Find a cure for mighty max

Find a cure for mighty max Fighting an Ependymoma brain tumour since 2017 🎗💙🦸‍♂️🦋

Our next awareness walk for Mighty Max's charity will be Sunday 3rd May. We will be walking the Rivington Pike circular ...
02/04/2026

Our next awareness walk for Mighty Max's charity will be Sunday 3rd May. We will be walking the Rivington Pike circular wearing purple to show support and make awareness 💜

Everyone is welcome, just bring a packed lunch as hopefully the weather will be kinder this time and we can all have a rest and catch up at the top, while the kids play and explore.

We will also be starting a walk and talk group, which will be a regular fundraising event, and focus on supporting people who just need to get out and get something off their chest. More details to follow on that one.

But for now another date in your diary.

Sunday 3rd May

Meeting Rivington Hall Barn Yard 11am
(Pop it in Google maps)

Wear purple 💜

Help raise awareness of childhood brain tumours and the needs arising to families and children facing them in the UK 💜🦋🦸‍♂️

FREE half term activity (well might cost two pieces of paper and some ink) I absolutely love how all of Max's friends ge...
01/04/2026

FREE half term activity (well might cost two pieces of paper and some ink)

I absolutely love how all of Max's friends get involved with everything we do to remember Max and raise awareness for other children going through this horrendous disease 💔
I hope it helps them too, as much as it helps me 💜

So I have decided to get them involved even more, by getting them to design a t-shirt for the new charity.

The Theme
What Max means to them and how they will continue to remember him 💜

I will then take the designs and put them together to make a new tshirt designed specifically by our children who support the foundation and Max over the years 💜

If anyone needs a pdf version please message me and I will get one sent over.

I will put a closing date on getting the designs finished by 24th April, so that we can start turning the designs into reality and give the children something to look forward to and continue to make Mighty Max, aswell as them all proud for what they are achieving 💜🦋🦸‍♂️

SAVE THE DATE Friday 21st August Our first big event 🙌 The Mighty Max Fest 🦸‍♂️Running Horses, Lydiate.Ticketed event fo...
31/03/2026

SAVE THE DATE

Friday 21st August

Our first big event 🙌

The Mighty Max Fest 🦸‍♂️

Running Horses, Lydiate.

Ticketed event for adults and children

Raising money to help families with children diagnosed with brain tumours in the UK 🦋💜

More details to follow 💜

Tomorrow's walk for our gorgeous boy 💜Meeting at 11am Bwelch Pen Barras Car Park CH7 5SH Weather looks wet so pack a mac...
28/03/2026

Tomorrow's walk for our gorgeous boy 💜

Meeting at 11am Bwelch Pen Barras Car Park CH7 5SH

Weather looks wet so pack a mac. I've asked Max to try and make it a bit brighter for us, so hopefully he will try his best 🙏💜

We are walking to raise awareness for the "The Mighty Max Johnson Foundation", which we are in the process of finalising all the documents so that we can get it registered ®️

Our goal is simple but powerful:

To ensure that no family facing childhood brain cancer feels alone.

By providing compassionate support, raising awareness and encouraging greater focus on rare tumours, such as ependymoma's, The Mighty Max Johnson Foundation aims to make a meaningful difference to families during their most difficult moments.

Every act of support, every conversation raised, and every donation received helps us move closer to that goal.

Supporting families. Raising awareness. Inspiring hope.

Be Brave
Be Courageous
Be Kind
Be Mighty like Max 💜🦸‍♂️🦋

Just want to clarify the walk to raise awareness of the new charity in the name of our incredible Mighty Max is this SUN...
25/03/2026

Just want to clarify the walk to raise awareness of the new charity in the name of our incredible Mighty Max is this SUNDAY 29TH MARCH 💜

A few people have thought it was Saturday, but its not, its the Sunday. The day the clocks go forward, so make sure you remember to put them forward the night before so your not late meeting us at 11am.

Location is Bwelch Pen Barras Car Park CH7 5SH.

We will all be in purple hoodies 💜

Please do not think you need to raise money for the walk, its mainly about supporting and raising awareness. But if the kids want to get involved and pester family and friends for a little sponsor then that's more than appreciated and I have sponsor forms for them if anyone needs one, just message me 💜

Be Brave
Be Courageous
Be Kind
Be Mighty like Max 🦸‍♂️💜

I miss you so much my baby boy 💔 7 months without you, 7 months closer to being with you 🦋💜
18/03/2026

I miss you so much my baby boy 💔 7 months without you, 7 months closer to being with you 🦋💜

I've had a few people asking me about the walk for Max on the 29th March, so me and Tony went to do it today to get more...
14/03/2026

I've had a few people asking me about the walk for Max on the 29th March, so me and Tony went to do it today to get more details 💜

We done the steep walk on the way up, which took around 45 mins with a few stops on the way to catch my breath and avoid having to call mountain rescue 🥴

On the way down we decided to do the easier route so that we could compare and that took around 40 mins down, so im going to say about an hour up. But that took us to another car park a bit further up from where we had parked. It was an extra 15 mins from there to the car park we had parked at and on the way back it started to hail stone the biggest stones I've ever seen, definitely our Max playing with us 💜 It really made me smile and then we were greeted by a little robin when we got back to the car 🐦💜

Unfortunately we have had to cancel the coach transfer, as we don't think it would be able to get up there. There are a few places up to the car parks that are a bit tight and one track roads, so apologies for this.

