Epilepsy Sparks

Epilepsy Sparks Educating the 🧠⚡🔬🧬! Check out our podcast, YouTube, & website. We bridge the comms gaps between clinicians, academics, & people with an epilepsy!

19/02/2026

🧬 An inconclusive or negative testing result isn't the end! Hear more from our guest who specialises in genetic epilepsies, Dr. Christian Bosselmann, MD! 👇

https://youtu.be/MhP_iuKB0gQ

This episode is presented in partnership with EASEE®Epilepsie, by PRECISIS GmbH.

🤔 Can we trust genetic 🧬 test results in epilepsy? Well, yes... but it's all about interpretations and the information w...
19/02/2026

🤔 Can we trust genetic 🧬 test results in epilepsy? Well, yes... but it's all about interpretations and the information we base them on!

Facts
〰️ Genetic testing in epilepsy is rarely black and white
〰️ Variants of uncertain significance shouldn't automatically drive treatment
〰️ Re-analysis of genetic testingcan change everything!

Dr. Christian Bosselmann 🤩 tells us all about how powerful and life changing genetic test results can be for those with an epilepsy - as they can significantly alter clinician's advice/decisions.
We also hear how frustrating results can be when they don't provide a clear answer, how parents can be involved (trio-testing), how those from disadvantaged groups may not have the same access (but should), and how tho work is not just amazing for patients and families, but incredibly satisfying and motivating for researchers and clinicians!

Learn all about genetic testing in the epilepsies from Christian, here 👇!
https://youtu.be/MhP_iuKB0gQ

This episode is presented in partnership with EASEE®, by Precisis GmbH.

🧠🧬 Epilepsy genetics is complex - and what can be an answer one year - may be contradicted the next! Dr. Christian Bosse...
19/02/2026

🧠🧬 Epilepsy genetics is complex - and what can be an answer one year - may be contradicted the next!

Dr. Christian Bosselmann 🤩 shares with us which patients benefit from genetic testing (hint: way more than most neurologists realise), how epilepsy genetic testing results should be interpreted, and how a single genetic variant may not always be the only or even the primary explanation for a child or an adults' well-being!

Christian shares what motivates neurologists and scientists in his work, and the cool, international research community (with those mentioned being Dennis Lal, Sumaiya Iqba, and Tobias Brünger) who cross borders to share knowledge and bring answers and more appropriate care to people, faster.

Check out the chat here 👇!
https://youtu.be/MhP_iuKB0gQ

This episode is presented in partnership with EASEE®, by Precisis GmbH.

It's out tomorrow - episode #249 - all about genetic epilepsies and how no answer today doesn't mean there won't be an ...
18/02/2026

It's out tomorrow - episode #249 - all about genetic epilepsies and how no answer today doesn't mean there won't be an answer tomorrow!

Epileptologist & scientist Dr. Christian Bosselmann, MD will share some of his insights and work regarding how valuable genetic testing is for WAY more people than we think - and that includes parents! There's also a special story about SCN8A. Not to be missed.

Get ready and subscribe here:
https://www.youtube.com/

13/02/2026

🎬 Trailer! How many Neurologists and Epilepsy Nurses are trained in using AI as part of their work? Well, let this sink in: 95% of General Practicioners say that they aren't - despite over 50% of them using it as part of their job! 🫢

It's not all bad though. AI is doing some amazing, empowering things for both clinicians and patients. We just need to be careful though... Learn more from star guest Charlotte Blease, PhD 🤩 who shares her research and our(!) project all about it.

Watch right here 👇!

https://youtu.be/nvVAQaPP1vc

This episode is presented in partnership with EASEE®Epilepsie by PRECISIS GmbH.

What's a Health Informaticist? Why are they crucial when it comes to * care? Find out in today's Epilepsy Sparks Insigh...
12/02/2026

What's a Health Informaticist? Why are they crucial when it comes to * care? Find out in today's Epilepsy Sparks Insights podcast, with Charlotte Blease, PhD, who explains:

〰️ Why AI is crucial in medical care
〰️ Why AI isn't going anywhere
〰️ How AI is used by patients AND clinicians
〰️ The positive impacts of AI in healthcare so far
〰️ The scary points re AI in healthcare so far
〰️ What we need to do re safety and regulation in health AI

Charlotte gives great insight into how you and I are using AI and how to manage things, safely, going forward.
You'll also hear about the Health Chatbot User's Guide study, with Joseph Alderman, et al - paper out later this year!

