Sickle Cell Society UK

Sickle Cell Society UK The Sickle Cell Society was first set up as a registered charity in 1979. It was formed by a group o

The Sickle Cell Society is a registered charity that supports and represents people affected by sickle cell disease to improve their overall quality of life.

02/01/2026

Happy New Year from the Sickle Cell Society! 🎉🩸
We’re excited to start 2026 with new energy, new introductions and a refreshed direction for the Society.

In our latest video, our CEO John James gives a clear and accessible overview of what sickle cell is, helping us kick off the year with awareness at the heart of everything we do.

We also want to remind everyone why blood donation remains so essential for people living with sickle cell — it saves lives, supports treatment, and offers hope to families across the UK.

For more information, updates and ways to get involved, don’t forget to follow our Give Blood, Spread Love (GBSL) page. ❤️

Happy New Year from all of us at the Sickle Cell Society ✨As we step into the year ahead, we remain committed to support...
31/12/2025

Happy New Year from all of us at the Sickle Cell Society ✨

As we step into the year ahead, we remain committed to supporting our community, amplifying lived experience, and continuing the work that matters most to people affected by sickle cell. Thank you to everyone who has walked this journey with us.

We look forward to everything the new year will bring and to continuing this work together.

Our Helpline hours will be limited over the Christmas and New Year period. Please check the image for full details on op...
24/12/2025

Our Helpline hours will be limited over the Christmas and New Year period. Please check the image for full details on opening times.

Thank you for your patience during this time. For urgent support, contact us at info@sicklecellsociety.org

23/12/2025

Our CEO sends warm holiday wishes to our entire sickle cell community! ❤️

A huge thank you to all our dedicated staff, volunteers and supporters for your incredible hard work throughout 2025. We couldn’t do this without you.

We can’t wait to welcome you back in 2026 as we continue building, growing and delivering even more support, advocacy and community-led projects… including something exciting on the way 👀.

Happy Holidays from all of us at the Sickle Cell Society! ✨

Living with sickle cell? We want to hear from you.We’re inviting people living with sickle cell to take part in a short ...
19/12/2025

Living with sickle cell? We want to hear from you.

We’re inviting people living with sickle cell to take part in a short survey exploring how external factors, including social and environmental influences, can affect health and wellbeing.

Your insight will help strengthen understanding, shape advocacy, and improve support for the sickle cell community.

📝 Quick survey
🎁 Chance to win a £50 voucher

Your voice matters — take part and help create change.

❄️ Winter Resource: Day Seven – Helpline SupportThis winter, we’re here to support individuals and families affected by ...
13/12/2025

❄️ Winter Resource: Day Seven – Helpline Support

This winter, we’re here to support individuals and families affected by sickle cell. Whether you need information on vaccine changes, help understanding available support, or guidance on staying safe and warm, our team is here to listen and help.

Please make use of the services available and reach out if you need support.
Find more winter resources here:
https://buff.ly/q5Y0H0m

❄️ Winter Resource: Day Six – COVID-19 Vaccination EligibilityEligibility for the COVID-19 vaccine has changed this year...
12/12/2025

❄️ Winter Resource: Day Six – COVID-19 Vaccination Eligibility

Eligibility for the COVID-19 vaccine has changed this year. Individuals with sickle cell are no longer eligible for the COVID-19 vaccine unless they also have a weakened immune system due to another illness or medication.

People with sickle cell remain eligible for the free flu vaccine.

For more information, visit our Winter Support page:
https://buff.ly/q5Y0H0m

You can also read the full NHS vaccination guidance here:
https://buff.ly/pto8euf

❄️ Winter Resource: Day Five – Priority Services Register (PSR)The Priority Services Register (PSR) is a free UK-wide se...
11/12/2025

❄️ Winter Resource: Day Five – Priority Services Register (PSR)
The Priority Services Register (PSR) is a free UK-wide service that offers extra support if your power, gas, or water supply is disrupted — especially important for individuals or families living with sickle cell.

Being on the PSR means you can access additional help during outages to stay warm, safe, and informed.

Learn more about winter support here:
🔗 https://buff.ly/q5Y0H0m

❄️ Winter Resource: Day Four – Warm Home DiscountToday we’re sharing information about the Warm Home Discount, which pro...
10/12/2025

❄️ Winter Resource: Day Four – Warm Home Discount
Today we’re sharing information about the Warm Home Discount, which provides a £150 reduction on your electricity bill this winter if you receive certain means-tested benefits.

The discount isn’t paid to you directly — it’s applied automatically to your electricity bill as a one-off reduction.

We hope this helps our community stay informed about support available during the colder months. https://buff.ly/q5Y0H0m

Our CEO, John James, is in Virginia this week representing the Sickle Cell Society at the American Society of Haematolog...
09/12/2025

Our CEO, John James, is in Virginia this week representing the Sickle Cell Society at the American Society of Haematology conference. John was honoured to be invited as a guest speaker and to engage with global colleagues dedicated to advancing care for people living with blood disorders.

He also joined the ASH 5K walk/run, connecting with others in the field in a wonderful show of solidarity and shared purpose.

We’re proud to see the UK sickle cell community represented on this international stage.

❄️ Winter Resource: Day Three – Cold Weather PaymentToday we’re sharing information about the Cold Weather Payment, whic...
09/12/2025

❄️ Winter Resource: Day Three – Cold Weather Payment
Today we’re sharing information about the Cold Weather Payment, which provides £25 towards energy bills when temperatures drop to zero degrees or below for seven consecutive days.

This support is only available to people receiving certain benefits, such as income-related JSA or ESA, or Universal Credit.

We hope this helps our community stay informed about the support available during extreme cold periods. https://buff.ly/q5Y0H0m

❄️ Winter Resource: Day Two – Winter Fuel PaymentToday we’re sharing information about the Winter Fuel Payment, a govern...
08/12/2025

❄️ Winter Resource: Day Two – Winter Fuel Payment
Today we’re sharing information about the Winter Fuel Payment, a government payment of £100–£300 to help with heating costs during the colder months.

Please note: this support is only available to people born before 25 September 1959.

We’re signposting this resource to help our community stay informed about what support may be available this winter. https://www.sicklecellsociety.org/keepwarm/

Address

54 Station Road
London
NW104UA

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

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