Hughes APS Trust

16/03/2026

03/02/2026

Our Q&A Video is Here – Part One

We are pleased to share Part One of our Q&A video, answering some of the many questions raised by our community.
We received so many thoughtful questions that this is the first in a series. Part Two will be recorded with Dr Kaul, and we look forward to answering more of your questions soon.

Thank you, as always, for your continued support.

The video will also be available on our website: hughesapstrust.org

08/01/2026

A milestone for Hughes APS Trust. A new name, a new website, and new ways to support our community.
But the real highlight? Listening to our patients share their experiences and what our work means to them.
Join us in raising awareness and making every voice count.
Watch the video:
https://www.hughesapstrust.org/news-events/

08/01/2026

Happy New Year to our community!

We hope you all had a peaceful Christmas and a positive start to the new year.
We would like to apologise for the delay in sharing our Q&A, which we had originally hoped to post in December. It is now very close to completion and will be shared shortly.
Thank you for your patience and continued support. We look forward to sharing the Q&A with you soon and to working together throughout the year ahead.

With best wishes for a happy and healthy New Year.

26/11/2025

🎉 Happy Birthday to Professor Graham Hughes! 🎉

Today we celebrate Prof. Hughes’ birthday — and also a defining moment in medical history.

42 years ago, in 1983, Prof. Hughes and colleagues published the landmark papers that first described the clinical syndrome now known as Antiphospholipid Syndrome (APS or Hughes Syndrome). These early publications documented the association between lupus anticoagulant and later anticardiolipin antibodies. With blood clots, stroke, and pregnancy loss establishing APS as a distinct autoimmune condition.

This groundbreaking work transformed patient care globally and continues to save lives today.

We are also honoured to share photos of Prof. Hughes receiving his MBE at Windsor Castle, presented by The Prince of Wales, Prince William, in recognition of his outstanding services to Lupus and Hughes Syndrome.

Happy Birthday, Prof. Hughes — and thank you for everything you have given to the APS community.

11/11/2025

We’re putting your questions to Dr Arvind Kaul, Consultant Rheumatologist and Chair of the Hughes APS Trust, for a special APS Q&A video coming this December.

If there’s something you’ve always wanted to ask about APS (Hughes syndrome/Antiphospholipid Syndrome) — now’s your chance!

💬 Send us your question by 25 November via message or comment below.

Please note, we’re unable to give advice on individual treatments — you should always speak to your own doctor for personalised medical guidance.

30/10/2025

We recently shared the launch of our new website — and now we’re delighted to share a short welcome message from Professor Graham Hughes.
Many of you will know Professor Hughes as the doctor who first identified Hughes syndrome. His message perfectly captures the heart and purpose of our charity.
Watch below 👇

20/10/2025

Our New Website is Here! 🌐✨
We’re so excited to share our brand new Hughes APS Trust website with you!
It’s been designed to make finding information and support about Antiphospholipid Syndrome (APS) easier than ever — with clear explanations, helpful resources, and real stories from people living with APS.
We’d love for you to take a look, have a browse, and let us know what you think! 👇
🔗 www.hughesapstrust.org
Thank you to everyone who helped make this possible — we can’t wait for you to see it!

16/07/2025

👋 Hello everyone — and sorry for the delay in sharing this! We've been busy behind the scenes getting our new website ready, and we can’t wait to show you more very soon.

📢 Unfortunately, there isn’t a recording of the recent Ten Topics event — we know many of you were hoping to catch up afterwards.

However, we’re pleased to share some images from the day 📸, and we hope they offer a glimpse into the fantastic discussions and learning that took place.

📝 Good news — Professor Hughes will be writing a blog post summarising the key points from the event, which we’ll be sharing soon!

Looking ahead, we hope future events like this can be recorded, allowing us to share the insights more widely with our patients and supporters.

Thank you for your understanding 💜

04/07/2025

📣 Today at Ten Topics in Rheumatology 🩺

We’re excited to announce that Professor Graham Hughes will be taking part in a 'Kerbside Consults in APS' session followed by an in-depth discussion, sharing his unmatched expertise on Hughes Syndrome (APS). He will be joined by Prof. Munther Khamashta (pictured below), Prof. Ricard Cervera and Dr Karen Schreiber.

Our Chair, Dr Arvind Kaul, will also be presenting at this important meeting.

Together, they’re helping to raise awareness, promote education, and drive forward understanding of autoimmune conditions like APS and lupus.

These sessions are vital for improving diagnosis, treatment, and patient care across the rheumatology community.

03/07/2025

We are incredibly proud to announce that Professor Graham Hughes has been awarded an MBE for his exceptional services to the fields of Lupus and Hughes syndrome, through his work with Lupus UK and the Hughes APS Trust (formerly the Graham Hughes International Charity).

This honour recognises his lifelong dedication, groundbreaking work, and tireless commitment to improving the lives of patients worldwide.

Please join us in congratulating Professor Hughes on this well-deserved recognition.

09/06/2025

❤️ Today is APS Awareness Day — and we’re marking it together. ❤️

As a community, we know APS. We know the symptoms, the setbacks, the strength it takes.
Today is about coming together to make sure others hear us — those still searching for answers, still waiting for diagnosis, still feeling alone.

Let’s raise our voices for them.
Let’s share our stories, our knowledge, and our hope.
Let’s remind each other: you’re not alone, and together we are stronger. ❤️💪

Empowering Through Education, Saving Lives Through Awareness