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Saving lives through stem cells. Welcome to our page. We have created this page for you to share comments, feedback, questions, photos and videos.

We want you to feel safe and comfortable using this page so please have a look at our House Rules: https://www.anthonynolan.org/anthony-nolans-social-media-platforms

Privacy

People who use this page often want to post messages of support for loved ones who have been diagnosed with a blood cancer. This is a really great thing to do, but we need to make sure you are aware of data protection requirements concerning privacy. If you want to name individuals who have been diagnosed with a medical condition, you must get their explicit consent before doing so. To protect privacy, we may remove posts which reveal confidential information about patients, transplants, any of our donors (including donors of blood stem cells , bone marrow or umbilical cord blood ), or anything relating to collections from our donors. You can find out more about data protection and privacy on the Information Commissioner’s website: http://www.ico.gov.uk/for_the_public.aspx or our website: http://www.anthonynolan.org/

Medical Concerns

People may post medical tips and ideas in the page. Please remember that any content posted here should not be considered medical advice. You should discuss any questions or concerns about your health with your healthcare professional(s). Respect

Please keep all posts relevant and respectful of others. This is a safe space for people to communicate safely and comfortably. Anthony Nolan may, at our sole discretion, remove any posts which we consider inappropriate or offensive, including posts which are harassing, abusive, obscene, hateful, racist, sexist or homophobic, as well as posts which promote commercial products or illegal activities, or which violate Facebook’s terms of service. If you continue to post inappropriate or offensive messages we may remove you from the page. Our page is normally only monitored by us Monday-Friday 9am - 5pm excluding bank holidays in England and Wales. If you think someone is misusing the page or breaking the House Rules, or if you have any feedback on how to make this group a better space, please contact: social@anthonynolan.org.

16/01/2026

“I signed up to the stem cell register 11 years ago, and this was the first time I’ve ever been matched. I found the donation process simple, pain-free, and honestly very similar to giving blood.

Signing up takes just a few clicks, and they’ll send you a swab kit in the post. You might never be called - but you might save someone’s life.”

A big thank you to Tom, who went the extra mile to help a stranger in need by donating his stem cells.

If you’re aged 16–30, you can help save a life by joining the stem cell register today.

15/01/2026

“What I’ve realised throughout this process is that nobody knows about stem cell transplants. A lot of my friends didn’t have a clue. That’s why I want to raise awareness by sharing my story. Health is wealth and it is a luxury to be grateful for.”

Sian was diagnosed with myelofibrosis late last year, after experiencing extreme fatigue and losing weight unexpectedly. Now, she’s in need of a stem cell transplant, and was told earlier this month that there was only one match for her – in the entire world.

When Sian heard that, she was shocked. Thankfully her donor is contactable and able to go ahead with the procedure, but for many others, this isn’t the case, so now she wants to encourage anyone eligible to sign up to the stem cell register, and help people just like her.

“My condition is very rare. I am the only myelofibrosis patient they've got in Swansea and Cardiff, and I’ve been told my disease is aggressive as well.”

“There’s a lot going on, so it can be very difficult to be upbeat and positive - when you take away the layers it’s absolutely petrifying. But you’ve got to forget about that and be positive – and this is how I’m doing that. By signing up to the register, you can literally save a life, and that’s how powerful it is.”

✅ Aged 16-30? Join the register today, and you could help someone like Sian: https://bit.ly/4pECBCY

📢 Over 30 or unable to sign up? Tell your friends and family members about the stem cell register today.

14/01/2026

“No matter if you knew her like we did, or if you knew her for 5 minutes, she just made you feel like you were the most important person in the room. Always.

Everyone that met her always thought she was the most unique and amazing person they’d ever met.”

Josie had a stem cell transplant in 2024, and despite the transplant being an initial success, she contracted Covid-19 and sadly passed away a few months after her transplant.

“Mum was so selfless in everything she ever did. We are so proud of what Josie achieved in life, and how she has impacted so many people with her love, kindness, gentleness, and her ability to listen.”

At the time of her funeral, Josie’s family created an online tribute page in her memory, inviting friends and loved ones to share their memories. In place of flowers, they kindly requested donations to be made.

“We thought that maybe a longer lasting memory would come from setting up her tribute page, but we didn’t anticipate how much was going to be donated.

The legacy of Josephine is truly remarkable to us, and who she has made such impressions on. She went through her life everyday just wanting to help everybody and anybody.”

To date, Josie’s tribute page has raised over £37,000, with her legacy inspiring others to take on remarkable fundraising challenges, including her family running the Glasgow 10k and Half Marathon - and her son Santino is taking on the London Marathon this year in aid of Anthony Nolan.

“It’s inspiring to see the effect that Josie had on people, saying that they want to do something for Josie, and this is what’s driving them.

"The sadness and pain of losing Josie is something we carry every day, but we find real joy & immense pride in knowing that as more money is raised, more people are helped and more lives could be saved.”

A tribute page offers a special place to remember your loved one and create a lasting legacy in their honour. If you would like to create a tribute page, please visit: https://bit.ly/49efxF9

13/01/2026

“I was nervous, because my biggest fear in life is needles. I tried to donate blood once and I passed out before I got to the biscuits. But I knew there was somebody at the end of it who was obviously doing so much worse, and if it was my friends, family or even me, I would want someone to donate for me or them.”

Fiona joined the stem cell register after realising she was approaching the cut-off age of 30 and wanted the chance to help someone if she could.

“I thought, ‘I’d better do it now. I would want someone to do the same for me if I needed it.’ To her surprise, she was found to be a match for someone in need just a year later and called to donate her stem cells.

Fiona put her own fears aside and went on to donate her stem cells to help a stranger in need.

