Leiomyosarcoma - LMS Research UK

Leiomyosarcoma - LMS Research UK We're Leiomyosarcoma Research UK (LMSR UK) an organisation formed by LMS patients & their loved ones. Donate via link. Charity Number: 1210455

We’re the only UK based charity to focus 100% of our efforts on improving outcomes for these sarcoma patients.

At the Connected Tissue Oncology Society 2025 Conference (Pic from right to left- myself, Sharon Anderson (President LMS...
13/11/2025

At the Connected Tissue Oncology Society 2025 Conference (Pic from right to left- myself, Sharon Anderson (President LMSDR) and Tess Angeles).

Trying to learn as much as possible about LMS treatments, therapies and biology to feedback to our community. Also connecting with other charities and researchers to think about studies and activities that might help us in the UK and Internationally!!!

Interesting blog on why repurposing drugs could be a great opportunity for the sarcoma community. Thank you Sarcoma Pati...
10/11/2025

Interesting blog on why repurposing drugs could be a great opportunity for the sarcoma community. Thank you Sarcoma Patient Advocacy Global Network - SPAGN and Sarcoma UK

Repurposing existing drugs could open new treatment paths for rare cancers like sarcoma. Learn why SPAGN's own Ornella Gonzato (Rete Sarcoma) and Roger Wilson (Sarcoma UK) believe this is an urgent opportunity for our community.

Read the blog: https://www.sarcoma-patients.org/blog/drug_repurposing_what_is_it/

09/11/2025

CONNECTIVE TISSUE ONCOLOGY SOCIETY CONFERENCE 2025
Please let us know if you have anything you want to learn more about from our oncologists, surgeons, specialists about research, treatments, therapies. Happy to ask questions for you and find out more or even champion more support into the UK.

Let us know :-)

“I’ve enjoyed finding a purpose and enjoy working alongside people who are passionate and committed to finding a cure fo...
07/11/2025

“I’ve enjoyed finding a purpose and enjoy working alongside people who are passionate and committed to finding a cure for LMS”. Colin, LMS Research UK Trustee

31/10/2025

This week’s is Kirstie. With 10 weeks to go, she has already smashed her original fundraising target and now hopes to raise even more for Research UK! Here she is saying goodnight to her two boys before going on a training run.
In her own words, this is her motivation:

“We are setting up this fundraiser in loving memory of my Mam Lorraine, who we sadly lost on August the 17th 2025 after her brave battle with Uterine Leiomyosarcoma (uLMS).
Mam was our world, she was caring, full of love and my best friend. To see her faced with such a rare and aggressive cancer was heartbreaking.
Uterine Leiomyosarcoma is a cancer that grows in the smooth muscle of the uterus. It is extremely rare, often fast-growing, and sadly very difficult to treat. Because it is so uncommon, there isn't enough awareness or research, which makes it even harder for families like ours.
We want to honour Mam's memory by giving something back. Our goal is to raise enough money to support Leiomyosarcoma Research UK, to help fund vital research into this devastating disease and give hope to others in the future. This will be our first ever running event, and as someone who has only recently started their running journey, it is going to be a massive challenge for us, but one we are proud to take on in in Mam's name.
Mam was so loved, and we know she would want us to try to help others who may face the same journey. Any donation, no matter how small, means the world to us and will help us keep her memory alive in such a meaningful way. Thank you for your support.”

Thank you so much Kirstie!

https://www.justgiving.com/page/for-lorraine

31/10/2025

Join us for a night of fun from your own homes, raising all important funds for LMS Research UK.

28/10/2025

The best advice I’ve received since being diagnosed with Leiomyosarcoma has been _________

https://www.easyfundraising.org.uk/causes/lms-research-uk/We are now on Easyfundraising, making it easy to donate to LMS...
24/10/2025

https://www.easyfundraising.org.uk/causes/lms-research-uk/

We are now on Easyfundraising, making it easy to donate to LMS Research UK with no cost to you! Brands will donate a % of the bill directly to LMS Research UK, every time you make a purchase.

From supermarket shops, holidays and take-aways there’s sure to be many brands you use regularly. And don’t forget Christmas will be upon us soon!

Check out the video for more information and sign up today!

Help us when you shop with 7,000+ brands. Join now.

We couldn’t miss Margot from East Sussex! Only 10 weeks old, but already with ambitions to be a therapy dog at the Royal...
23/10/2025

We couldn’t miss Margot from East Sussex!
Only 10 weeks old, but already with ambitions to be a therapy dog at the Royal Marsden 🥰

22/10/2025

Happy 1 Year Anniversary LMS Research UK and Thank you everyone!
We could not achieve this milestone without the wonderful trustees that keep the wheels turning and very importantly our volunteers. Could not do it without you.
Am so very proud of you all. ###

A LITTLE POEM OF HOPE
When you or your loved one is diagnosed with a disease
An awful, dreadful, evil disease.
You feel lost and empty along the way.

When the world feels dark and cold
To have some comfort from those new and old
Is something you will remember forever.

It’s testing times like these
You challenge yourself
You learn your strength.

Learning to advocate can be hard.
At times it’s easier to bury your head in sand.
But there is hope.

Hope for the future.
Hope in new research.
Hope in the cure, whether for you or others.

We will do it together.
We will make a difference.
We’ll make a lasting legacy forever.

Love Maisie England

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