PIP - UK Poland Syndrome Support

04/11/2025

A lovely google alert to wake up to this morning.

Congratulations to Bernadette and Eden 💚❤️

https://www.shropshirestar.com/news/local-hubs/bridgnorth/2025/10/31/bridgnorth-sisters-celebrate-both-winning-honours-at-regional-gymnastics-competition/ #

Two young Bridgnorth sisters are celebrating after both taking home gymnastic prizes from a regional competition.

03/11/2025

Wow - what an incredible achievement! 🎉

Aaron was cheered home on Friday evening by lots of friends and family after completing his amazing challenge — 100 kilometres in 31 days, all while juggling work, family life, and the cold, dark, rainy October weather here in the UK!

His dedication and determination to reach both his running and fundraising goals has truly inspired us all.

Thanks to Aaron’s efforts, his fundraising total now stands at £1,715 (and still climbing!) - far surpassing his original goal of £500. 💙

This incredible amount will make a real difference - helping us provide 1:1 support for families at our children’s clinics, resources for parents facing diagnosis, and continue building our peer support community for those living with Poland Syndrome.

A huge thank you also goes to all the friends, family members, and local businesses who cheered Aaron on, donated, and shared his story - your kindness and support mean the world Aaron and to our small charity and the families we serve.

Thank you, Aaron — what a star! 🌟

31/10/2025

Tonight is Aarons last run to reach his 100k running target this October.

What an incredible month and an incredible achievement Aaron, so grateful.

If you are local Aaron will be finishing his final run at Leigh Sports Village around 6.45/7, why not go and cheer him home for his last moments of this challenge.

Thank you all for such incredible support.

https://www.justgiving.com/page/pip-uk-poland-syndrome-charity-aaron

29/10/2025

The final 17k to go by Friday in Aaron’s 100k fundraising challenge.

Aaron has been running all month to meet his target and has absolutely smashed through two fundraising goals and has received incredible support.

Thank you so much to everyone that’s supported so far.

Let’s given Aaron one last wave of support and love from the Poland syndrome community for this last leg!

Thank you Aaron for all your dedication to this challenge and all your support.

https://www.justgiving.com/page/pip-uk-poland-syndrome-charity-aaron

24/10/2025

🌍We’re Back after a summer break and a technical glitch last month! Poland Syndrome Community Connect Sessions – Monthly Online Meetups this weekend 🌍

After the beautiful connections made during PS Fest, we’re so excited to bring back our Online Community Connect Sessions – now happening monthly! 🎉

🗓️ Upcoming dates (7–8 PM UK time):

- Sun 26 October
- Sun 30 November

These relaxed, welcoming Zoom sessions are for anyone impacted by Poland Syndrome, no matter where you are in the world. Come to share, listen, ask questions – or just be in the company of others who truly get it.

🔗 Booking link here: https://tidycal.com/sampipuk/pip-uk-community-connect

Zoom details will be sent after you book!

Tag a friend, spread the word, and mark your calendars 🗓️

Let’s keep the global PS family connected

22/10/2025

This weeks update from Aaron, he is doing amazing and is over the 50 kilometre mark and is receiving tremendous support for his fundraising.

Keep going Aaron, you are inspiring many with this huge challenge and helping support the PIP-UK Poland Syndrome community every step of the way.

Thank you so much to everyone supporting Aaron's fundraiser, so close to the stretch target now!

Support Aaron here: https://www.justgiving.com/page/pip-uk-poland-syndrome-charity-aaron?utm_medium=FA&utm_source=CL

19/10/2025

Friday afternoon was spent supporting one of the final Poland Syndrome children's clinics of 2025.

So great thanks be able to meet new families and share experiences and support and resources

We welcomed two volunteers new to the clinic, Matthew and Rachel. It's invaluable to have the support of adults with PS at the clinics to answer all those questions about growing up, sports, driving, clothes, bras, surgery. Big thanks to Rachel and Matthew.

One thing that is always noticed is how it's the one medical appointment where you don't have to explain Poland syndrome, and that means a great deal as that's a burden we all carry and takes its toll.

The Drs in the clinic are setting the dates for next year and are also really keen to expand the clinic to the North and South of England, so if you know any PS knowledgeable Drs in these areas pls let us know.

10/10/2025

Updates from Aaron over the last few days, making amazing progress and nearly at the 50k mark in his 100k challenge just 10 days into October.

Keep going Aaron, we are all cheering you on!

https://www.justgiving.com/page/pip-uk-poland-syndrome-charity-aaron?utm_medium=FR&utm_source=CL

08/10/2025

Thank you so much to everyone for their wonderful support.

Aaron has completed 23k so far and your support is really keeping him going. Aaron is so blown away he wants to increase his fundraising target to £1,000 to help him on his way to running 100k in October.

From Aaron

"Day 4 I've had a sore hamstring today so I had to walk a bit of it but never the less I got out there and did the miles we have reached my target of £500 but I don’t want to stop there LETS SMASH IT
THANK YOU!! 💚"

https://www.justgiving.com/page/pip-uk-poland-syndrome-charity-aaron

03/10/2025

Day 3 in the wind and the rain done. Well done Aaron!

🤩

https://www.justgiving.com/page/pip-uk-poland-syndrome-charity-aaron?utm_medium=FR&utm_source=CL

03/10/2025

Day 1 and 2 smashed, well done Aaron!

Thanks to everyone that has already supported Aaron. Let's give him a boost of support as he runs through storm Amy this weekend!

01/10/2025

This October, Aaron is taking on an incredible challenge: running 100 kilometres to raise funds for PIP-UK. His motivation comes from a deeply personal place - his child was born with Poland syndrome.

Lets cheer him on and lend any support we can, its a long long way to run!

Aaron says: “My child was born with Poland syndrome, and there is so much unknown about it. I want to make sure that others know they are not alone in this journey.”

Every donation makes a real difference. Please consider supporting Aaron and helping us continue our work with families across the UK.
https://www.justgiving.com/page/pip-uk-poland-syndrome-charity-aaron