So the details for the walk on Sunday 29th March are...
Meeting at Bwelch Pen Barras Car Park at 11am.
We will then do the easier route round the side and up to Moel Famau so that its a bit more accessible for everyone.
The path up/down can be unsteady in places and there is a lot of loose slate, so make sure you have decent shoes on for this.
Although we did see kids walking up in wellies and trainers.
It was also alot colder going round the side than it was going up the middle, so layer up.
To finish off we will be meeting back at for a well deserved drink which will be around 2.30/3pm

Things to remember..
Bring snacks and water.
Suitable clothing
Dogs need to be kept on a lead in certain places due to wildlife and farm animals. So please read the signs.
Also the clocks go forward the night before, so dont forget to set your clocks to the correct time so we dont miss you.

Looking forward to seeing everyone and raising awareness for The Mighty Max Johnson Foundation 💜

Please dont feel that you need to raise money just to be apart of what we are doing, your presence and helping us to make awareness is more than enough 💜

27/02/2026

My sister in law sent me this video of Max last night. It was after his first reccurence, 4 months after he had finished 13 months of aggressive chemotherapy. His gorgeous hair was just starting to come back and we were waiting to find out if we would be excepted for Proton Beam therapy.
This was 7 years ago and still nothing has changed. Same protocol, same amount of children loosing their childhoods to brain cancer. More needs to be done to save these children 💜 This is one of my goals when I am able to set up the new charity in Max's name. A huge part of it will be to help raise money for research into Ependymoma's 🦋

Be Brave
Be Courageous
Be Kind
Be Mighty like Max
🦸‍♂️🦋💜

Last July about 4 weeks before Max fell asleep forever, we took him to France to make some memories with him. We were gi...
26/02/2026

Last July about 4 weeks before Max fell asleep forever, we took him to France to make some memories with him.
We were given a campervan to use, as we were ment to be going back to Germany for Max's next lot of treatment, but that got postponed until he had fully recovered from the seizure, and we were going to take him to France during the journey to Germany.
So as we had already booked some accommodation and paid for tickets, we decided to still go to make memories with him. I am so glad we decided to do this, as Maximus never made that next lot of treatment and we wouldn't have got to make his final wish come true, which was going to Paris to see the Eiffel Tower and where Cat Noir and Ladybug lived.
So we left early on Saturday 12th July and headed to Dover to catch the ferry to France, where we stayed in a few campsites before we spent a few nights in a little house with a hot tub for Max and Maizie to play in. But unfortunately he started to get headaches and we had to bring him home to get checked out at a hospital in Kent, where they told us the tumour had started to grow again 😢

I got sent the most beautiful poem before from Max's girlfriend's mum. Penelope had written a poem along with Max's frei...
25/02/2026

I got sent the most beautiful poem before from Max's girlfriend's mum. Penelope had written a poem along with Max's freind Brooke and one of his teachers Mrs Londsborough 💜 It was just beautiful, and so lovely to hear how they all thought of him and how much he meant and still means to everyone 💜

I also saw the most amazing rainbow on a walk today with my dad and it wasn't even raining. It was a whole rainbow, we could see both ends. I have never seen anything like it in my life, it was just beautiful and then we had a visit from a little robin while we were having our lunch. Been getting quite a few signs from our baby the past few days, picking me up and helping me 🌈🐦🚚🦋

Love you Maxi baby 💜🦸‍♂️

Thankyou to everyone who has donated and shared the new go fund me to help get the charity started. We are extremely gra...
21/02/2026

Thankyou to everyone who has donated and shared the new go fund me to help get the charity started. We are extremely grateful.

I also want to say a huge thankyou to everyone who helped and donated money to help us get Max treatment and just want to be completey transparent with what that money was used for.
Although we did not manage to complete all the treatment for Max, unfortunately we still had to pay up front before we started, knowing that we would not get any money back if the unimaginable happened, which it did 😢💔

The majority of the money went on treatment, which cost approximately £140,000, travel and accommodation costs, supplements and alternative treatments for Max, such as hiring the hbot tent, which was £450 a month, buying an infrared sauna blanket and getting frequent private blood tests as the NHS would only do a small panel and we needed a larger one to make sure we weren't over/under supplementing him. Private consultations, urine tests which detected mold and metals etc in his system so we could detox all of these out of him.

We also used some to make memories with him, like taking him to cbeebies and Disneyland in Paris 4 weeks before he fell asleep 💔

And after all of that we still have a small amount left over, which i have since sent some to help other children affected by this horrible disease, and the rest will be going in to the new charity.

So thankyou again so much to everyone who has supported us and continued to do so and if anyone has any questions about the new charity, gofund me and fundraising ideas or even previous treatment and alternatives that we did with Max, then please get in touch as all I want to do is help others, like Max would want, in anyway we can do 💜

Be Brave
Be Courageous
Be Kind
Be Mighty like Max
🦸‍♂️💜🦋

It has been amazing to hear how Max's school have been honouring him and looking after the children. Celebrating his bir...
28/11/2025

It has been amazing to hear how Max's school have been honouring him and looking after the children. Celebrating his birthday and giving the children a save space to talk about him and their feelings. We are forever grateful we trusted to look after our baby 💜

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