Hughes APS Trust

23/04/2026

Our lovely trustee, Mags with Katie Martin talking about her life with APS and our charity on BBC Radio Solent

Listen here at 12:10pm 📻 https://www.bbc.co.uk/sounds/play/m002v0qp




Check out our website for more information on APS www.hughesapstrust.org

23/04/2026

Tune in NOW to Radio Solent https://www.bbc.co.uk/sounds/play/live/bbc_radio_solent
Our trustee Mags Thompson-McCormick will be discussing her journey with APS and the work of our charity.

Listen in - she should be live at Midday! 😀

Listen live to Radio Solent on BBC Sounds

14/04/2026

📢 Our Patient Meeting Programme is Now Live!

We’re delighted to share that the full programme for our upcoming APS Patient Meeting is now ready.

Join us for an informative and supportive afternoon featuring:
• Expert talks from leading clinicians and researchers
• Updates from the Hughes APS Trust
• Opportunities to connect with others living with APS
• An open Q&A session to ask your questions

🗓 Thursday 28 May 2026
🕐 1:30 – 4:30 PM
📍 Governor’s Hall, St Thomas’ Hospital, London

Whether you’re newly diagnosed or have been living with APS for years, we would love you to join us.

🎟 Spaces are limited – book your place here: https://www.eventbrite.co.uk/e/patients-meeting-tickets-1986057563636

Have a look at our website - hughesapstrust.org

We hope you find the programme helpful and look forward to welcoming you.
Lupus UK

13/04/2026

✨ New Speaker Announcement! ✨

We’re delighted to announce another fantastic speaker joining us at our upcoming Hughes APS Trust Patients’ Meeting on Thursday 28 May at St Thomas’ Hospital, London.

Please join us in welcoming Dr Oseme Etomi, Consultant Obstetric Physician, who will be sharing their expertise and insights on Antiphospholipid Syndrome (APS) and Pregnancy/Obstetrics.

This is a wonderful opportunity to hear from leading specialists, stay informed, and connect with others in the APS community in a supportive and welcoming environment.

🗓 Thursday 28 May 2026
🕐 1:30 – 4:30 PM
📍 Governor’s Hall, St Thomas’ Hospital, London
🎟 Spaces are limited – book your place here: https://www.eventbrite.co.uk/e/patients-meeting-tickets-1986057563636

Also check out our new website - hughesapstrust.org

We’re really looking forward to bringing our community together for what promises to be an informative and uplifting afternoon.

16/03/2026

UPDATE - Registration is now live - https://www.eventbrite.co.uk/e/patient-meeting-tickets-1986057563636?aff=oddtdtcreator

03/02/2026

Our Q&A Video is Here – Part One

We are pleased to share Part One of our Q&A video, answering some of the many questions raised by our community.
We received so many thoughtful questions that this is the first in a series. Part Two will be recorded with Dr Kaul, and we look forward to answering more of your questions soon.

Thank you, as always, for your continued support.

The video will also be available on our website: hughesapstrust.org

08/01/2026

A milestone for Hughes APS Trust. A new name, a new website, and new ways to support our community.
But the real highlight? Listening to our patients share their experiences and what our work means to them.
Join us in raising awareness and making every voice count.
Watch the video:
https://www.hughesapstrust.org/news-events/

08/01/2026

Happy New Year to our community!

We hope you all had a peaceful Christmas and a positive start to the new year.
We would like to apologise for the delay in sharing our Q&A, which we had originally hoped to post in December. It is now very close to completion and will be shared shortly.
Thank you for your patience and continued support. We look forward to sharing the Q&A with you soon and to working together throughout the year ahead.

With best wishes for a happy and healthy New Year.

26/11/2025

🎉 Happy Birthday to Professor Graham Hughes! 🎉

Today we celebrate Prof. Hughes’ birthday — and also a defining moment in medical history.

42 years ago, in 1983, Prof. Hughes and colleagues published the landmark papers that first described the clinical syndrome now known as Antiphospholipid Syndrome (APS or Hughes Syndrome). These early publications documented the association between lupus anticoagulant and later anticardiolipin antibodies. With blood clots, stroke, and pregnancy loss establishing APS as a distinct autoimmune condition.

This groundbreaking work transformed patient care globally and continues to save lives today.

We are also honoured to share photos of Prof. Hughes receiving his MBE at Windsor Castle, presented by The Prince of Wales, Prince William, in recognition of his outstanding services to Lupus and Hughes Syndrome.

Happy Birthday, Prof. Hughes — and thank you for everything you have given to the APS community.

11/11/2025

We’re putting your questions to Dr Arvind Kaul, Consultant Rheumatologist and Chair of the Hughes APS Trust, for a special APS Q&A video coming this December.

If there’s something you’ve always wanted to ask about APS (Hughes syndrome/Antiphospholipid Syndrome) — now’s your chance!

💬 Send us your question by 25 November via message or comment below.

Please note, we’re unable to give advice on individual treatments — you should always speak to your own doctor for personalised medical guidance.

30/10/2025

We recently shared the launch of our new website — and now we’re delighted to share a short welcome message from Professor Graham Hughes.
Many of you will know Professor Hughes as the doctor who first identified Hughes syndrome. His message perfectly captures the heart and purpose of our charity.
Watch below 👇

20/10/2025

Our New Website is Here! 🌐✨
We’re so excited to share our brand new Hughes APS Trust website with you!
It’s been designed to make finding information and support about Antiphospholipid Syndrome (APS) easier than ever — with clear explanations, helpful resources, and real stories from people living with APS.
We’d love for you to take a look, have a browse, and let us know what you think! 👇
🔗 www.hughesapstrust.org
Thank you to everyone who helped make this possible — we can’t wait for you to see it!