04/11/2025
💛 From Pain to Purpose My birthday fundraiser💛
It seems fitting for my birthday this year, I’d love to raise funds for Target CSF Leaks, to help others receive the same support and guidance that has made such a difference to me.
I wanted to share a little more openly about my health, partly to raise awareness and partly because sharing your own story is part of my own healing journey.
I’ve been living with what’s believed to be a cerebrospinal fluid (CSF) leak, which happens when the protective fluid around the brain and spinal cord leaks out. In my case, doctors think it may have been caused by an epidural during Sebby’s birth in March 2022.
Since then, I’ve had two spinal procedures (epidural blood patches) that have only partially helped, and I’m now waiting for further spinal imaging and investigations to hopefully find the exact location of the leak, leading to a targeted procedure or surgery to repair it.
Living with a CSF leak has meant huge lifestyle changes. I’ve had to reduce what I can do, carefully manage my energy, and adapt to attempt to control some symptoms that affect everyday life. There’s also been the guilt of not being able to parent, be in a relationship, or give back in the way I once hoped.
But over time, I’ve learned to adapt and to find purpose. Through my own work on myself and supporting others through my group sessions, by being a friend, raising awareness, I’ve discovered that even small acts of kindness and connection can give something back. 💛
Throughout this journey, Naomi from the charity has been an incredible support, listening after stressful appointments, offering sturdy and helpful advice, and guiding me towards the right treatment plan aswel as talking with others who have connected through the charity.
Even giving this a read has gifted me your time and awareness, and by doing so, you’ve gained knowledge of a condition that may one day help you support someone else who’s suffering. 💛
🧠 What is a CSF Leak?
A CSF leak happens when the fluid protecting the brain and spine escapes through a tiny tear.
This can cause severe headaches when upright, neck/back pain, dizziness, nausea, fatigue, vision or hearing changes, and brain fog.
Causes include spinal procedures (like epidurals), injury or trauma, and connective tissue conditions such as Ehlers-Danlos Syndrome.
Some leaks occur spontaneously with no clear cause.
Often misdiagnosed or misunderstood, leading to years of pain and uncertainty.
More awareness and funding means better diagnosis, treatment, and support for those affected.
You can read more about the charity here:
🌿 https://targetcsfleaks.uk
And if you’d like to support my fundraiser, you can do so here:⏬️
Thank you for being here and for walking beside me on this journey. 💛
Funds will support Target CSF Leaks in producing educational resou… Glynis Murray-Hill needs your support for Raising Awareness and Hope for CSF Leak Warriors