Vulval Pain Society

Vulval Pain Society UK charity supporting, educating, providing practical advice to people with vulval pain

04/12/2025

NOTE: All our resources are FREE! 🆓🥳

✅🌐 Our OFFICIAL WEBSITE is now: vulvalpainsociety.org.uk ✅

❌ Any other site (even if it looks like us) is FAKE! There are fraudsters who are using old copies of our old site and we're working to get them shut down. 🚫

✅📧 Our OFFICIAL EMAIL is now: info@vulvalpainsociety.org.uk

☝️Remember the .uk on the the end of our website and email address.

We're here for you. ❤️

📣 Get involved in finding new treatments for vulvodynia! is looking for volunteers diagnosed with vulvodynia to take par...
20/11/2025

📣 Get involved in finding new treatments for vulvodynia!

is looking for volunteers diagnosed with vulvodynia to take part in a clinical trial investigating a potential new treatment.


KEY ELIGIBILITY CRITERIA::
• Women ages 18-65 ✅
• Diagnosis of vulvodynia, with pain for at least 12 months ✅


💊 The study medication is being investigated to evaluate the effect it has on the pain in the vestibule when caused by insertion (tampon/sex) or touch (provoked vestibulodynia).

It is a novel therapy that increases dopamine levels in the body, which contribute to feelings of pleasure, and pain modulation. ✨🧠

For MORE INFO and to register your interest in this research:
🌐 Visit https://researchforyou.co.uk/vulvodynia-clinical-trial-mac212/
☎️ Call UK Freephone 0800 917 7617

🚈🚌🚗Note: Transport or travel expenses will be provided to location of study at MAC Lancashire

👉 If you’re a clinician, please share this opportunity with your patients with provoked vestibulodynia, and via social media.

14/10/2025

⚠️ Important update:

It seems someone is impersonating us on our old domain, showing out-of-date content and email address. (We're taking action).

📌 Our OFFICIAL SITE and EMAIL are:

🌐 vulvalpainsociety.org.uk

✉️ info@vulvalpainsociety.org.uk

👉 Please share to help patients and clinicians reach us directly.

02/10/2025

🔎 WHERE YOU'LL FIND RESOURCES:
If you live with any kind of vulval pain such as vulvodynia, vestibulodynia, vaginismus, lichen sclerosus, or you're a clinician who treats people living with vulval pain then head on over to our website:

🌐 vulvalpainsociety.org.uk

Or you can email us:

✉️ info@vulvalpainsociety.org.uk

🧐😊 Yes, we've moved and now have a .uk on the end of our address!

🤔 Wondering where to find us? ➡️ We’ve now got a .uk on the end!🌐 vulvalpainsociety.org.uk✉️ info@vulvalpainsociety.org....
01/10/2025

🤔 Wondering where to find us? 
➡️ We’ve now got a .uk on the end!

🌐 vulvalpainsociety.org.uk

✉️ info@vulvalpainsociety.org.uk

The V Word - Alice Barber has been developing a play about vulvodynia and now has two rehearsed readings which you can j...
13/09/2025

The V Word - Alice Barber has been developing a play about vulvodynia and now has two rehearsed readings which you can join - Saturday 13 September at 2.00pm at the Interplay Theatre, Armley, Leeds LS12 3LE and Monday 15 September at 3.00pm at the Carriageworks Theatre (Studio), Millennium Square, Leeds LS2 3AD. These readings are open for members of the public to join and they will also be making some recordings. Free tickets available from www.ticketsource.co.uk/the-v-word

❗ ATTENTION: Our official website is temporarily unavailable.We are working to resolve this. Until further notice, any s...
10/09/2025

❗ ATTENTION: Our official website is temporarily unavailable.

We are working to resolve this. Until further notice, any site using vulvalpainsociety.org is NOT affiliated with us.

In the meantime you'll find a while library of video resources on YouTube channel - the link is in our bio.

We’ll keep you updated!  

📨You’re invited 🖌️🖋️📷If you live with chronic or persisting pain, CRIISP invites you to honestly portray a moment in yo...
21/08/2025

📨You’re invited 🖌️🖋️📷

If you live with chronic or persisting pain, CRIISP invites you to honestly portray a moment in your day through a photo, drawing, poem, story, or short film. 

🟢 Why? Because every entry helps build a richer picture of life with pain - showing not just the challenges, but the ordinary, powerful, or even humorous moments too. Together, these will form a public showcase this October and a lasting online collection.

(There are also £50 voucher prizes for selected entries.)

📅 Deadline: 1st September 2025
🔗 Use the QR code or paste this into your browser:

https://uniofbath.questionpro.eu/t/AB3uySWZB3wGq0

Last time we had Tori Ford on our Livestream was May 2022 and now she’s back to discuss the results of her Recurrent Th...
14/11/2024

Last time we had Tori Ford on our Livestream was May 2022 and now she’s back to discuss the results of her Recurrent Thrush Study!

We cannot wait to hear more as Tori covers:
• patient voices
• training implications for healthcare professionals and
• her website launch all about recurrent thrush experiences.

Join us on Thursday the 21st Nov 7pm GMT at https://fb.me/e/44H5VDHH8

Take part in a study on cognitive behavioural therapy and chronic painThe University of the West of England are looking ...
14/11/2024

Take part in a study on cognitive behavioural therapy and chronic pain

The University of the West of England are looking for participants for a study on the experiences of people who have chronic pain and have had cognitive behavioural therapy (CBT).

See the attached flyer for details, or read the text version on the VPS website at https://vulvalpainsociety.org.uk/research/research-needing-participants/university-of-the-west-of-england-bristol-uk/

If interested in participating, you can email researcher Jodie Cave at Jodie2.Cave@live.uwe.ac.uk

The Participant Information Sheet is available at https://uwe.eu.qualtrics.com/jfe/form/SV_8CIgEZ44xUnTyN8

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PO Box 7804
Nottingham
NG35ZQ

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