
KT227RD

Opening Hours

Monday	10am - 5pm
Tuesday	10am - 5pm
Wednesday	10am - 5pm
Thursday	10am - 5pm
Friday	10am - 5pm

Telephone

+441737363222

Website

http://www.myheart.org.uk/

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myheart

CRY’s myheart network provides personalised help, support, and information to individuals who have been diagnosed with a life-threatening inherited or congenital cardiac condition. myheart is a support system for individuals to help develop effective coping strategies and reduce social isolation.

The network was developed in response to feedback from young people who found that support groups available were not effective in helping them deal with issues such as fitting of ICDs, pacemakers and undergoing ablation surgery. We have dedicated resources for young people under the age of 35 who have been diagnosed with a cardiac condition, as well as information and support resources for anyone over the age of 18 who has been diagnosed with a cardiac condition when they thought that they were fit and healthy.