European Lung Foundation

European Lung Foundation The European Lung Foundation (ELF) was founded by the European Respiratory Society (ERS) to bring together patients and the public with professionals.

Manolis's story from Crete shows how a doctor's recommendation can make all the difference. After 50 years of heavy smok...
31/03/2026

Manolis's story from Crete shows how a doctor's recommendation can make all the difference. After 50 years of heavy smoking, he was worried about his health but unsure what to do. His doctor told him about the SOLACE Project lung screening programme and encouraged him to take part.

His scan was negative for lung cancer, but the scans were able to show another health issue he is now having treated.

Learn about Manolis's story: https://europeanlung.org/solace/2026/03/17/manoliss-experience-of-lung-cancer-screening/

💡 Translations are now available for our Primary Ciliary Dyskinesia (PCD) information page.PCD is a rare genetic conditi...
30/03/2026

💡 Translations are now available for our Primary Ciliary Dyskinesia (PCD) information page.

PCD is a rare genetic condition where the tiny hairs in the airways (cilia) do not work properly, causing mucus to build up and leading to repeated infections.
It affects people in different ways and can sometimes cause long‑term lung or sinus problems, and may also affect fertility.

The updated resource, created with support from BEAT PCD ERS CRC and people living with PCD, includes information on:

🫁 Symptoms and causes
🩺 Diagnosis and long‑term outcomes
💊 Treatment and management options
👥 Experiences from people living with PCD

The page is now available in 9 languages:
🔗 https://europeanlung.org/en/information-hub/lung-conditions/primary-ciliary-dyskinesia-pcd/

🚨 Last opportunity to take part!People living with a lung condition who have taken part in pulmonary rehabilitation in t...
28/03/2026

🚨 Last opportunity to take part!

People living with a lung condition who have taken part in pulmonary rehabilitation in the past 12 months are invited to share their experiences.

A short and anonymous survey aims to understand how rehabilitation teams work together and communicate with people during their rehabilitation. Your insights will help shape improvements in person‑centred pulmonary rehabilitation across the world 🌍

The survey is available in 29 languages, including English, Arabic, French, Spanish, Chinese, Russian and many more, to reach as many people as possible.

🕒 Takes about 10 minutes
📅 Final deadline: 31 March 2026
🔗 https://europeanlung.org/en/get-involved/surveys/experiences-of-pulmonary-rehab/

💡 New ELF resource on non-tuberculous mycobacteria (NTM) now availableNTM are bacteria found in water, soil and dust. Mo...
26/03/2026

💡 New ELF resource on non-tuberculous mycobacteria (NTM) now available

NTM are bacteria found in water, soil and dust. Most healthy people breathe in these germs without becoming ill, as their lungs can clear them naturally. It is more likely to affect people with underlying lung conditions or those with weakened immune systems.

The new resource includes information on:

🫁 Symptoms, causes and risk factors
🫁 Diagnosis and treatment
🫁 Tips for living well
🫁 Research and future developments

📌 Understanding NTM is the first step in managing it. Our NTM resource is online, with translations coming soon.

🔗: https://europeanlung.org/en/information-hub/lung-conditions/non-tuberculous-mycobacteria-ntm/

🙏 This content was developed with input from EMBARC, Professor Natalie Lorent and Professor Hayoung Choi. Patient perspectives were included with support from Mycobactéries Non Tuberculeuses MNT - Association MNT Mon Poumon Mon Air and NTM Patient Care UK

💙 ELF is supporting community voices in tuberculosis researchELF facilitates patient involvement in the UNITE4TB proje...
25/03/2026

💙 ELF is supporting community voices in tuberculosis research

ELF facilitates patient involvement in the UNITE4TB project through a Community Advisory Group (CAG).

The CAG brings together people affected by TB and community representatives to share their perspectives with researchers, helping ensure studies reflect the needs and experiences of those most impacted by the disease.

ELF and members of the CAG will attend the UNITE4TB Annual Meeting in April 2026 to continue strengthening the role of patient voices in TB research.

Learn more about the project: www.unite4tb.org

🫁 Today is World Tuberculosis DayTuberculosis (TB) is a disease caused by a bacterium called mycobacterium tuberculosis....
24/03/2026

🫁 Today is World Tuberculosis Day

Tuberculosis (TB) is a disease caused by a bacterium called mycobacterium tuberculosis. Any organ can be affected by the disease, but the condition is most commonly diagnosed in the lungs.

