Fibromyalgia Action UK - FMAUK

13/11/2025

🌟 A huge thank you to our friends at Prison Service Charity Fund for their generous donation of £160!

Your kind donation will help us continue our mission to support people affected by fibromyalgia and raise more awareness of the condition. Every pound makes a difference — and this gift will go directly towards creating real impact in our community. 💙

It’s always inspiring to see charities supporting one another. Together, we can achieve so much more than we ever could alone. 🤝✨

11/11/2025

📢 Accessible Travel Framework Consultation 2025/2026
There’s still time to share your views on Scotland’s Accessible Travel Framework — the consultation closes Wednesday, 19 November at 5pm.
Your feedback helps shape how accessible travel is designed and delivered across Scotland.
🚌♿ This survey is open to all disabled people, so please share it with anyone who may wish to take part.
👉 Complete the survey here: https://disabilityequality.scot/news/accessible-travel-framework-surveys/
☎️ If you’d prefer to take part by phone, you can call 0141 370 0968 or email transport@disabilityequality.scot to arrange a time.
Let’s make travel more accessible for everyone. 💜

🚆 Our Accessible Travel surveys close on Monday!

We are working with Transport Scotland Scotland to gather views from disabled people on how to make travel more accessible for everyone.

Take part this weekend and share your experiences by completing our three short surveys:

📢 Public Transport: https://www.smartsurvey.co.uk/s/ATFPublicTransport/

📢 People’s Journeys: https://www.smartsurvey.co.uk/s/ATFPeoplesJourneys/

📢 Hate Crime on Public Transport: https://www.smartsurvey.co.uk/s/ATFHateCrime/

Easy Read versions of all three surveys are also available.

The Surveys close Monday 3 November at 12pm.

11/11/2025

𝐓𝐡𝐞𝐲 𝐬𝐡𝐚𝐥𝐥 𝐠𝐫𝐨𝐰 𝐧𝐨𝐭 𝐨𝐥𝐝, 𝐚𝐬 𝐰𝐞 𝐭𝐡𝐚𝐭 𝐚𝐫𝐞 𝐥𝐞𝐟𝐭 𝐠𝐫𝐨𝐰 𝐨𝐥𝐝:
𝐀𝐠𝐞 𝐬𝐡𝐚𝐥𝐥 𝐧𝐨𝐭 𝐰𝐞𝐚𝐫𝐲 𝐭𝐡𝐞𝐦, 𝐧𝐨𝐫 𝐭𝐡𝐞 𝐲𝐞𝐚𝐫𝐬 𝐜𝐨𝐧𝐝𝐞𝐦𝐧.
𝐀𝐭 𝐭𝐡𝐞 𝐠𝐨𝐢𝐧𝐠 𝐝𝐨𝐰𝐧 𝐨𝐟 𝐭𝐡𝐞 𝐬𝐮𝐧 𝐚𝐧𝐝 𝐢𝐧 𝐭𝐡𝐞 𝐦𝐨𝐫𝐧𝐢𝐧𝐠
𝐖𝐞 𝐰𝐢𝐥𝐥 𝐫𝐞𝐦𝐞𝐦𝐛𝐞𝐫 𝐭𝐡𝐞𝐦.

" 𝐓𝐡𝐞 𝐅𝐚𝐥𝐥𝐞𝐧"- 𝐁𝐲 𝐋𝐚𝐮𝐫𝐞𝐧𝐜𝐞 𝐁𝐢𝐧𝐲𝐨𝐧

07/11/2025

Janet Horton Retires After 35 Years of Service

After 35 years of dedicated service, Janet Horton is stepping down from her role at Citizens Advice. Janet has been a trustee of the charity almost since its formation in the 1990s, and throughout that time she has played a vital role in delivering our benefits service.

In the photo, Janet is pictured with Diane, Head Manager for West Lancashire Citizens Advice.

Over the years, Janet has supported thousands of people, particularly those living with Fibromyalgia, and her compassion and expertise have made a lasting difference to so many lives.

👣Although stepping back from her day-to-day role, Janet continues to contribute as a trusted trustee and through her ongoing work on our benefits helpline, offering guidance and support to those who need it most.

💜The charity is truly fortunate to have such a dedicated and caring person at its heart. Janet’s contribution has been invaluable, and she leaves behind a legacy of kindness, commitment, and community spirit that will continue to inspire us all.

05/11/2025

For many people, fireworks are a moment of excitement — bright bursts of colour and sound filling the night sky.

