02/12/2021
How it's like when your parent have dementia. It was since 2016 that we realized he became forgetful and starts to hallucinate during the nights. Over time he starts to believe these hallucinations are real. Along with his many falls, the GP wanted to run a test on his brain. He was diagnosed with dementia in July 2018.
He have turned 84 on 21st November π
My wonderful dad was an architecture, loves music and writes his own music. It was only recently that I knew he plays the guitar π€£ He is multi skilled due to his love for learning and he reads the newspaper every day until his eye sight was effected by his diebetes in 2019. Begining 2019 - end of 2020 He cannot live alone, walk unsupervised or unattended a anymore. His conversation are scramble and inconsistent. Beginning 2021 to the end of this year, he needs around the clock care. Sleeps 70% of the day and very little walking.
By supporting others through Mental Health in a Cup at 268 Wandsworth Road SW8, I was talking and listening to many who supporting and supported their love ones. I echo their views and cannot agrees more that ALL the professionals and GP never came close to the help and information we share with people who are going through and looking after dementia.
It is so comforting and assuring to get these first hand experiences, information, tips and awareness to help me with my role.
Being keeping your love ones active and talks to them is vital to their wellness. Making sure they feel you understand what they are going through helps them feels this. What is in their mind and thinking is real to them therefore I don't try to make him think differently.
His memories are jumbled from different time line in his life and his hallucinations are daily. I share his thoughts and conversations as if I am at the time and assuring him that I will take care of his worries and concerns about the matters that he hallucinated.
It is not uncommon that people with dementia remembers their most rememberable times only and what they feel it is important for them.
For me, I am very blessed to have supportive children and partner who looks after my well being. They would jump in when they can to help me at work and creat a playful distraction for their grandad when he is distressed.
It is very draining mentally and emotionally as it is hard to see someone slips so fast in such a short period of time.
Keeping in contact with those who are carers to their love ones, supporting each other and keep each other motivated helps β€οΈ make Time to catch up and take time off is just a important for carers.