Royal London & Mile End Hospital IBD Patient Panel

02/04/2026

Researchers at Murmur Research & Consultancy Ltd are looking to understand more about the lived experiences of adults with Inflammatory Bowel Disease (IBD).

To be eligible to take part, you must:
▪️be aged 18 or over
▪️have a diagnosis of Crohn’s Disease or Ulcerative Colitis
▪️fit at least one of the following lived‑experience groups:
- diagnosed within the last 9 months
- diagnosed 2 or more years ago
- recently had stoma surgery
- expecting stoma surgery within the next 12 months

This study aims to build a clearer picture of what people with Crohn’s or Colitis experience at different stages of their condition.

By taking part, you will help researchers to understand what daily life, care and decision‑making are really like for people living with IBD. Findings from this study will support future improvements to services, support, and the overall IBD care pathway.

Please note: This research study is NOT organised by Crohn’s & Colitis UK and, therefore, we cannot take responsibility for your involvement in the research.

If you are interested in taking part or would like to know more, please visit:
https://ow.ly/OqLp50YpAnA or email lewin@murmurresearch.com

02/04/2026

If you’re aged 10–17 and have been diagnosed with Crohn’s, Colitis or IBD, Intelligent Fieldwork is inviting you (with an adult) to take part in a paid research study for a new device being developed that is hoped will treat young patients in the future.

✔ No medication or injections involved
✔ No selling or promotion
✔ 60-minute session
✔ £120 payment for participation

Parents can register interest here:
https://eu.panelfox.io/s/XIF054_Crohns_UC_Ado

Please quote CICRA when asked how you heard about the study (this ensures a £30 referral fee if you take part).
Questions? Email: susan@intelligentfieldwork.com

01/04/2026

Balancing tradition and health during Passover

For those living with Crohn’s or Colitis, this time of year can bring unique challenges—but you’re not alone, and there are ways to celebrate while looking after your self and your health.

💬 Read a personal story on navigating Passover with IBD:
https://lnkd.in/e2JMdWbj

🥗 Plus, check out this helpful guide with practical tips and a free download:
https://lnkd.in/eYatuHEU
Remember: adapting traditions to support your wellbeing is always okay.

This link will take you to a page that’s not on LinkedIn

09/03/2026

Our goal for 2026 is to create a website that is patient's first point of call for non urgent information about IBD, the IBD services at the Royal London Hospital and the Patient Panel and events and research opportunities.

But we need your feedback on our current website and your views on how to make it better with the information you want to see.

Help us by completing our survey

28/02/2026

We’re working to improve our IBD Patient Panel website so it becomes a helpful hub for IBD information and updates specific for Royal London and Mile End — and we’d really value your input.

✅ We’ve created a short survey to gain your views on what you would like to see.
📝 Please take a few minutes to share your feedback here:
👉 https://forms.office.com/r/BSJXgqmJt1

Whether you are a Patient, Family member, carer or staff member, your voice helps shape services and resources for our IBD community

26/02/2026

What a great meeting!
Really valuable and informative and a great turn out!
Thanks to all who came and those who participated

Next meeting will be mid May

25/02/2026

📢 Do You Know Your IBD Nurse?

Our latest patient survey showed that many patients weren’t sure who their IBD nurse is — and we’d love to change that!

Why not join our online meeting tomorrow to meet the team, learn how they support you, and ask any questions you may have?

🗓 Tomorrow
⏰ 5:30pm
💻 MS Teams
📧 Email us for the link

We look forward to seeing you there!

23/02/2026

We have exciting plans to grow our website into an accessible, go-to resource for IBD patients at the Royal London and Mile End Hospital. It will offer up-to-date information about IBD, our IBD Service, and the Patient Panel.

But we need your help!!!

Can you volunteer your time to help develop our website, gain valuable experience, and make a real difference for IBD patients across our hospitals?

email ibdpatientpanel.rlh@outlook.com

19/02/2026

email us for the meeting link
ibdpatientpanel.rlh@outlook.com

hope to see you there!

17/02/2026

🌙 IBD & Fasting During Ramadan 🌙

If you live with Inflammatory Bowel Disease (IBD) and are considering fasting during Ramadan, it’s important to have the right information and support.

The Barts Health IBD team has put together guidance to help you make informed decisions and manage your health during Ramadan.

👉 Read the full guidance here:
https://ibdpatientpanelrlh.wixsite.com/ibdrl-meh/ibd-and-fasting-for-ramadan

Please remember to speak to your IBD team before making any changes to your treatment or routine.

30/01/2026

Our next patient panel meeting will be on Thursday 26th Feb at 5.30pm on MS Teams.

We will be joined by our IBD Nurses from Adults and Paeds introducing themselves, their roles, and providing us with an update from points raised at our last meeting.

Contact us for the Meeting link.

10/01/2026

📢 Important update

After careful consideration, we’ve decided to close our X account.

Our priority as an IBD patient panel is to provide a safe, respectful, and trustworthy space for patients, families, and supporters. Given recent concerns around safety and the platform’s direction, we feel this is the right step for our community at this time.

You can still find our updates on:
👉 https://ibdpatientpanelrlh.wixsite.com/ibdrl-meh
👉 Instagram, Facebook and LinkedIn

Thank you for your continued support 💙