Lydia Osteoporosis Project

08/11/2025

This we are introducing you to some of our brilliant trustees. Next up is our Co-Chair Professor Stuart Ralston!

“I was delighted to join the PAO UK charity to help increase awareness of this rare but serious condition and to assist with the development of guidelines for its diagnosis and management"

08/11/2025

This we are introducing you to some of our brilliant trustees. This evening we have the very talented Kathryn!

"Having met and spoken to dozens of women with PAO in part of my role as a research manager at the University of Edinburgh I quickly realised that almost every single one of them had the same story, a story of being dismissed and disbelieved by healthcare professionals at a time when they were caring for their newborns in agony, many having fractured their spines during or shortly after birth. It was these stories that encouraged me to co-found PAO UK, a charity determined to provide support to women with PAO and to educate healthcare professionals around the UK."

08/11/2025

This we are introducing you to some of our trustees. Today we have the amazing Karen! She is out today raising awareness for us at where we have both an exhibition stand and poster on display. Karen has remained dedicated to raising awareness of PAO for over 30 years, and our charity would not be here today if it wasn't for all of her hard work. Thank you Karen for all you do!

"Nothing has changed for PAO Mothers in over 30 years since I was first diagnosed. It still remains such an unknown & devastating condition. I am determined things need to change for PAO Mothers & their families. I am sad it has been needed but proud to have co-founded this new charity with all my amazing fellow co-trustees and all our wonderful experts and volunteers. Working together PAO Mothers & their families, Experts, Specialists, Healthcare Professionals & Researchers are driving change, raising awareness & working for improved diagnosis, care & knowledge & also providing information, support and advocacy."

01/11/2025

01/11/2025

30/10/2025

FEMORAL PERIPROSTHETIC FRAGILITY TRAUMA WEBINAR
An epidemic on the horizon: Understanding the problem and modern management pathways

30/10/2025

Los huesos son estructuras vivas que se renuevan constantemente, y para hacerlo necesitan una buena nutrición 💙

🍶 Calcio para mantenerlos fuertes.
🍗 Proteínas que favorecen su regeneración.
☀️ Vitamina D que ayuda a absorber el calcio.
🥦 Otros nutrientes (como magnesio, zinc y fósforo) que completan la ecuación.

👉 Elige alimentos frescos y variados, toma sol de forma segura y muévete.

Síguenos para más consejos sobre cómo cuidar tus huesos todos los días.

30/10/2025

GIRFT Webinar
GIRFT’s pathway for best practice in caring for patients with vertebral fragility fractures

🗓️12 November 2025, 12:30pm – 1:30pm (UK Time)

Register here: https://www.events.england.nhs.uk/events/girft-pathway-demonstrating-best-practice-in-the-care-of-patients-with-vertebral-fragility-fractures

21/10/2025

Today, QMU proudly marks World Osteoporosis Day, reaffirming its commitment to addressing one of the most pressing yet under-recognised public health challenges of our time – osteoporosis.

In a bold call, the International Osteoporosis Foundation (IOF) has deemed the response to osteoporosis as unacceptable, asking to end the global neglect in osteoporosis care and treatment.

Read about the work of QMU’s Lydia Osteoporosis Plus Project and our call for collective action to tackle the global neglect in osteoporosis care and treatment - https://ow.ly/q8vq50XeZKE

20/10/2025

We're marking 2025 by joining the International Osteoporosis Foundation in saying that people living with osteoporosis are missing out on assessment and treatment that could potentially prevent painful fractures that have huge impacts on quality of life and life expectancy. Thanks to our QMU Nursing Society second year nursing students for making some noise! Queen Margaret University, Edinburgh NHS Scotland Royal Osteoporosis Society Public Health Scotland Laura Fregonese Vicki Wacky

17/10/2025

👇

Long-term glucocorticoid treatment can seriously weaken bones, leading to osteoporosis and fractures. For Giovanni, the consequences were devastating.
After experiencing a mild cough, he suddenly developed severe back pain. X-rays revealed that two of his vertebrae had collapsed — and within a short time, three more followed.
🦴 Vertebral fractures are not only painful but also often life-changing. If Giovanni's doctors had flagged the risk sooner, he could have been tested and treated before the damage was done.
💬 Have you or someone you love been affected by ? We invite you to visit our BuildBetterBones website for information and advice – and be sure to contact your local society for advice and support!
https://www.buildbetterbones.org/