ELF has created evidence-based resources on TB, which cover:

💨 Symptoms and causes of the disease
💉 Prevention methods and the importance of vaccines
🦠 Treatment options and signposting to further resources

Learn more about the condition this : https://europeanlung.org/en/information-hub/lung-conditions/tuberculosis/

Earlier this year, the US removed the legal basis that air pollution harms health, meaning there is no legal requirement...
23/03/2026

Earlier this year, the US removed the legal basis that air pollution harms health, meaning there is no legal requirement for companies operating there to limit pollution levels.

Air pollution harms the lungs. It can trigger asthma attacks, worsen long-term lung disease, increase the risk of lung infections and cause damage over time. And it does not stop at national borders.

Removing a legal finding does not make the evidence go away. This is why ELF and European Respiratory Society are campaigning to defend science and protect public health: policy must follow the evidence.

Swipe ⬇️ to understand what happened and why it matters. Support our campaign:
https://www.ersnet.org/advocacy/campaign-defend-science/

🌍 How Healthy Lungs for Life grants support local actionAlready, HLfL grants have supported organisations in over 30 cou...
23/03/2026

🌍 How Healthy Lungs for Life grants support local action

Already, HLfL grants have supported organisations in over 30 countries worldwide, helping communities take action for lung health.

✨ Grants are open again for 2026 and we especially encourage applications from countries that have not yet made it onto our interactive map. Your country and community could be next!

Apply now: https://europeanlung.org/en/projects-and-campaigns/healthy-lungs-for-life/hold-your-own-event/apply-for-a-grant/

Get inspired by activities in the Philippines, Nepal, Italy and Cameroon on our events report page: https://europeanlung.org/en/projects-and-campaigns/healthy-lungs-for-life/hold-your-own-event/event-and-grant-reports/

Forum of International Respiratory Societies - FIRS European Respiratory Society

Thank you to everyone who joined us today for the Patient Conference 💙Together with patient speakers, clinicians and r...
21/03/2026

Thank you to everyone who joined us today for the Patient Conference 💙

Together with patient speakers, clinicians and researchers, we explored:
🔬 The latest advances in bronchiectasis research
🧭 The patient journey and daily challenges
🌱 Practical ways to live well with the condition

A special thank you to our Chairs and speakers, the ELF Bronchiectasis Patient Advisory Group and our partners for making this event possible.

📹 Recordings will be available on the ELF website within 2 weeks!

We are halfway through the Patient Conference, with participants joining from around the world 🌍So far, we have explor...
21/03/2026

We are halfway through the Patient Conference, with participants joining from around the world 🌍

So far, we have explored:
🫁 bronchiectasis and the patient journey
🦠 the role of infections, including Pseudomonas, NTM and fungi

… and enjoyed insightful discussions between patients and clinical experts.

Thank you to this morning’s Chairs and speakers! There is still more to come, including sessions on living well with bronchiectasis and discussions on the latest research.

👉 We will be back for session 3 and 4 from 12:35 GMT/13:35 CET. You can join for free: https://us02web.zoom.us/webinar/register/WN_LDBfAN3HTla41Hm1bAlGpw

📣 The free Patient Conference starts in 15 minutes and there is still time to join us!Hear from people living with bro...
21/03/2026

📣 The free Patient Conference starts in 15 minutes and there is still time to join us!

Hear from people living with bronchiectasis, patient advocates and healthcare professionals sharing the latest research, practical advice and real-life experiences.

🕒 Starts at 10:00 CET / 09:00 GMT
👉 Join here: https://us02web.zoom.us/webinar/register/WN_LDBfAN3HTla41Hm1bAlGpw

European Respiratory Society

💬 “TB is curable! Trust yourself and your treatment, take all your medications as your doctor tells you. Ask for help if...
20/03/2026

💬 “TB is curable! Trust yourself and your treatment, take all your medications as your doctor tells you. Ask for help if you feel like you are struggling!”

For this month’s spotlight, we spoke with Stefan Radut, who has lived with TB and is now the General Director of the Association for Supporting MDR-TB Patients in Romania.

Ahead of on 24 March, Stefan shares his journey with multidrug-resistant TB and the challenges he faced during treatment. His experience inspired him to help others affected by the disease.

Read the full interview: https://europeanlung.org/en/news-and-blog/conversation-with-stefan-radut/

European Respiratory Society

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