11/11/2025
In this moving clip from The Lifestyle Prescription with , mother up about the reality of raising her daughter Amber, who lives with Prune 1 Syndrome — a rare and deteriorating genetic condition.
Through honesty and heartbreak, Paven shares what it’s like to watch your child’s abilities fade over time — and how she continues to find strength, purpose, and hope in every moment.
💚 This clip is part of Episode 11: Raising a Child with Prune 1 Syndrome — Parenting, Disability & Hope, available now on YouTube and all major podcast platforms.
🎧 Full episode: https://www.youtube.com/watch?v=NzBrgSwCUz8
👉 Spotify: https://open.spotify.com/episode/5GTV1ZCoL6y7o8RHCU7yMX?si=1uEjUm_4RJ68fbNtrH418A
👉 Apple Podcasts: https://podcasts.apple.com/gb/podcast/the-pharmacy-planet-podcast/id1824147479