“Knowing I have potentially saved someone’s life… it's quite cool really, because not many people in life can say that.

I almost think it's a no brainer to join the register, and if you put yourself in the position of the person who needed a donation, you would want that person to do it for you. Yes, it is a little bit of a process, but it's a manageable process.

If you're fine with needles, then it’s even easier, but even if you don't like them, it's absolutely doable, and you're doing it for the best reason ever – to hopefully save someone’s life."

Thank you, Fiona, for making a difference to someone in need of a stem cell transplant 💚

09/01/2026

“If I were ever in that situation, I’d hope someone would step forward for me.”

Alex joined the stem cell register several years ago, after learning about stem cell donation through a friend and feeling inspired by the possibility of making a difference to someone in need.

“I didn’t hear anything for years, but in May this year, I was told I’d been matched with a patient. It was overwhelming, but also incredibly exciting.

The stem cell donation took place in July. Anthony Nolan made the donation process so easy and arranged transport and overnight stays.

The donation was straightforward, pain-free, and fascinating to see. What surprised me most was how I felt emotionally afterwards - a mix of relief, pride, and gratitude. Knowing that something I’d done could give someone else a second chance at life was incredibly humbling.

For anyone interested in signing up to be a stem cell donor, I'd highly recommend it. It’s so easy to register and you never know… you might have the chance to save a life!”

08/01/2026

“After my transplant I couldn’t bear to have HP sauce, which I had loved before. I then had gherkins one day and realised that I loved them – I would never have eaten them before! I asked my brother, who was my donor, if he liked them and he said that he loved them…”

After a stem cell transplant, you’ll have new donor DNA in your bloodstream alongside your own. This is known as chimerism – and this can have some interesting effects!

People can sometimes experience changes in allergies after a transplant, which is due to the changing of cells within your immune system. Often, this will be the development of new allergies to medications or foods, or conditions like asthma. In some cases, people can also lose their old allergies!

Even more interestingly, people have also reported changes in taste, food preferences, or even music!

Right now, there’s no medical evidence to show that changes in taste or personality can be linked to the donor’s cells themselves – instead these changes may be due to side-effects of medication, or the long hospital stays and intense treatments.

Learn more about chimerism in our latest blog: https://bit.ly/497a8kl

PS – have you experienced any changes in allergies, taste or personality since receiving your stem cell transplant?

07/01/2026

What did you find were the biggest financial costs of going through a stem cell transplant or CAR-T?

06/01/2026

The Anthony Nolan Cell Collection Centre has now been open for several months, and here’s how we’re getting on!

🧬 So far, 70 people have donated at the Anthony Nolan Cell Collection Centre – 46 of which have donated to a patient in need of a stem cell transplant, and 24 have donated to medical research and treatments.

🌎 These donated stem cells have travelled across the world – from within the UK all the way to South America, North America, Europe and even Australia.

⏱️ One of the key reasons behind opening a dedicated cell collection centre was to ensure that donor cells were collected at the right time for the recipient – giving them the best possible chance of recovery.

Before the centre opened, just 1 in 5 patients received their stem cells at the time requested by their medical team due to capacity issues. Since opening, 1 in 2 patients have received their cells at the time requested! This is a huge improvement and will give each patient the best chance of survival. 💚

05/01/2026

“Whoever that person is, they've had my donation and that's allowed them more time with their loved ones, and hopefully it's given them an extended lease of life. I just hope it’s helped them in some way.”

Paramedic Christopher joined the stem cell register at 18, driven by the same sense of care that guides his lifesaving work, and said registering felt “like the right thing to do” to help a stranger in need.

Almost ten years passed before he received the call to say he was a match for someone in need of a stem cell transplant.

“After that much time has passed you just think it’s probably not going to happen. So, it was pretty cool that I could potentially help someone.”

Following further health checks, Christopher went on to donate his stem cells to help a complete stranger.

“It was pretty straightforward and pretty easy. The team at the hospital were really helpful and brought me tea, coffee and food throughout the day. It was absolutely fine- take a book, take an iPad, watch some TV, and you’re done.”

Thanks to Christopher’s selfless donation, someone in need could have another chance at life. If you are aged 16–30, you too can make a difference by joining the stem cell register.

31/12/2025

We're reflecting on another incredible year - what's been your highlight of 2025?

29/12/2025

🚨 PLEASE SHARE - 🚨

"Offering to help someone with a life-threatening illness is one of the most generous gifts you can give. You might not change the whole world, but you could change someone’s world completely."

Jake, a dad of 2 from Queensland, Australia, is urging people across the world to join the stem cell register, after heartbreakingly being diagnosed with Hodgkins Lymphoma for the third time.

Jake was first diagnosed when he was 21 years old, and then relapsed at 34. At this point, Jake received an autologous stem cell transplant, using his own cells, but now he needs a stem cell transplant from a stranger. Without one, his children may lose their dad, and his wife her husband.

“My children are always asking how my cancer is, and how my treatment is going. They give me extra cuddles to make sure I feel good every time I go for treatment.”

Right now, there isn’t a single matching donor worldwide for Jake, so he’s encouraging people aged 16-30 to join the stem cell register today – in the hope that you could be a match for someone like him.

✅ Aged 16-30? Please sign up today: https://bit.ly/4b3MoyS
🔁 Over 30 or unable to sign up? Please share Jake’s story far and wide.

24/12/2025

All we want for Christmas is.... to say a huge thank you to every single one of you!

Our lifesaving work simply wouldn’t be possible without our incredible supporters every step of the way.

P.S. We know that Christmas isn't easy for everyone - and we're here for you. Whether you need some medical information, advice or just a chat, our helpline is open from 9am-5pm, every weekday except bank holidays.

So if you need us, just give us a call on 0303 303 0303 💚

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