12/03/2026
The Lipoedema Lounge is now live.
Lipoedema remains widely misunderstood.
Its causes are unknown.
There are no universally agreed diagnostic tests.
We do not know what conditions coexist alongside it.
Yet millions of women are living with the disease every day.
The Lipoedema Lounge is developing an archive that brings together lived experience, clinical insight and emerging research. By listening carefully to real stories, we may begin to see patterns more clearly, strengthen understanding, and help guide future research in meaningful directions.
I am inviting women with lived experience of diagnosed lipoedema — from newly diagnosed to advanced disease, whether treated conservatively, untreated, seeking or having had surgical treatment, advocating for others, or living quietly with the disease — to take part in recorded conversations and share their stories publicly.
These interviews are intended to help build a clearer, more human picture of lipoedema as it is actually lived, and to help guide what research is needed so that women can access a clear diagnosis, clinical pathways, and evidence-based care informed by both research and lived experience.
If you would like to share your experience, you are very welcome to contact me.
📧 clare@lipoedemalounge.co.uk
💬 DM via Instagram
🌐 https://lipoedemalounge.co.uk