Patient Centred Outcomes Research- PCOR

02/04/2026

Help shape the future of testicular cancer follow-up care.
If you or someone you know is aged 16-40 years and having follow-up care after treatment for testicular cancer please consider helping with this important research to improve services. Contact lead researcher Gwen Saalmink for more details gwendolyn.saalmink@nhs.net

28/08/2025

🌟 578 patients recruited to the CANVAS study - CANcer SurVeillance And Support after treatment funded by Yorkshire Cancer Research🌟
After recruiting our first patient to CANVAS in June 2021 we have finally completed our recruitment and our last patient has completed the study! We recruited 578 patients in total and are so happy with the level of interest and participation.
The overall objective was to support people with a Breast or Colorectal cancer diagnosis in the follow-up phase of their care (post-treatment). We developed a tailored online self-reporting symptom/side effect questionnaire linked with self-management advice, depending on the level of severity of symptoms reported by the patient. For certain severe symptoms considered clinically significant, notifications were triggered, and clinicians were emailed details of the patient’s symptom reported. Patients were then contacted and/or seen in clinic.
The aim of the study was to see if this mode of online remote surveillance was a feasible and beneficial follow-up mode for these two patient groups, from a patient and clinician perspective.
Now that all participating patients have completed their time on study we will start our data analysis! Watch this space or keep an eye on our website https://pcor.org.uk/ for study findings in the near future.

12/05/2025

It’s International Nurses Day! A great opportunity for us to acknowledge all the wonderful work and contributions our current and past nursing colleagues have made to the PCOR research activity. Thank you all ☺️

🌟 Happy International Nurses Day! 🌟

Today, we recognise and thank our incredible nurses for the compassion, professionalism, and dedication you show every single day. This year’s theme, “Our Nurses. Our Future.”, shines a light on the vital role nurses play in shaping the future of healthcare.

👏 On Friday, we’ll be celebrating some of our nominated colleagues at a special event attended by our Chief Nurse, Rabina Tindale — congratulations to all who have been recognised!

📲 Keep an eye on our social media channels and website throughout the week, where we’ll be sharing inspiring stories from across the Trust.

💙 On behalf of everyone at the Trust — thank you for everything you do.

20/08/2024

Congratulations to Professor Galina Velikova (Patient Centred Outcomes Research, LIMR and the Leeds Cancer Centre, LTHT), who has been awarded a prestigious Career Achievement Prize for significant contributions to improving patient-centred care through integration of Patient-Reported Outcome Measures in clinical practice. The prize is awarded by the internationally leading organisation on medical outcomes measurement: USA Health Assessment Lab/Medical Outcomes Trust: https://isqua.org/latest-blog/dr-galina-velikova-honoured-with-proms-career-achievement-prize.html & https://www.hal-health.org/award-winners
Professor Velikova has worked for 30 years as a medical oncology consultant in the Leeds Teaching Hospital and a clinical academic in the University of Leeds, combining busy oncology practice with pioneering clinical research contributing to the evidence-base for implementing patient-reported outcome measures in the care of cancer patients.
Further information about ongoing projects in Leeds by the Patient Centred Outcomes Research team can be found here: https://pcor.org.uk/

17/04/2024

First publication from the Social Integration After a Cancer Diagnosis in Adolescents and Young Adults (AYA) project can now be viewed here: https://mdpi.com/2072-6694/16/7/1332… The results of this interview study provide rich and important insight on how mental health is affected by a diagnosis of cancer in young people and the barriers to accessing care (including avoidance of support).

The biographical disruption that occurs in adolescents and young adults following a cancer diagnosis can affect various important psychosocial domains including relationships with family and friends, sexual development, vocational and educational trajectories, and physical and emotional wellbeing. W...

31/01/2024

We are recruiting! Check out our vacancy: Research Fellow for an EORTC funded project exploring processes for selecting patient reported outcome (PRO) items for use in symptom monitoring within cancer trials and practice.
⭐️Deadline 26th Feb https://jobs.leeds.ac.uk/vacancy.aspx?ref=MHLMR1158 ⭐️

Overview of the RoleResearch Assistant in Patient Centred Outcomes ResearchAre you passionate about research that will improve the measurement of patient experience, internationally? We are looking for an outstanding candidate to join the...

06/04/2022

We’re very pleased to share the final report from the eRAPID NIHR programme grant: https://www.journalslibrary.nihr.ac.uk/pgfar/FDDE8516 #/abstract

Follow the link to learn more about how we developed and evaluated an online symptom monitoring intervention for patients receiving cancer treatment. You can also see more about our ongoing projects here: https://pcor.org.uk/

19/07/2018

Proud that our Patient Centred Outcomes Research contributed over 500 participants to the total recruitment figures in Leeds in 2017-2018 helping to put us in the top ten trusts with the largest volume of research studies Thank you to all the patients and staff for the continued involvement

We are pleased to announce that Leeds Teaching Hospitals has placed top nationally for increase in recruitment in all research studies, with 19,179 in 2017/18 compared to 12,431 in 2016/17.

We are also in the top 10 nationally for the number of research studies we have supported during the year, coming fourth in the country.

Dr Jacqueline Andrews, Director for Research and Innovation at LTHT, said: "We are delighted that Leeds Teaching Hospitals has been able to contribute so significantly to NIHR recruitment to studies this year.

“We are looking forward to even closer partnership working with NIHR in 18/19 when our new £4million 18-bed Clinical Research Facility (CRF) opens in spring 2019.

“We thank all our research-active staff who have embraced new ways of working, to deliver a greater volume of research to ensure our patients have access to the very latest developments in research and innovation."

One participant in research was Leeds man Paul Driver, who is currently taking part in the NIHR and Cancer Research UK-funded FOCUS4 trial into advanced bowel cancer.

He said: “It’s the data itself which is important and all the results are important. I know I can’t talk about curing my cancer but I can help other people.”

To see the League Table, visit: www.nihr.ac.uk/nihrleaguetable

19/04/2018

PhD opportunity with us ! Developing metastatic breast cancer quality of life questionnaire. Deadline 15th May.

PhD Project - Developing a questionnaire for Health-Related Quality of Life measurement in Metastatic Breast Cancer at University of Leeds, listed on FindAPhD.com

10/11/2017

Today began with a session on cold caps (used by some patients receiving chemotherapy to try and reduce hair loss). Thanks to Ruth Outhwaite and Andrea Gibson for explaining the process, always helpful to get a better understanding of patient experiences during treatment.
https://www.macmillan.org.uk/information-and-support/coping/side-effects-and-symptoms/hair-loss/scalp-cooling.html