Kidney Research UK

Kidney Research UK We are the leading kidney research charity in the UK. Kidney disease ends here. Only research will end kidney disease.
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We believe that no one should live in fear, anxiety and pain with this life-limiting condition. Your help means our fantastic doctors, nurses, and scientists can continue their life-saving work and achieve a better life for those with kidney disease. Follow us to keep up to date with what's happening with our research. Our page should be a safe place where followers can share their personal experiences of kidney disease and thoughts about our research. We love to hear your feedback, both positive and negative, as it’s important to us that we hear your views. Our social media house rules aim to ensure everyone can enjoy engaging with our page:

We ask everyone interacting with our page to be considerate and respectful of each other. Please ensure that your contributions to the page are civil, polite, tasteful, and are suitable for individuals of all ages and backgrounds. We do not accept disruptive, offensive, or abusive behaviour, or unlawful content. This includes any posts that are deemed to be defamatory, offensive, infringing, obscene, lewd, pornographic, violent, abusive, insulting, threatening, harassing, discriminatory, blasphemous, indecent, unlawful, or objectionable. This includes any posts that are aggressive, argumentative, or can be deemed to be bullying. Spamming or the repetition of posts that are unrelated to our page are not acceptable on our page. We try to avoid moderating posts from our followers, except in some instances - for example where posts are offensive, threatening, or include libellous content. We have a duty to protect the wellbeing of our staff and volunteers, so while we try to avoid deleting comments, any post containing a libellous accusation, will be removed. We will also remove any posts that target individual teams or members of staff. If anyone has feedback to share about any individual members of staff or teams, please get in touch with us directly. If an individual continues to post offensive, threatening or libellous content, we will remove them from our page. We do not tolerate posts that are deemed to be racist, sexist or homophobic. We also do not permit posts that support illegal activity, or activities that go against the values of the charity. If you feel that any user content has broken our social media house rules, email us at supportercare@kidneyresearchuk.org. Comments and content posted on our page by our followers are their views and may not represent the views Kidney Research UK.

Kidney disease symptoms aren’t always obvious. They can be subtle, and sometimes confused with other things. Not everyon...
03/04/2026

Kidney disease symptoms aren’t always obvious. They can be subtle, and sometimes confused with other things.

Not everyone notices the same symptoms and many of them can be linked to other conditions. These are just some of the possible signs and others include:

Dry skin or itching
Poor appetite and weight loss
Restless legs and muscle cramps
Headaches
Dizziness or feeling lightheaded
Shortness of breath
Constant tiredness or low energy
Feeling low, irritable or anxious

In Kidneys Unfiltered, people from our community share the symptoms they experienced - but didn’t realise were connected to kidney disease at the time.

If something here feels familiar and you’re experiencing any of these symptoms, listen to your body and speak to your GP.

Visit our website for practical advice and support, and join our Kidney Community to speak to people who understand.

02/04/2026

My name's Johanna.

I was diagnosed with chronic kidney disease at just 3 years old, after my mum spotted someone with similar symptoms to me on a 90's TV show.

I'm sharing my story as part of the Kidneys Unfiltered campaign to support other kidney patients who are going through similar experiences - you should not be ashamed, you are not hopeless and you are definitely not alone.

01/04/2026

What would you say to someone who's just been diagnosed with kidney disease?

31/03/2026

Today we’re launching Kidneys Unfiltered.

Where real, messy and unfiltered stories from the kidney community are taking over our feeds for the whole month.

We’ll be posting honest takes on diagnosis and the moment everything changes, what it’s really like to live with kidney disease, moments of strength in difficult times and hopes for the future of research, awareness and care.

From the meds to the scars, the strength to the fears, the grief to the joy - hear it from the people who are really living it.

If what we post this month resonates and you’re going through it too - we see you.

Follow us and our Kidneys Unfiltered campaign, and share your own kidney truths in the comments with a community of people who understand.

Scotland, we need you to   this election! 🏴󠁧󠁢󠁳󠁣󠁴󠁿We have put together some online tools to make it quick and easy for yo...
30/03/2026

Scotland, we need you to this election! 🏴󠁧󠁢󠁳󠁣󠁴󠁿

We have put together some online tools to make it quick and easy for you to call on your candidates to pledge their support for kidney patients.

Please take just 2 minutes out of your day to take our e-action.

The next government must do more to transform kidney health in Scotland, and you can help make this happen - your voice is truly vital.

On behalf of the estimated 600,000 people living with kidney disease in Scotland, thank you for your ongoing support 💜

Take our e-action now: https://bit.ly/4rY8fMZ

We recently asked our kidney community to tell us what they usually bring in to dialysis with them - take a look at some...
29/03/2026

We recently asked our kidney community to tell us what they usually bring in to dialysis with them - take a look at some of their dialysis essentials!

