Epilepsy Sparks

Epilepsy Sparks Educating the 🧠⚡🔬🧬! Check out our podcast, YouTube, & website. We bridge the comms gaps between clinicians, academics, & people with an epilepsy!

Our free webinar on Neuromodulation for Epilepsy 📅 Tuesday 31st March 09:00 (UK time). With Prof John Duncan from UCLH. ...
28/03/2026

Our free webinar on Neuromodulation for Epilepsy
📅 Tuesday 31st March 09:00 (UK time). With Prof John Duncan from UCLH. Who'd like to come? Register here! 👇
https://us06web.zoom.us/.../register/5-s5u8cAS8SidrMDqrk2tA

This'll be presented in partnership with EASEE®, by Precisis GmbH.

26/03/2026

🎬 Podcast clip! There's a lot of doom and gloom associated with epilepsy - understandably - but let's change that to make it cool to talk about, understand, and obtain research funding for!

In our latest episode, Intellectual Disability nurse Jay Price 🤩🇬🇧 shares her learnings from her latest qualitative study and paper "Epilepsy, it's just not sexy, is it?"! 💋

Let's all (patients, families, and clinicians) truly learn about the epilepsies and learn how to talk about them openly.

Let's have the lives of people with an valued as much as those with dementia or Parkinson's - let's see that through research funding.

Check out the whole episode now ! 👇

🎬 https://youtu.be/-pMjMXnYKKM

This episode is presented in partnership with EASEE®Epilepsie, by PRECISIS GmbH.

26/03/2026

☺️ People with epilepsy can live meaningful lives! Let's spread understanding! Watch full episode on our Epilepsy Sparks Insights podcast. 👊

‼️ No, really! We need to improve the marketing for epilepsy and make it "sexier"! 👉 https://youtu.be/-pMjMXnYKKM (there...
26/03/2026

‼️ No, really! We need to improve the marketing for epilepsy and make it "sexier"! 👉 https://youtu.be/-pMjMXnYKKM (there's a paper on this by out guest Jay Price!) if we are to get more research and care funding!

Epilepsy isn't as "sexy" as Parkinson's, dementia, stroke, ALS, or Huntington's (even though epilepsy affects 630,000 in the UK and 65,000,000 worldwide and is linked closely to dementia)! It's not marketed in the same way. Patients and carers aren't as educated and open. Clinicians aren't as educated and open. 📘🗣️

Let's start with learning, spreading the knowledge, and working together!

Hear more from our fun, star guest Jay Price!! 👇

🎬 https://youtu.be/-pMjMXnYKKM

This episode is presented in partnership with EASEE®Epilepsie, by PRECISIS GmbH.

🎙️ New episode for Purple Day! Epilepsy has an image problem! Why does epilepsy still receive so little funding, attenti...
26/03/2026

🎙️ New episode for Purple Day! Epilepsy has an image problem! Why does epilepsy still receive so little funding, attention and public understanding?!

In this week's Epilepsy Sparks Insights 🎬podcast, intellectual disability nurse Jay Price 🤩🇬🇧 challenges something uncomfortable:

👉 Most people – including many patients, families and clinicians – don’t understand epilepsy beyond tonic-clonic seizures!

Covered:
• Why epilepsy receives just 0.3% of UK heath research funding 😱
• How misdiagnosis and misunderstanding persist across care 🙄
• Why co-produced training could improve real-world support 🥳

This is not just a funding problem. It’s an understanding problem.

For Purple Day 2026, join us on the podcast, out now! 👇
🎬 https://youtu.be/-pMjMXnYKKM

This episode is presented in partnership with EASEE®Epilepsie, by PRECISIS GmbH.

🎬 It's out tomorrow! Quote: "Epilepsy, it's just not sexy, is it?"! That's with Intellecutal Disabilities Nurse Jay Pric...
25/03/2026

🎬 It's out tomorrow! Quote: "Epilepsy, it's just not sexy, is it?"! That's with Intellecutal Disabilities Nurse Jay Price 🤩🇬🇧 who shares her research into why epilepsy receives so little resources and funding from government - and what to do to change things!

Out tomorrow! Subscribe for notifications here: https://www.youtube.com/

24/03/2026

🥳 This week we are featuring nurse Jay Price to hear about how "Epilepsy, it's just not sexy, is it?"! Considering how other diseases just aren't looked at in the same negative way - what can we learn from them?!
Out on Thursday!

