Person-Centred Neurosciences Society

Person-Centred Neurosciences Society Likeminded HCPs, organisations & charities who all share a desire for more person-centred neurocare

To join the P-CNS and help grow a Society that is growing and learning through lived experiences go to our website at www.p-cns.org.uk

  is not separate from the body.It is part of the same self-regulation system that supports recovery, balance, and adapt...
06/11/2025

is not separate from the body.

It is part of the same self-regulation system that supports recovery, balance, and adaptation.

This becomes especially clear in the lived experience of .

We often talk about Parkinson’s in terms of dopamine and movement.

But the body is always regulating itself — responding to stress, to support, and to relationship.

The systems involved in Parkinson’s — movement, energy metabolism, inflammation, sleep, and emotional expression — are not separate.

They are linked through the body’s self-regulation and recovery network.

This means that lifestyle-based approaches — movement, nourishment, emotional expression, breath, rest, meaningful connection — are biologically active.

They act on the same underlying physiology that emerging medications in the EJS ACT-PD platform trial are designed to support.

So this is not about willpower.
And it is not about “staying positive.”

It is about supporting the conditions through which the nervous system restores itself.

Medication and lifestyle are not competing models.
They are two ways of accessing the same recovery mechanisms.

In the article linked, this shift is explored in more depth — alongside parallels with the reframing that occurred in Type 2 diabetes when lived experience and research began to align.

If the way we understand Parkinson’s is changing…
then the way we support people living with it needs to change too.

And if both medication and lifestyle influence the same recovery pathways, should future drug trials also compare their effects with lifestyle-based approaches, not only placebo?

https://www.linkedin.com/pulse/lifestyle-parkinsons-neurophysiological-regulation-model-bindemann-wuw4e/

Parkinson's UK Parkinson's Centre For Integrated Therapy Parkinson's Foundation Best Practice Kent Community Health NHS Foundation Trust Best Practice Matthew's Friends Ketogenic Therapies charity Tonbridge and Malling Borough Council Neuro Convention Avicenna Pharmacy Tonbridge Cottage Hospital League of Friends Medway Neurological Network KetoCollege - Medical Ketogenic Dietary Therapies training Community Catalysts Kent BBC Kent Young onset Parkinsons Medscape Neurology

A growing body of research points to neurophysiological regulation and recovery as key influences in Parkinson’s progression — linking emotional expression, movement, inflammation, and cellular energy systems through shared brain–body pathways. (Hornykiewicz, 2017; Evans et al.

And just following on from the previous post about As Prescribed, is this one.
29/10/2025

And just following on from the previous post about As Prescribed, is this one.

Why we support services to rebalance a person's     Both these images, posted on an   Facebook support group, relate to ...
17/10/2025

Why we support services to rebalance a person's

Both these images, posted on an Facebook support group, relate to the most remarkable living experience of a man who attends our in Tonbridge and Malling Borough Council supported by the likes of Community Catalysts Kent Kent Community Health NHS Foundation Trust Tonbridge Cottage Hospital League of Friends

It all began 3 years ago, when Hugh and I (Neil Bindemann) sat down in a local coffee shop, after I'd met Hugh at our first Neurocafetonbridge.org.uk.

There, he shared he had been living with a diagnosis of for 51 years. He experienced a first seizure only a few days old following a .

I was curious to better understand his significant anger and what seem to be, considerable fear.

It was during that first, more in-depth conversation that learn more about his current stresses and worries along with his prescribed medications.

Next stop, the local neurologist to request a change in medication.

And that was the start of a very gradual transformation into a man who no one, including me, new was 'in there'.

That transformation coincided with a very, very gradual reduction in the dose of epilepsy medication, along with non-epilepsy medications, he had been prescribed.

To keep a long story short - 3 years to be exact; I took Hugh up the largest and conference held at the NEC Birmingham, Best Practice to be contribute to a panel with 3 Lifestyle Medicine Practitioners

And who the audience got to meet is a dramatically different man to who I first met, with very different emotions.

Not only has this experience with Hugh been an absolute joy, it has highlighted other vitally important points, including:

That a diagnosis of epilepsy can be temporary and is reversible, through great care, which includes reducing the dosage extremely slowly and over an agreed time frame.

That introducing any chemical (including medications, as prescribed) into the body impacts a person's emotions, with the level of impact likely dependant on a person's state of emotional health - as clearly shown through the work of Hardman with her power film As Prescribed

The need for more people to learn of alternative, more lifestyle orientated approaches including how foods we eat, and relaxation therapy, deliver great measurable outcomes.

For instance - we have known, ever since the time of Sir Ernest H. Shackleton Appreciation Society that a low carb diet can control seizures.

Tonbridge Old Fire Station The Pup Cup British Neuroscience Association Basil Wholefoods Martin Gillespie Tonbridge Old Fire Station Finch House Yummzy - Sinfully Guiltless Desserts Matthew's Friends Ketogenic Therapies charity Tonbridge Daily Avicenna Pharmacy brainstrust Medway Neurological NetworkNeuro Convention Neuroscience News and Research Barrow Neurological Institute Epilepsy Research Institute Epilepsy Ireland Epilepsy Action KetoCollege - Medical Ketogenic Dietary Therapies training Keto Food Therapy Ketobakery.co.uk

This post may not be about what you were or are thinking.
26/07/2025

This post may not be about what you were or are thinking.

There is something striking about this (& the science in this) very well respected, and rightly so, book.  And that “som...
26/07/2025

There is something striking about this (& the science in this) very well respected, and rightly so, book.

And that “something” may well be a reflection of a shift to being :

How does the body manage to “keep the score”, when , despite the millions of £$ spent on research, still cannot “find” where in the brain our memories are “kept”?

Perhaps this is why memory should not be regarded as simply a function of the brain; And that there is so much more to the than "meets the eye" or should that by "I"?

What if memory is simply a concept created by “pattern” activity in the brain, stimulated via the likes of sensory information.

Then of course, when a memory is experienced, is it not always in that “moment” the memory “appears” ie “always now”?

To give you a sense of how this can translate to a common experience:

Let’s take the high street of a town you first visit, which is one you are planning to move to.

Have you ever noticed how your first ever experience of that high street, never seems to match what you experience the next time)?

Or the first time you meet someone and then meet again?

Your brain has created a pattern of electrical activity through all the senses. Next time you visit, that pattern is repeated - it isn’t “new” anymore. Therefore that “newness” has “gone”.

However, what will be going on, is that more detail gradually gets noticed and added.

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Connecting Primary Care to the Neurology Community

P-CNS has become the leading voice for supporting the connecting up of neurology care between Primary Care and the wider neurology community.

Our vision is for sustainable provision of consistent and high quality neurological care and education services across primary care, connecting primary care to neurology services, based in the community.

The P-CNS’s mission is to:


  • Stimulate and develop connections to strengthen the neurology community