Lydia Osteoporosis Project

04/02/2026

The postpartum period is a time of enormous physical and emotional vulnerability. When a new mum is in constant pain, losing function, and struggling to care for her baby, being told this is “normal” can be deeply damaging. Unfortunately this is the experience of many of us with PAO.

Losing height. Unable to sleep. Struggling to lift her baby.
For this mum, finally getting a diagnosis of 5 vertebral fractures brought relief, not fear.

For many women with Pregnancy Associated Osteoporosis, receiving a diagnosis brings validation, finally understanding that there is a medical reason behind their suffering.

04/02/2026

04/02/2026

We’ve published our Annual Objectives for 2026, our fortieth anniversary year.

Today, the Royal Osteoporosis Society (ROS) publishes its Annual Objectives in the fifth year of our strategy, Breaking the Silence. You can read them here.

Chief Executive Craig Jones said:

“We’re proud to publish our ambitious programme for 2026.

In our 40th anniversary year, we’ll turn political promises into real action for people with osteoporosis - action that changes and saves lives. We’ll drive a revolution in bone health awareness and prevention through The Great British Bone Check. And as thousands more people are diagnosed and come to us for support, we’ll launch a new website and AI-powered tools to serve more people than ever, so no-one is left without the help they need”.

04/02/2026

Il 4 febbraio celebriamo la Giornata Mondiale dedicata alla Malattia di Paget dell'osso, un disordine cronico del rimodellamento osseo che colpisce prevalentemente adulti over 55, causando dolore, deformità e rischio di fratture.
La SIOMMMS promuove la diagnosi precoce e la gestione ottimale attraverso il suo Position Paper dedicato, disponibile qui: https://www.siommms.it/position-paper-siommms-sulla-gestione-della-malattia-di-paget/ .
Scopri di più, condividi e sensibilizza!

04/02/2026

🌍 Today is World Cancer Day — an important moment to highlight the International Osteoporosis Foundation’s recent scientific work addressing bone loss associated with cancer treatments. Over the past year, IOF Bone and Cancer Working Group experts have published the following key papers offering new insights into prevention and management strategies for cancer treatment–related bone loss:

• Non-metastatic breast cancer patients discontinuing aromatase inhibitor on denosumab: what next? 🔗 https://bit.ly/4kkMR2w
• Management of aromatase inhibitor–associated bone loss (AIBL) in women with hormone-sensitive breast cancer: An updated joint position statement of the IOF, CABS, ECTS, IEG, ESCEO, IMS, and SIOG. 🔗 https://bit.ly/4rx6PJJ
• Bone Effects of Anti-Cancer Treatments in 2024. 🔗 https://bit.ly/4atgStn

Professor René Rizzoli, Chair of the IOF Bone and Cancer Working Group, emphasized the importance of addressing this often-overlooked consequence of cancer care:
“While today’s cancer therapies have significantly improved survival, they come with a hidden cost — an increased risk of bone loss and life-altering fragility fractures. For this reason, we strongly advocate for a multidisciplinary approach, bringing together oncologists, endocrinologists, rheumatologists, and general practitioners to ensure early screening and proactive bone-protective strategies for patients at high risk of fracture.”

03/02/2026

Living with ? Please come and join us for a cuppa☕

We are hosting our next Osteoporosis Community Café at Queen Margaret University, Edinburgh on Wednesday 18 February, from 2pm to 4pm, in Maggie’s. This will be a warm, relaxed space for anyone living with , or caring for someone who is.

💬 Time to chat, listen and share experiences
💊 A short, accessible talk from a
🤍 Supportive conversations with us 😉the Lydia Osteoporosis Project
🍰 Light refreshments in a welcoming, inclusive environment

With affecting many people across , creating spaces where people feel heard, informed and supported is more important than ever!

📩 This is a free event and booking is essential
Please email lydiaosteoporosisproject@qmu.ac.uk by Thursday 12 February

👉 Find out more:
https://ow.ly/rpU350Y81CW

Please feel free to share 🤍

Queen Margaret University (QMU) is set to host its third Osteoporosis Community Café on Wednesday 18th February 2026, reflecting the growing need for supportive spaces where people affected by osteoporosis can connect, share experiences and access reliable information. Building on the success of pr...

30/01/2026

You can reduce osteoporosis risk with RA and care for bone health through effective treatments, lifestyle changes, and proper screening.

29/01/2026

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Caregivers play a crucial role in supporting patients with and post-fracture by enhancing safety, well-being and management of the disease. If you’re a caregiver, you can find helpful tips here -> https://bit.ly/4ifR0Dy

20/01/2026

Aligning with International Women's Day this year, join us for an insightful webinar on the 10 March, hosted by Dr Hirushi Jayasekera with speaker Dr Oseme Etomi giving insight into both pre and post partum drug management and disease control. Register here - https://bit.ly/4b2eQ4f

20/01/2026

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Nicholas Harvey, President of the International Osteoporosis Foundation, describes the urgent need to address the burden of bone health

09/01/2026

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Balance and functional training, Tai Chi, or strength training are all effective ways to help reduce the risk of falls. Take a look at this infographic, shared by the Bone Health and Exercise Science Lab at the University of Waterloo (Canada), to learn more and be inspired in 2026!
💪🦴

06/01/2026

View the FFN Audit resources https://fragilityfracturenetwork.org/resources-categories/audits/