LAM Action

LAM Action LAM Action is the UK charity for women with the rare lung condition - Lymphangioleiomyomatosis (LAM)

The agenda for the LAM Action 2026 Annual Meeting in York has now been finalised! We are confident that the programme fo...
18/03/2026

The agenda for the LAM Action 2026 Annual Meeting in York has now been finalised! We are confident that the programme for the day has something for everyone, and we have taken account of feedback and built in more time for socialising.

Please visit the following link to download the information pack which also includes the booking form. We look forward to seeing you in York on Saturday June 6th!

https://lamaction.org/wp-content/uploads/2026/03/LAM-Action-Annual-Meeting-2026-Registration-Form.pdf

This opportunity is open to LAM patients around the world, including the UK!
16/03/2026

This opportunity is open to LAM patients around the world, including the UK!

Grant Study Section Patient Voice Committee

Applications are now open to join the Patient Voice Committee (PVC). PVC members will review grant proposals alongside scientific reviewers, provide feedback from a patient perspective, and vote on which studies to fund. The PVC ensures the patient voice is heard and that research remains focused on studies that will most impact those living with LAM.

Details:

Who: 3 patients will be selected (US and International)

Commitment: 25-30 hours per year

Term: 3 years

Interested? If you are active in the LAM Community and want to shape the future of LAM research, we want to hear from you!

Learn more and apply: https://www.thelamfoundation.org/take-action/gss-patient-voice-committee/

They made it! Huge congratulations to Harriet Davidson, her husband Adam and best friend Lauren Weetch for battling thro...
02/03/2026

They made it! Huge congratulations to Harriet Davidson, her husband Adam and best friend Lauren Weetch for battling through the pain barrier and completing 4 marathons in the space of 4 days to raise funds and awareness for LAM Action.

“We climbed over 2500m of altitude over the course of the four days, despite all of our aches and pains and blisters, had long and isolating moments on the Imber range and Salisbury plain, but the true determination and support from donations, positive messages and kind strangers truly got us through.”

An awesome achievement – well done to you all!

And they’re not stopping there – a charity quiz on Friday night will keep the fundraising going, with an incredible amount of approximately £8,000 raised so far! Big thanks to everybody who has supported their fundraising, if you would like to help, please visit the link below:

https://www.justgiving.com/page/harriet-saunders-3?utm_medium=FR&utm_source=CL&utm_campaign=021&fbclid=IwY2xjawQSVFRleHRuA2FlbQIxMABicmlkETBNY2doakhUbVRtejRxcDNOc3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHtrZWnDCBbzcLUqI4F_P41F1kA-Onc4Z_wxhJB-NHctGbci9b-wzZIxxDRrA_aem_nJZAPl01PLGyAXOQFhQfnw

Well done again and thank you from all of us at LAM Action.

Harriet Davidson is now on Day 3 of her challenge to run 4 marathons in 4 days and almost on the home straight to Salisb...
27/02/2026

Harriet Davidson is now on Day 3 of her challenge to run
4 marathons in 4 days and almost on the home straight to Salisbury.
Harriet is running with husband Adam and best friend Lauren
- the team at least had some sunshine for part of their epic journey -
and at the end of each day the latest tech is on hand for tired legs.
If you would like to support Harriet's fundraising here's the link: https://www.justgiving.com/page/harriet-saunders-3

The next meeting of the London and SE support group will take place in Central London on Saturday March 21st at 2pm. If ...
27/02/2026

The next meeting of the London and SE support group will take place in Central London on Saturday March 21st at 2pm.

If you would like to join us please respond to the email you should have received from the L&SE group co-ordinator or if you are a newer member of the LAM community and not yet on the group list, or maybe your contact email is not up to date, then please contact Jill Pateman and she will be able to pass on your details to the group co-ordinator.

We are a very friendly and sociable bunch and gladly welcome any new faces to join us for a coffee (or something stronger!) so please do come along and say hello, looking forward to seeing you all on March 21st!