19/03/2026

🤩🤩🤩 Amazing AI tool identifying brain lesions that MRIs missed! This is huge for many people: to find the cause of their epilepsy - which then leads them to seek the most effective treatment! Types of epilepsy? Think hippocampal sclerosis and focal cortical dysplasia!
Watch the full episode with Dr. Konrad Wagstyl on Epilepsy Sparks Insights! 👇

🎬 https://youtu.be/3qj5If0RdqM

This episode is presented in partnership with EASEE®, by Precisis GmbH.



😟 Unfortunately, MRIs are still missing clinically meaningful lesions in people with epilepsy... and that matters - beca...
19/03/2026

😟 Unfortunately, MRIs are still missing clinically meaningful lesions in people with epilepsy... and that matters - because if you don’t see it, you can’t act on it.

In this episode with Dr. Konrad Wagstyl, we get into a very practical gap in current care:
〰️ Subtle lesions like hippocampal sclerosis and focal cortical dysplasia are often missed on standard MRI 😮
〰️AI is now detecting ~70% of FCD lesions and up to ~95% of hippocampal sclerosis 🥳
〰️Earlier detection → faster surgical pathways → better outcomes 👊

This isn’t theoretical. It’s a direct lever on time-to-treatment and surgical decision-making! If we can systematically reduce “MRI-negative” cases that are actually lesion-positive, we change trajectories for a significant group of people with an epilepsy.

Definitely worth a watch if you’re working anywhere across/interested in imaging, epilepsy surgery, or clinical pathways and need to hear something positive! 👇

🎬 https://youtu.be/3qj5If0RdqM

This episode is presented in partnership with EASEE®Epilepsie, by PRECISIS GmbH.

MRIs miss brain lesions - scarily often. 😑 Imagine if AI and datasets were used to overcome this! 😮In this week's episod...
19/03/2026

MRIs miss brain lesions - scarily often. 😑 Imagine if AI and datasets were used to overcome this! 😮

In this week's episode, Dr. Konrad Wagstyl 🤩🇬🇧 from King's College London explains to us how subtle brain lesions causing epilepsy are often missed on MRI - particularly focal cortical dysplasia and hippocampal sclerosis.

Using large, global datasets, the AI tools of Konrad and his team are now detecting many of these previously unseen abnormalities - including in patients labelled “MRI-negative”.

This has cruicial, exciting implications: earlier identification of these lesions could support faster surgical pathways, reduce unnecessary delays, and improve outcomes - including seizure control, cognition, and quality of life.

Watch/listen/read here! 👇

🎬https://youtu.be/3qj5If0RdqM

This episode is presented in partnership with EASEE®Epilepsie, by PRECISIS GmbH.

12/03/2026

😱 What if generalised seizures aren't what we thought? What if they don't happen all at once?! Dr. Frederic Schaper from Harvard explains his recent study using on our latest Epilepsy Sparks Insights podcast!

Sponsored by EASEE by Precisis GmbH.

😱 Generalised seizures don’t necessarily start the way we once thought…! 🎬🎙️For years, generalised epilepsy has been des...
12/03/2026

😱 Generalised seizures don’t necessarily start the way we once thought…! 🎬🎙️

For years, generalised epilepsy has been described as involving the whole brain at once. But brain activity has to begin somewhere...

On this week's podcast, Dr. Frederic Schaper 🤩 🇺🇸 from Harvard Medical School shares with us his research mapping subtle brain abnormalities to shared brain networks!

These findings align with regions targeted by deep brain stimulation (DBS) and so seem to offer new insights into how seizures arise!

Hear more from Frederic about the crossover of symptoms and how clinicians can truly help people with an epilepsy affected by multiple symptoms, right here! 👇

🎬 https://youtu.be/pHZXFs6r4as

This episode is presented in partnership with EASEE®, by Precisis GmbH.

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Empowering those affected by epilepsy

Learn

To learn about epilepsy is a wondrous, ongoing process. The brain is so complex - the best doctors, scientists and researchers in the world will never know it all - but there is a lot we can learn and the information available is increasing rapidly.

Be Empowered

The more we understand our epilepsy (and the common mental illnesses that often accompany it) or the epilepsy of a loved one, colleague, or friend, the more confident we feel talking about it, and the more effectively we can provide support.