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Saving lives through stem cells. Welcome to our page. We have created this page for you to share comments, feedback, questions, photos and videos.

We want you to feel safe and comfortable using this page so please have a look at our House Rules: https://www.anthonynolan.org/anthony-nolans-social-media-platforms

Privacy

People who use this page often want to post messages of support for loved ones who have been diagnosed with a blood cancer. This is a really great thing to do, but we need to make sure you are aware of data protection requirements concerning privacy. If you want to name individuals who have been diagnosed with a medical condition, you must get their explicit consent before doing so. To protect privacy, we may remove posts which reveal confidential information about patients, transplants, any of our donors (including donors of blood stem cells , bone marrow or umbilical cord blood ), or anything relating to collections from our donors. You can find out more about data protection and privacy on the Information Commissioner’s website: http://www.ico.gov.uk/for_the_public.aspx or our website: http://www.anthonynolan.org/

Medical Concerns

People may post medical tips and ideas in the page. Please remember that any content posted here should not be considered medical advice. You should discuss any questions or concerns about your health with your healthcare professional(s). Respect

Please keep all posts relevant and respectful of others. This is a safe space for people to communicate safely and comfortably. Anthony Nolan may, at our sole discretion, remove any posts which we consider inappropriate or offensive, including posts which are harassing, abusive, obscene, hateful, racist, sexist or homophobic, as well as posts which promote commercial products or illegal activities, or which violate Facebook’s terms of service. If you continue to post inappropriate or offensive messages we may remove you from the page. Our page is normally only monitored by us Monday-Friday 9am - 5pm excluding bank holidays in England and Wales. If you think someone is misusing the page or breaking the House Rules, or if you have any feedback on how to make this group a better space, please contact: social@anthonynolan.org.

17/02/2026

This Random Acts of Kindness Day we're encouraging as many 16 to 30 year olds to join the stem cell register as possible.

It takes 2 minutes to join the stem cell register - and you could potentially save someone's life: anthonynolan.org/join

Over 30 or not eligible? You can still make a difference by helping us to continue spreading awareness of the stem cell register.

Kindness comes in many forms, and even the smallest acts can have the biggest impact - just like giving someone another chance at life 💚

14/02/2026

This Valentine’s Day, we’re thinking about love in all its forms 💚

Beth’s husband Matt was given another chance at life - all because a stranger joined the stem cell register and came up as a match.

By signing up, you could be saving someone else’s love - giving families more time, more memories and more moments together.

If you’re aged 16–30, joining the stem cell register is easy:
• Fill in a short form online
• Receive a swab kit in the post
• Swab your cheeks and send it back

You might never get the call to donate - but if you do, you could save someone’s life. Just like Matt’s 💚

13/02/2026

We're hugely proud to see Alyssa Tapley and Professor Waseem Qasim named Pioneers in the Time 100 Health List for 2026! The list identifies influential leaders who are advancing care, pushing boundaries and changing lives.

You'll recognise Alyssa, who was the first person in the world to receive base-edited cells after previous treatments for her leukaemia had failed. Waseem Qasim led the clinical trial that saved her life - and thanks to this groundbreaking work, Alyssa is now thriving and wants to become a scientist herself.

This award recognises how scientific breakthroughs can welcome in new generations of cell therapies that could become available to tomorrow's patients.

Read more: https://time.com/collections/time100-health-2026/7362531/alyssa-tapley-and-waseem-qasim/

11/02/2026

"In hospital you don't really think of the people in the labs doing research - but without them, none of this would be happening in the first place." 💚

To mark Women and Girls in Science Day, Alyssa headed to the Anthony Nolan Research Institute to chat to Dr Diana Hernandez, who heads up our team of researchers looking into immune and advanced therapies.

Alyssa’s life was saved by a ground-breaking clinical trial, and now she dreams of becoming a scientist herself, inspired by researchers like Diana, who are dedicated to making sure more patients like Alyssa don’t just survive, but thrive. 🧬

10/02/2026

“Let’s remember Shirley, the mother who inspired us to think differently to try and save her son. Inspired to be there for the patients of tomorrow – as we are.” - Henny Braund MBE, chief executive

Today we’re remembering Shirley Nolan on what would have been her 84th birthday.

Shirley Nolan was a determined campaigner, an innovative thinker and was relentless in her search for a donor for her son Anthony.

She dedicated her life to creating the world’s first stem cell register – even when Anthony heartbreakingly passed away – and as a result, she has given hope to so many families across the world.