Dialysis is usually needed when around 85-90% of kidney function is lost. The treatment works by performing about 10% of the work of healthy kidneys.

Dialysis sessions can be extremely tiring and time consuming, as those who require treatment usually attend multiple sessions per week. That's why it's important to come prepared and stay comfortable by bringing your favourite snacks, something to stay warm and whatever activity you prefer to keep busy 💜

27/03/2026

"Kidney disease doesn't just affect one person. It affects families and futures."

Last year, Robert lost his beloved father, Wilson, to kidney disease. This year, he is walking 140,000 steps from London to Brighton to raise money for Kidney Research UK in memory of his father.

Because of people like Robert, we are able to fund vital research which strives towards preventing other people from experiencing the devastating affects of kidney disease.

Thank you, Robert, for sharing your father's story and for supporting our cause💜

26/03/2026

We were blown away by Graham and Ian's incredible living kidney donation story which featured on this morning.

84-year-old Graham Sisson donated one of his kidneys to his son-in-law Ian, making him Britain’s oldest directed kidney donor. He said about his transplant "I could see how rapidly Ian was deteriorating, so I said to my wife one day "I think I'll see if I can do the job"... I never expected it to be so simple!" 💜

Ian said the transplant has made him feel "completely different to where I was" and "a lot more alive and alert".

You can watch the interview on this morning's episode of BBC Breakfast, from 1:18:20, or visit the Donate a Kidney UK website to learn more about what's involved in the donation process and why more living kidney donors are needed.

25/03/2026

Back in December, kidney transplant patient, Deborah Bakewell, celebrated her 15-year kidneyversary. We marked the occasion by reuniting her with the transplant surgeon who changed her life - Professor Michael Nicholson OBE.

In 2010, 70-year-old Deborah became the first person in the world to be given a kidney using normothermic machine perfusion, a technique pioneered by Professor Nicholson himself.

Normothermic machine perfusion is when the donor kidney is connected to a machine that flushes the organ with oxygenated blood, allowing doctors to test whether a marginal kidney is suitable for a patient.

In an emotional reunion at Cambridge University Hospitals NHS Foundation Trust, Deborah described Professor Nicholson as her 'hero' and emphasised how grateful she is to be able to live a 'normal life' again.

To top it off, this week Professor Nicholson attended his OBE ceremony at Windsor Castle, being given the honour in recognition of services to kidney transplantation.

Congratulations Professor Michael Nicholson OBE! 🎉

Just two years ago, 10-year-old Caelan Wright was diagnosed with a rare kidney condition called Dent’s disease, after bl...
24/03/2026

Just two years ago, 10-year-old Caelan Wright was diagnosed with a rare kidney condition called Dent’s disease, after blood and protein were found in his urine.

Caelan's condition has had a huge impact on his life, causing him to miss school to be in and out of hospital, and limiting his ability to take part in the activities he loves, like football, due to a lack of energy caused by Dent's disease.

This Saturday, Caelan will be challenging himself by taking part in the five-mile Peterborough March March alongside friends and family, raising funds for research that could change his life.

He has been working hard to raise money at school, holding a non-uniform day and making a poster about kidney disease which has helped raise more that £900!

Join us this Saturday, 28 March, at Ferry Meadows in Peterborough to march for the future of patients like Caelan! 🏃

Read the full story here: https://bit.ly/4t3JIXK

Journalist, Emma Palmer, was contacted to write a kidney donor appeal for 16-year-old Maya in March 2025 and ended up do...
23/03/2026

Journalist, Emma Palmer, was contacted to write a kidney donor appeal for 16-year-old Maya in March 2025 and ended up donating her own kidney after finding out she was a match.

Maya suffered severe damage to her kidneys following an e-coli infection two years earlier, and successfully received her kidney transplant on 6 January.

Emma explained that one of the reasons behind her act of generosity was her empathy towards Maya's mother, Maria: "As a mother myself I could only imagine what she was going through."

You can read Emma and Maya's full story on the BBC News website here: https://bbc.in/4sA63wu

To find out more about kidney donation, head to Donate a Kidney UK.

What do you wish people better understood about kidney disease?Kidney disease impacts so much more than people often rea...
21/03/2026

What do you wish people better understood about kidney disease?

Kidney disease impacts so much more than people often realise — from physical symptoms and fatigue to emotional and mental wellbeing. Many people are navigating challenges that aren’t always visible.

By talking more openly, we can provide a better understanding, build empathy, and support those affected.

So let's get talking - share your thoughts in the comments below 💜

Address

Stuart House, City Road
Peterborough
PE11QF

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+443003031100

Website

http://en.wikipedia.org/wiki/Kidney_Research_UK, http://www.worldkidneyday.org.uk/, ht

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