The Manchester Adult Cystic Fibrosis Centre

26/02/2026

Help us understand what you know, believe and do in relation to healthy eating and body composition.
Scan the QR code or visit the link: https://redcap.link/3bn4kee3

16/02/2026

A little reminder of the new Co-Production Group! This is a great opportunity to have your say and get involved with shaping and improving the MACFC service.

To make it as easy as possible, you can get in touch in lots of different ways:
Email: CF.secretaries@mft.nhs.uk
Call: 0161 291 2904

Or just speak to us at your next clinic appointment 😃

11/02/2026

We want to hear from you! The CF Trust has launched a survey to gather your experiences with the Personal Independence Payment (PIP) process. The information collected will be used to advocate for changes to the PIP system. We understand that many of you have faced challenges in the past, so please take a moment to complete this survey. Your feedback is important!

Take this survey powered by surveymonkey.com. Create your own surveys for free.

11/02/2026

The CF Trust have launched a PIP survey for the CF community (below). This is a really important tool to capture each CF patients experience of the PIP process. There is more info about this in our blog here. The CF Trust would be grateful if you could take the time to fill out the attached survey https://www.surveymonkey.com/r/SKGGHRP
If anyone needs support to complete this the CF Trust helpline team would be able to go through it with you on the phone 0300 373 1000.

Share your experience of Personal Independence Payment (PIP) by completing our survey – and help us push for change.

11/02/2026

🚨 Reminder on specific non sterile alcohol free wipes 🚨

UK Health Security Agency (UKHSA) and the Medicines and Healthcare products Regulatory Agency (MHRA), have issued a press release as a follow up to the previous one published 4th August 2025, reminding the public not to use four specified non-sterile alcohol-free wipes. The UKHSA is reiterating this advice in response to continuing detection of cases and a recent death attributable to Burkholderia stabilis infection.

The following products are affected:

- ValueAid Alcohol Free Cleansing Wipes
- Microsafe Moist Wipe Alcohol Free
- Steroplast Sterowipe Alcohol Free Cleansing Wipes
- Reliwipe Alcohol free Cleansing Wipes

Advice by MHRA that to date no people with cystic fibrosis have been affected. However, as people with cystic fibrosis are at higher risk of developing an infection, and as the wipes may be found in first aid kits and in homes, we have been asked to disseminate this information.

Further information can be found here;

UKHSA investigated an outbreak of Burkholderia stabilis (B. stabilis). Their testing has identified the bacteria in several different 'alcohol free, non-sterile' skin cleansing wipe products.

25/12/2025

🎄 Merry Christmas Everyone 🎄

You always need a ward team on shift, and this year we do have some super stars - thank you for working your Christmas Day 🫶🏼

15/12/2025

For more info please get in touch or see the FAQs in the comments :)

12/12/2025

🔔 Nuvo Spirometry - discontinuation 🔔

The Air Next Spirometer/ platform will be discontinued at the end of March 2026.

We are working hard to source an alternative home spirometry device and platform.

We will update you in due course. For now the spirometer and app will continue to function as normal.

10/12/2025

The New and Improved Annual Assessment!

Here is a little infographic to help explain what to expect on the day of your Annual Assessment. If you have any questions, please get in touch with the CF Team on 0161 291 2015.

27/11/2025

The CF Trust have published the findings from the latest Your Life and CF Survey. Feel free to share any insights or comments here.

26/11/2025

A reminder about the CF Trust Winter Support Fund. Deadline for applications is the end of the week!

To help protect the health of people with CF who are most in need through the winter ahead, we are providing extra financial help through our Winter Support Fund.

25/11/2025

🤧 Flu Jabs 🤧

Lots of flu is going around

Please prioritise getting your flu jab from your local pharmacy or from us at your clinic appointment

If you haven’t yet had it, please please go get it

🙏