Thanks to Shirley:

💚 We now give four people another chance of life every single day

💚 We have over 930,000 people on the Anthony Nolan stem cell register

💚 We are about to mark 30 years of the Anthony Nolan Research Institute

💚 And are determined to continue Anthony’s legacy, as we keep pushing boundaries and giving patients hope.

If you could say one thing to Shirley today, what would it be? 💭

If you’d like to read more about Shirley’s inspirational story, you can purchase a commemorative edition of her autobiography, A Kiss Through Glass, here: https://www.waterstones.com/book/a-kiss-through-glass/shirley-nolan/henny-braund-mbe/9781839528088

09/02/2026

“It's hard to understate the potential impact you can have on someone's life for what is realistically a very small sacrifice, that is made easy by the amazing Anthony Nolan support team as well as the nurses and doctors at the centre.”

Gareth joined the stem cell register after seeing firsthand how vital donations can be, when a close friend was diagnosed with leukaemia. Then one day, he got the call he was a match for a stranger in need and went on to donate his stem cells.

If you’re aged 16–30, you can help a stranger just like Gareth did by joining the stem cell register:

• Fill in a short form online
• Receive a swab kit in the post
• Swab your cheeks and send it back

You might never get the call to donate but if you do, you could help save someone’s life. 💚

05/02/2026

“I had been on the stem cell register for many years, but finally it was my turn to help somebody. It proves that as long as you’re signed up to the register, you can still give someone hope.”

May joined the stem cell register hoping she might one day help a stranger in need. Years later, she received the call she had been waiting for- she was a match for someone requiring a stem cell transplant and was asked to donate.

“I was so honoured to be able to help somebody, especially after losing my dad four years ago to leukaemia. I feel like it’s my calling to be able to help other families and give people hope.

The first day of donating was slightly daunting but once hooked up to the machine I was happy sat talking to other donors and got chance to catch up on some tv series!

It gave me chance to pause and to do something positive. I would do it again in a heartbeat.”

A huge thank you to May for choosing to join the stem cell register and donate her stem cells to help a total stranger.

Aged 16–30? You could help save a life by joining the stem cell register: https://bit.ly/3OCYYs8

Over 30 or unable to sign up? Support our lifesaving work through fundraising, volunteering, or spreading the word.

04/02/2026

“I wanted to share my story to give hope to people like me. I would have really liked that at the time.”

Today is World Cancer Day, and Erin shares her experience of being diagnosed with Hodgkins Lymphoma whilst at university, needing a stem cell transplant to survive.

Thankfully, a 12/12 donor was found on the stem cell register, and now, 7 years later, she’s making up for lost time, and doing as much as she can to live life to the full.

“I missed out on a lot – including university, and those years in my early twenties when I should have had the best social life. Now, I’m taking the non-traditional route to qualify as a lawyer, and making up for lost time!”

“I’ve always been adventurous and active, but I think I’m even more of a ‘yes person’ now – any kind of opportunity I just think, why not? And I’m enjoying being active again. If I can do something, I’m going to because I can, and for such a long time I couldn’t.”

“A year after my transplant, my mum, dad, best friend and I did a road trip around California which was a trip of a lifetime. We received the positive results from my 1st year post transplant scan while we were out there which felt like such a fitting moment.”

“I bought my dream horse Dillon the year after my transplant and have had the most fun competing him in eventing and showjumping – I feel so lucky to have found him.”

“I did two triathalons two years after my stem cell transplant and also took up CrossFit and have been taking part in team competitions ever since! I haven’t looked back, it’s tough but I absolutely love it and I am the fittest and happiest I have ever been.”

“I’ve also been able to meet my donor Frederic – which was incredible. We chatted for a while after exchanging emails, and then he and his mum flew over to visit, from Germany – she calls me her ‘blood daughter’. It was so lovely to be able to thank him in person, and I learnt that he is a lawyer – I’m soon to be a qualified lawyer too, so that was a funny turn of fate and connection.”

This World Cancer Day, we’re encouraging you to talk to friends and family about the stem cell register. Someone you know could hold the key to giving someone like Erin the chance to get back to doing the things they love.

03/02/2026

“To talk with my wife about my wishes was a relief, because it is a hard conversation to start when we both wanted to focus on optimism.”

“The Anthony Nolan resources not only encouraged me to update my advanced care plan, but also helped me with practical details such as passwords and information about things that are in my name.” – Richard, who received a stem cell transplant and is now on a clinical trial

Lots of us worry about the ‘what ifs’, even in our normal day-to-day lives. When going through treatment, it can be helpful to create an advance care plan. This lets the people around you know exactly what’s important to you, and how you’d like to be cared for in the future – particularly towards the end of your life.

