27/02/2026
Functional Neurological Disorder: regaining control over voluntary movements
One of Ellieās most persistent FND symptoms is aggressive involuntary muscle responses (ie kicking out uncontrollably, which in the past has left her with some injuries) primarily in her lower body, which makes standings and walking independently incredibly hard and often unsafe.
Ellie and Luke have worked extensively to understand some of the patterns and triggers that underlie Ellieās FND. One of the key triggers appears to be when Ellieās toes are lifted (and sometimes when they make contact with the floor) which leads her body into aggressive jerks, kicking and stamping. The power behind these movements is beyond what Ellie can create voluntarily.
It is vital for Elliesā body not to respond in this way for her to walk. The brain receives a lot of information from the feet when they touch the ground, without this itās hard for her to know where she is in space, where to place her feet, if sheās landing correctly etc.
Luke and Ellie start to work on changing these patterns - at first seated, then when this is repeatable they can move to standing. Previously this would cause Ellie to have a seizure. You can see during this process her body automatically āfights backā but they work together to gain control over this response. Watching the short clips in this video makes it look simple ā this is a lot of work, investigation and practice (including work from previous intensives and at home)!
A day later Ellie is able to stand with full control, and even move onto walking!
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