But for those living with fibromyalgia, fireworks can feel very familiar…
Not in how they look — but in how they act.

Fibro pain isn’t steady or predictable.
It can flare suddenly, sharp and intense — like a firework exploding out of nowhere.
Then it fades… only to return again in a new place, a new sensation, without warning.

Just like fireworks:

✨ Fibro pain can be loud inside the body
✨ It can burst unexpectedly
✨ It can leave aftershocks long after the moment passes
✨ And it can be overwhelming when too much happens at once

So while others look up at the sky tonight, some of us are thinking about the daily fireworks happening inside — the bursts of pain, fatigue, and sensory overload that no one else can see.

If tonight feels too much, it’s okay to step away.
Your comfort comes first. 💜

You are not alone — and your pain is real.

04/11/2025

Office Update!
Todays the day, things might be a little quieter than usual here at Fibromyalgia Action UK, as our team will be taking some time out to upskill and learn from the amazing team at St Andrews First Aid. 💙
We’ll be focusing on Mental Health First Aid — exploring how we can better support each other, our team and extend that care to our wider community too. 🌱
Because looking after others starts with looking after ourselves. 💜

02/11/2025

✨ Could you be the next Star Baker? 🍰
Love baking? The Great British Bake Off is now accepting applications for 2025!

We know that Fibromyalgia community is full of creativity, resilience, and passion — and this could be your chance to shine in the famous Bake Off tent! 🌟

📅 Applications close Monday 15th December 2025 at 1pm
👉 Apply at www.applyforbakeoff.co.uk

📩 More info: applyforbakeoff@loveproductions.co.uk

Let’s show that living with Fibromyalgia doesn’t mean giving up on your dreams — it means baking through the pain and proving your strength, one cake at a time. 💪🎂

31/10/2025

👻 Happy Halloween from all of us at FMA UK! 💜
We hope your day is filled with treats, smiles, and maybe just a few friendly scares!
Remember to take it easy, pace yourself, and enjoy the spooky season in your own way. 🕯️🍬

30/10/2025

📰 Media Opportunity: Share Your Fibromyalgia Story with the Daily Mail Health Section
The Daily Mail Health team is working on an upcoming feature about fibromyalgia, and they’re looking to speak with people who’ve experienced lengthy delays or misdiagnoses before finally getting the correct diagnosis.

If this sounds like you, this is a great opportunity to raise awareness and help others going through similar challenges.
What’s involved:
A brief phone interview with a journalist (your quotes will be read back to you before publication)
You’ll need to provide or agree to be photographed for the article
They’re working on a tight deadline — ideally by end of day tomorrow or Monday.

If you’re interested or know someone who might be, please complete the form: https://wkf.ms/4oJlvUs

Let’s help shed light on the real experiences of those living with Fibromyalgia 💜

30/10/2025

🎄✨ Get Ready for Christmas Jumper Day on 11/12/2025! ✨🎄

It may only be October, but now is the perfect time to start planning your festive fun! This year, why not bring some holiday cheer to your friends or workplace whilst raising awareness of fibromyalgia?

Joining Christmas Jumper Day is really easy:

1️⃣ Encourage your friends/colleagues to pick a favourite Christmas jumper, the funnier, brighter, or quirkier, the better!
2️⃣ Collect donations easily through a JustGiving page (www.justgiving.com/fmauk, or search for our charity on JustGiving) – no cash needed.
3️⃣ Let us know you’re taking part by completing our form at www.fmauk.org/fundraisingform.
4️⃣ Share your festive photos on social media and tag us so we can celebrate your jumper spirit!

Plan ahead, get creative, and make this Christmas Jumper Day the most fun one yet. 🌟💖

29/10/2025

A day to raise awareness of the crucial role of care work in society, which supports all other forms of work. Highlighting the vital role of carers, support workers, and everyone who helps others live with dignity, comfort, and independence. Not just paid carers but family members and support systems too.
At FMA UK, we’re grateful to all those who support people living with fibromyalgia — your care truly matters. 💜

28/10/2025

📣 Office Update!
Next Tuesday, things might be a little quieter than usual here at Fibromyalgia Action UK, as our team will be taking some time out to upskill and learn from the amazing team at St Andrews First Aid. 💙

We’ll be focusing on Mental Health First Aid — exploring how we can better support each other, our team and extend that care to our wider community too. 🌱

Because looking after others starts with looking after ourselves. 💜