11/10/2025
💚 axSpA Warriors Club 💚
“From butt to chest — still the best.”
This year I was diagnosed with axial spondyloarthritis (axSpA) — a chronic inflammatory disease that mainly affects the spine and pelvis. It causes pain, stiffness, and fatigue, but you’d never know it by looking at someone. It’s a hidden condition that can take years to diagnose — on average 7–8 years in the UK alone.
🧠 Some quick facts:
• Around 1 in 200 people live with axSpA.
• It often starts in your teens or twenties.
• Early diagnosis and treatment can help prevent long-term spinal damage.
• Movement and exercise are key parts of managing it — but so is rest and medication.
For me, it shows up as sacroiliac pain, sternum pain, shoulder pain, and elbow pain — sometimes all at once, sometimes one at a time. It’s unpredictable and exhausting, but I’m learning to listen to my body and adapt.
I’m still waiting to start my long-term treatment, but I’m incredibly grateful for the support I’ve had along the way — especially from my osteopath, Emily Coombs, who encouraged me to keep pushing for answers when things didn’t add up. 🙏
Finding community and awareness like this has helped me so much already. 💪
If you’ve got unexplained back pain, stiffness (especially in the morning), or pain that improves with movement — don’t ignore it. Ask your doctor about axial spondyloarthritis.