Harriet Davidson has been following a punishing training schedule in all weathers in preparation for running four marath...
22/02/2026

Harriet Davidson has been following a punishing training schedule in all weathers in preparation for running four marathons back-to-back over four consecutive days this month, between February 25 and 28, which will take her from her home city of Bristol to her husband Adam’s hometown of Salisbury.
If you would like to support Harriet’s fundraising or go and cheer her on please visit the link in our bio.

One week from today, former LAM Action Trustee Harriet Davidson will embark on an extraordinary physical and personal ch...
18/02/2026

One week from today, former LAM Action Trustee Harriet Davidson will embark on an extraordinary physical and personal challenge to raise awareness and funds for LAM Action.

She has been following a punishing training schedule in all weathers in preparation for running four marathons back-to-back over four consecutive days this month, between February 25 and 28, which will take her from her home city of Bristol to her husband Adam’s hometown of Salisbury.

"I want to show that even with a rare lung disease, you can still push yourself and achieve incredible things,” said Harriet, who was diagnosed with LAM in 2019. "This challenge is about raising awareness, supporting other women with LAM, and contributing to vital research that could save lives."

She will be running with her husband Adam and best friend Lauren Weetch, and her mother Mary in a support car behind. Starting in Keynsham, Bristol, through Somerset, Frome, Trowbridge, Westbury, Warminster, across Salisbury Plain, before finishing outside Salisbury Cathedral.

"Having my mum in the support car will be such a boost,” Harriet said. “Running with my husband is fantastic - he is my rock! And knowing my mum is cheering us on behind the route will make it even more special."

The marathon challenge is filled with symbolic significance, beginning on February 25, Harriet and Adam’s wedding anniversary, and ending on February 28, International Rare Disease Day.

A unique feature of the challenge is that Harriet’s route will be tracked via GPS to spell out “LAM,” highlighting the disease and raising awareness for the charity.

Good luck from us all Harriet, you are amazing!

If you would like to support Harriet’s fundraising please visit:
https://www.justgiving.com/page/harriet-saunders-3?utm_medium=FR&utm_source=CL&utm_campaign=021

28/01/2026
Please note the 2026 LAM Action Meeting will take place on SATURDAY JUNE 6TH – not the 8th as reported in LAMPost. Apolo...
11/12/2025

Please note the 2026 LAM Action Meeting will take place on SATURDAY JUNE 6TH – not the 8th as reported in LAMPost. Apologies for any inconvenience and we are still looking forward to seeing you in York!

The winter edition of LAMPost is now out, something to read alongside a festive mince pie or a little tipple. Big thanks...
10/12/2025

The winter edition of LAMPost is now out, something to read alongside a festive mince pie or a little tipple. Big thanks to everyone who contributed!

To download the version for mobile devices:
https://lamaction.org/wp-content/uploads/2025/12/LAMPost-Winter-2025-Mobile-Device-Friendly.pdf

To download the version for printing:
https://lamaction.org/wp-content/uploads/2025/12/LAMPost-Winter-2025-Print-Version.pdf

Happy reading and very best wishes for a merry Christmas and a happy new year from all of us at LAM Action.

The fatigue that comes with LAM can be overwhelming on some days and on others it is a challenge to be overcome.  Harrie...
23/10/2025

The fatigue that comes with LAM can be overwhelming on some days and on others it is a challenge to be overcome. Harriet Davidson took part in a 10km run in Bristol in May and in early October she more than doubled that, running 25km alongside her husband, Adam. After the event Harriet said, "I feel very positive about my lung disease currently, and I really hope this can inspire and motivate other ladies with LAM to think there may be some light through the dark times. It really is possible to be the best version of yourself. I understand with my circumstances it is different to other ladies, but I have gone through some really difficult times and managed to come through some big mental health challenges." Congratulations to Harriet (and Adam) and if you would like to mark their achievement Harriet's fundraising page is still open for donations: https://ajbellgreatbristolrun2025.enthuse.com/pf/harriet-davidson

Address

PO Box 10933
Nottingham
NG249QG

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