If you're interested in how AI can help or hinder health - including epilepsies, mental health, and rare diseases, tune in here 👇!
https://youtu.be/nvVAQaPP1vc

This episode is presented in partnership with EASEE®Epilepsie by PRECISIS GmbH.

*and every other disease out there

12/02/2026

208 likes, 2 comments. “"That's scary to me" 20 year old Zian has been having seizures since he was 5 years old, but his epilepsy does not respond to medication. The team, led by Consultant Neurologist Daniel Costello, hope that he will have a seizure in the safety of the unit, giving them vital i...

Today it's !* Learn facts:〰️ No matter the country you're in, epilepsy affects people around you〰️ No matter the govern...
09/02/2026

Today it's !* Learn facts:

〰️ No matter the country you're in, epilepsy affects people around you

〰️ No matter the government, epilepsy affects your population

〰️ No matter your clinicial specialism, some of your patients will have an epilepsy

〰️ If you think epilepsy doesn't affect you, you're wrong.

Learn more on our podcast Epilepsy Sparks Insights, or check out our website to learn more! www.epilepsysparks.com

*Every day is an epilepsy day.

05/02/2026

What a quote! "Epilepsy is like a storm 🌪️ in the brain, which is happening in the dark. You don't see anything really, unless there's lightening." ⚡ Hear of a great explanation about what the seizure-side of epilepsy is - by our star podcast 🎙️ guest Marian Galovic from Universitätsspital Zürich 🇨🇭! 👇
🎬 https://youtu.be/_GAayQVGuD4

🧠 Scary for some - but must be addressed: epilepsy is a disease of progressive brain change and neurodegeneration - not ...
05/02/2026

🧠 Scary for some - but must be addressed: epilepsy is a disease of progressive brain change and neurodegeneration - not just seizures. 👉 https://youtu.be/_GAayQVGuD4

In this week’s podcast 🎬🎙️, Dr. Marian Galovic 🇨🇭, unpacks what longitudinal brain imaging is revealing about brain ageing and neurodegeneration in epilepsy - and why seizure control alone may miss the bigger picture.

Our chat explores:

〰️ why structural brain change can continue even when seizures are controlled; 🫢
〰️ when seizures do pose serious risk, particularly in status epilepticus, 😧 and;
〰️ how early, disease-modifying treatment may help protect long-term brain health 🥳

This is an important reframing for how epilepsy is understood, monitored, and discussed in clinical practice.

For tips on how to communicate all with patients and families, watch here! 👇

🎬 https://youtu.be/_GAayQVGuD4

This episode is presented in partnership with EASEE®Epilepsie by PRECISIS GmbH.

🧠 Epilepsy causes accelerated brain aging*. In this week's podcast 🎬, Dr. Marian Galovic (adult neurologist & epileptolo...
05/02/2026

🧠 Epilepsy causes accelerated brain aging*.

In this week's podcast 🎬, Dr. Marian Galovic (adult neurologist & epileptologist) 🇨🇭 explains why epilepsy should be understood as a disease of progressive brain change, not just intermittent seizures - and why seizures may not be the main driver of neurodegeneration!

Drawing on longitudinal brain imaging, Marian shares how:

〰️ epilepsy causes accelerated brain ageing
〰️ neurodegeneration can occur even without frequent or ongoing seizures
〰️ status epilepticus causes rapid and severe brain injury and is a true emergency
〰️ early, disease-modifying treatment may help protect long-term brain health

❗️ Watch here! 👇
https://youtu.be/_GAayQVGuD4

This episode is presented in partnership with EASEE®Epilepsie by PRECISIS GmbH.

*With huge variations - explained in the episode.

Should neurologists look beyond seizures? Erm, yes! This week hear from the brilliant epileptologist/epilepsy specialist...
29/01/2026

Should neurologists look beyond seizures? Erm, yes! This week hear from the brilliant epileptologist/epilepsy specialist neurologist Prof. 🇧🇷 who talks about how symptoms other than seizures need to be recognised and addressed early - if we want to improve people's quality of life!

Watch here https://youtu.be/g-ZLnzsu3sw

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Category

Empowering those affected by epilepsy

Learn

To learn about epilepsy is a wondrous, ongoing process. The brain is so complex - the best doctors, scientists and researchers in the world will never know it all - but there is a lot we can learn and the information available is increasing rapidly.

Be Empowered

The more we understand our epilepsy (and the common mental illnesses that often accompany it) or the epilepsy of a loved one, colleague, or friend, the more confident we feel talking about it, and the more effectively we can provide support.