European Lung Foundation

European Lung Foundation The European Lung Foundation (ELF) was founded by the European Respiratory Society (ERS) to bring together patients and the public with professionals.

😮‍💨 People often expect breathlessness to be worse than it is.A new study explored whether people with long-term breathl...
14/04/2026

😮‍💨 People often expect breathlessness to be worse than it is.

A new study explored whether people with long-term breathlessness can accurately predict how breathless they will feel during everyday activities.

It found that most participants overestimated their breathlessness, reporting less discomfort than expected during tasks like walking or climbing stairs.

Avoiding activity can reduce fitness and worsen breathlessness over time. Understanding these expectations may help healthcare professionals offer better advice and support.

Read the full summary: https://europeanlung.org/en/news-and-blog/new-study-suggests-people-often-expect-breathlessness-to-be-worse-than-it-is/

European Respiratory Society

🌍 Today is World Sarcoidosis Day!Sarcoidosis is a rare condition that can causes swelling in different parts of the body...
13/04/2026

🌍 Today is World Sarcoidosis Day!

Sarcoidosis is a rare condition that can causes swelling in different parts of the body. It often affects the lungs, but it can also affect the skin, eyes, heart and other organs.

One of the challenges with sarcoidosis is that it can look very different from person to person. Some people may feel short of breath, have a cough, extreme tiredness or notice chest discomfort🫁

Others may have mild or very few symptoms, which can make it even hard to diagnose.

If you or someone you know wants to learn more, visit the ELF website for more information about sarcoidosis, including:

🫁 Symptoms and how the lungs can be affected
🫁 Diagnosis and treatment
🫁 Advice for living well with sarcoidosis

Learn more: https://europeanlung.org/en/information-hub/lung-conditions/sarcoidosis/

🚨 Final chance to apply for Healthy Lungs for Life grants 2026This is the last week you can submit an application for th...
13/04/2026

🚨 Final chance to apply for Healthy Lungs for Life grants 2026

This is the last week you can submit an application for the 2026 Healthy Lungs for Life grants.

Funding is available to support projects that promote lung health, improve air quality, encourage physical activity, increase vaccination awareness and address climate change.

Grants available: €1,000 (Impact) and €5,000 (Enhanced Impact)

📣 The awardees will be announced next month!

📅 Submit your application: https://europeanlung.org/en/projects-and-campaigns/healthy-lungs-for-life/hold-your-own-event/apply-for-a-grant/

Forum of International Respiratory Societies - FIRS European Respiratory Society

❓What are non‑tuberculous mycobacteria (NTM) and are people living with lung conditions at risk?ELF has published a new ...
10/04/2026

❓What are non‑tuberculous mycobacteria (NTM) and are people living with lung conditions at risk?

ELF has published a new resource on NTM lung disease, covering risk factors, symptoms, diagnosis and latest research.

💡 The content was developed with experts from EMBARC, Professor Natalie Lorent and Professor Hayoung Choi, with patient perspectives included through MNT Mon Poumon Mon Air and NTM Patient Care UK.

🔗Learn more: https://europeanlung.org/en/information-hub/lung-conditions/non-tuberculous-mycobacteria-ntm/

📣 There is still time to share your experience of pleural disease!The International Multicentre Pleural Research Collabo...
09/04/2026

📣 There is still time to share your experience of pleural disease!

The International Multicentre Pleural Research Collaborative (IMPACT), supported by the European Lung Foundation, wants to understand what matters most to people affected by pleural disease. Your answers will help guide future research across Europe.

Pleural disease affects the lining around the lungs and can include conditions such as pleural effusion, pneumothorax or mesothelioma. If you or someone you care for has experienced any of these, we would greatly value your input.

