12/11/2025
When I did my recent survey a friend told me personally that they were prepared with their advance planning having do r their LPAs and wills. They assumed they, like their parents, will die either at home or in a care home with their partner there and their adult child (who lives far away with a family of their own) to enable them to die as they wish. However they hadn't put anything in writing as to specifics. They hadn't considered their dying might not be the same as their parents and that anything could happen. Let's have the conversations. Let's normalise empowering ourselves to say what we want and what we don't want. Let's make sure, as best we can, that we die as we live, with agency, with dignity and with the knowledge that those around us I know exactly what we want.
If anyone turns the TV on for background noise in my dying room I swear I shall come back to haunt them! 😉
When I am dying, I don’t want the last sounds I hear to be machines beeping and alarms going off telling me what I already know, which is that my body is shutting down and I am dying.
I don’t want machines keeping me alive.
I don’t want machines feeding me.
I don’t want to feel the suffocation of the blood pressure cuff as it squeezes my arm every hour on the hour.
I don’t want IV’s stuck in my arms, or tubes down my throat.
I don’t want other people making decisions for me.
I don’t want to be in a room that isn’t mine, with a view of medical charts and notes stating when I had my last bowel movement, when my medications are due, or how many times I have been turned and repositioned, which by the way is obnoxious when you are dying and I definitely do not want that.
I don’t want fluorescent lights on above my head, forcing me to keep my eyes closed so they don’t burn from the glare.
I don’t want people walking into my room as though it is theirs and not mine.
I don’t want strangers telling me what to do or how to feel or treating me like I don’t have feelings.
I don't want people to talk over or about me as if I can't hear. I can hear and I will hear you!
I don’t want my family to wait day after day in a stark hospital room knowing there is nothing else anyone can do but wait.
This is not how I want to die.
This is not how I want the people who love me to see me die.
I have written down everything that is important to me so that none of the above ever occurs.
I have listed where I want to be, who I want there, what music I want to hear, how I want to be cared for, what I want to wear, how I want my symptoms managed, and to what extent I want people to go to keep me alive.
When I am dying, I want my wishes honored, my voice heard, and my death peaceful.
I want this for you too!
Please write down your wishes and share them with the people you love.
Have the conversation.
Talk to your family and friends.
I promise you… it won’t happen sooner because you talked about it.
xo
Gabby
My book “The Conversation” is a great way to get the conversation started.
https://a.co/d/5kDTiSn
My class “Your End-of-Life Wishes”
can be found here:
https://www.thehospiceheart.net/your-end-of-life-wishes
You can find this blog here:
https://www.thehospiceheart.net/post/when-i-am-dying