17/11/2025
š Seeing the Carer, Not Just the Person being Cared For š
By Stephanie Ford, Senior Advocate ā Care Necessities
"When we talk about advocacy, we often focus on the person receiving careāand rightly so. But sometimes, the person holding it all together behind the scenes needs our support too.
Meet Bob, husband and devoted carer to Elizabeth. When we worked together to secure NHS CHC funding, we didnāt just get a substantive 24/7 home care package worth almost Ā£6,000 per week for Elizabethāwe also had to consider Bobās wellbeing.
Bob agreed to be an unpaid carer, topping up the home care package himself. Day and night, he is there for Elizabeth whenever she needs him. But long-term, this level of dedication places an enormous risk of carer burnout.
Thatās where advocacy comes in. We fought for Bob to be seen, to have his needs recognised. And we succeeded. The NHS has now agreed that Bob gets one day off a week, with another carer stepping in.
This may sound small, but for Bob, it means he can play golf, have a meal with family or friends, or simply take time for himself. When I received his email, recently describing how wonderful his day on the golf course had been, I felt something truly profound. Advocacy isnāt just about care packages for those in needāitās about quality of life for their carers too.
With a background in health, I know how easy it is to focus only on the patient. But as an advocate, I get to see the bigger picture, support the whole family, and make a difference for both Elizabeth and Bob.
Bobās story is a reminder: even the strongest carers need care and support too. And when we step in, we can make that possible. To make such a difference to Elizabeth and to Bob, is why every day I do what I do."