The survey:

⏱️ Takes about 15 minutes
📅 Open until 1 May 2026

Take part: https://europeanlung.org/en/get-involved/surveys/pleural-disease-research-a-survey-for-patients-and-carers/

📚 The Bronchiectasis Monograph is now published by the European Respiratory Society (ERS)The patient perspectives chapte...
08/04/2026

📚 The Bronchiectasis Monograph is now published by the European Respiratory Society (ERS)

The patient perspectives chapter, co-authored by ELF and Bronchiectasis Patient Advisory Group (PAG) members, is free to access. This chapter demonstrates how lived experience can inform research and highlight priorities that matter most to patients.

The ERS Monographs are highly regarded, expert-reviewed publications for healthcare professionals. Patient-authored chapters ensure clinical practice and research reflect the priorities of people living with the condition.

🔗 Read the patient perspectives chapter: https://publications.ersnet.org/content/book/monograph/978-1-84984-200-6/chapter/chapter_1

This , the World Health Organization (WHO) is calling on the world to .ELF and European Respiratory Society support th...
07/04/2026

This , the World Health Organization (WHO) is calling on the world to .

ELF and European Respiratory Society support this message because when science is ignored, everyone's health is at risk.

Together we are campaigning to and , standing up for reliable health information and evidence-based policy.

Support the campaign: ersnet.org/advocacy/campaign-defend-science

💡 If your organisation has previously received a Healthy Lungs for Life grant, you may be eligible for an Enhanced Impac...
06/04/2026

💡 If your organisation has previously received a Healthy Lungs for Life grant, you may be eligible for an Enhanced Impact Grant (€5,000) in 2026.

These grants are intended to support projects that have already demonstrated results, helping them reach larger audiences and have greater long-term impact, particularly among children and young people.

📅 Submission deadline: 16 April 2026

Apply here: https://europeanlung.org/en/projects-and-campaigns/healthy-lungs-for-life/hold-your-own-event/apply-for-a-grant/

European Respiratory Society, European Lung Foundation, Forum of International Respiratory Societies - FIRS

📹 The Bronchiectasis Patient Conference 2026 recording is now available!Thank you to everyone who took part in this year...
04/04/2026

📹 The Bronchiectasis Patient Conference 2026 recording is now available!

Thank you to everyone who took part in this year’s event. We are grateful for the contributions from people living with bronchiectasis, carers, patient representatives, clinicians and colleagues from EMBARC.

You can now watch the full event online. The sessions cover:

🫁 What bronchiectasis is and how it affects people
🦠 Infections linked to the condition
🔬 Updates from experts on new research
🌱 Practical tips for living well with bronchiectasis

👉 Watch the full recording: https://youtu.be/91MQRi3As_Y?si=DcLWHj2K8Xl7oFWZ

The ELF lung transplantation survey is still open. As part of the ELF Chair’s Campaign on transplantation, we have worke...
02/04/2026

The ELF lung transplantation survey is still open.

As part of the ELF Chair’s Campaign on transplantation, we have worked with ERN-LUNG - European Reference Network for rare respiratory diseases on this survey, which aims to raise awareness, improve education and advocate for equal access to lung transplantation for people with severe lung conditions across Europe.

We are still keen to hear from:

🫁 People who have received a lung transplant
🫁 People who have been referred, evaluated or are currently on the waiting list
💙 Family members and carers supporting someone through their transplant journey

By sharing your experience, you can help us better understand the current landscape of lung transplantation across Europe and identify areas for improvement.

🗓 Open until 24 April 2026
🌍 Available in 15 languages
🔗 Take part: https://europeanlung.org/en/get-involved/surveys/share-your-experience-of-lung-transplantation-in-europe/

Children and young people spend more time outdoors and are more physically active than adults, which increases their exp...
01/04/2026

Children and young people spend more time outdoors and are more physically active than adults, which increases their exposure to air pollution.

Through , we are raising awareness of this issue among young people, and supporting cleaner, safer environments for children.

Learn how you can support action for clean air 👉 www.lunghealth4life.eu

💬 Join our community: https://europeanlung.org/lunghealth4life/community-of-practices/

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