Advance care planning is about sharing hope that your treatment will work, but also allowing time and space to talk about the ‘what ifs’. Talking about them early on can hopefully make them feel less daunting.

Our new resources are here to support you and your loved ones through advance care planning – giving you tips, advice and things to consider when creating your plan. Take a look here: https://bit.ly/4qp5oga

If you need any help, advice, or just someone to talk to we’re here on 0303 303 0303 or at patientinfo@anthonynolan.org.

02/02/2026

“This treatment is helping to prolong the lives of people like me – without it goodness knows where I would be. I find it truly unbelievable that NICE have decided to remove this treatment. I have a whole host of different emotions on their decision – sadness, incredible disappointment and anger to name but a few..”

Paul was diagnosed with Mantle Cell Lymphoma in 2021, and after multiple rounds of chemotherapy and a stem cell transplant, was put forward for CAR T-cell therapy in 2024. Now, he leads a full and active lifestyle, has returned to work and remains in remission.

Frustratingly, NICE have made a decision to remove brexu-cel, the CAR T-cell therapy that Paul received, as a treatment for mantle cell lymphoma, after five years of it being available on the NHS in England and Wales.

The removal of brexu-cel, also known as Tecartus, leaves patients with relapsed or refractory MCL that hasn’t responded to other treatments with very few other possible treatments – most of whom will only have the option of receiving palliative care.

Anthony Nolan together with Blood Cancer UK and Lymphoma Action are calling on NICE to reconsider its decision and have jointly submitted an appeal against NICE’s final draft guidance to ensure that this potentially lifesaving treatment remains available to patients on the NHS.

If you’re currently going through treatment for mantle cell lymphoma, do chat to your medical team if you have any concerns – and remember our team are here for you on 0303 303 0303

30/01/2026

“The first 100 days post-stem cell transplant are the most critical in terms of infection and rejection, and it’s not been plain sailing - physically, mentally or emotionally. There’s still a long, long, long way to go (and I’m under no illusion it’s going to be all plain sailing!), but we’ve got this far so let’s bring on the cake and balloons!”

We’re so happy to see Dan celebrating his 100 days post stem cell transplant! You might remember we ran an appeal to help find Dan his donor last year, and he received his transplant in October.

Now, Dan is determined to do all he can to raise awareness of the lifechanging impact you could have by joining the stem cell register. He’s become a regular on BBC Lincolnshire, Good Morning Britain and ITV News, even on the day of his transplant!

“Since the transplant, I’ve become even more determined to share my story, to raise awareness of the stem cell register and the desperate need for more donors, and ensure that one day a stem cell match is no longer news worthy.”

“Every day I give thanks for my donor’s selfless act of donating his stem cells. I’m a lucky one - not everyone finds a donor. This transplant hasn’t just given me a future but a determination to do all I can to change that.”

A huge thank you to Dan for being so open and driven to encourage more people to sign up to the stem cell register – we’re sure you’ll join us in wishing him all the best for a happy and healthy future! 💚

29/01/2026

“Why wouldn’t you want to possibly give somebody another chance at life? It was an honour.”

Rikki-Lee joined the stem cell register after seeing how powerful donations can be, when her stepdad was diagnosed with a rare condition called amyloidosis and was given just a year to live. Thanks to chemotherapy and the generosity of people who donated blood, he was able to spend an extra eight years with his friends and family.

“I signed up to most donation registers that I was able to! I have seen the life changes it can offer and feel very strongly about it, because of people like me I was able to get so much extra time with my dad.”

Years after joining the stem cell register, Rikki-Lee was finally contacted that she was a match for someone in need and went on to donate stem cells to help them.

“At first, I thought it was a scam! It had been years since I’d signed up and I had mostly forgotten about it. Once I realised it was real, I was in shock. I was nervous but honestly couldn’t wait to get started.

I did have a few small side effects during the donation, but the team was already treating them before I’d even realised they were a problem! It was a crazy experience, but it was so worth it.

I would encourage anybody to do it. It was super straight forward - I was home the next day with my two small children and you’d have never known!”

A huge thank you to Rikki-Lee for choosing to join the stem cell register and donate her stem cells to help a total stranger.

Aged 16–30? You could help save a life by joining the stem cell register: https://bit.ly/3OCYYs8

Over 30 or unable to sign up? Support our lifesaving work through fundraising, volunteering, or spreading the word.

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2 Heathgate Place, 75-87 Agincourt Road
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NW32NU

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Tuesday	9am - 5pm
Wednesday	9am - 5pm
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Friday	9am - 5pm

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