14/06/2023
This is a new charity very close to my heart!!! If you wish to contribute anything- however small, literally anything you can spare - to their efforts to raise funds to finance research into this very rare condition affecting children from birth then please give them a contribution!
This charity has been set up by families of affected children and it would be amazing to help them achieve their goal.
Thank you!
For Spanish & German translations, see communications below … Lorena Garcia Fernandez needs your support for Help our tiny warriors find a treatment for MEF2C