Connected - Parent's Support Group for Autistic Teenagers

Connected - Parent's Support Group for Autistic Teenagers Connected is a Warwickshire based support group for parents or guardians of Autistic teenagers.

24/04/2026

Looking forward to starting a new mental health and emotional wellbeing service for children and young people commissioned by Warwickshire County Council from 1 August 2026!

Our partnership includes Coventry, Warwickshire and Worcestershire Mind, Guardian Ballers, the Anna Freud Centre, Relationships Coventry and Warwickshire, and Lifespace Trust – helping build knowledge, skills and confidence around mental health needs and preventing difficulties from developing or escalating.

https://ow.ly/yjBM50YOuOw

Relationships Coventry & Warwickshire
Guardian Ballers UK/
Lifespace Trust
Anna Freud

24/04/2026

Are you a Blue Badge holder visiting one of our hospitals?

A new Blue Badge system will be in place for visitors parking at Warwick, Stratford and Leamington Spa Hospitals from Monday 27 April.

Blue Badge holders can now register their badge for the lifespan of the badge by scanning the QR code or visiting the Smart Parking website here: https://bit.ly/4mL09GG

Once registered, there will be no requirement to scan the badge at the pay station on each visit. Simply arrive, ensure the badge is on display within the vehicle, and leave as required.

Please note: registering your badge is completely FREE. The link or QR code will never ask for your bank details, credit card information or any other payment method.

The previous process of scanning the blue badge at the pay station on each visit will remain in place for visitors who are not aware of this change in process.

21/04/2026

⭐Week one of the Area SEND Inspection is now over so we wanted to provide an update and answer some of the questions you have asked us.

👩🏻‍💻📓✍🏻💡This week is the 'preparation' week and the main task was collating hundreds of documents and data sets from across education, health and social care ('Annex A') and these were all uploaded to a portal for the inspection team to view. The Local Area Self-Evaluation Framework (SEF) document was updated and also submitted.

📋The inspection team identified six children / young people from an anonymised list of all children and young people with SEND in Warwickshire who will be tracked as case studies - we thank the families who have given their consent to be part of this process. These families will have the opportunity to meet with the inspection team to share their experiences.

📋The inspection team also identified five settings that they will visit during the on-site week where they will talk to staff and children / young people about what it is like in Warwickshire. They will also visit health and social care settings.

❓*When is the parent meeting?*❓
There is no public meeting for parent carers in the current Ofsted / Care Quality Commission Area SEND Inspection Framework. As the parent carer forum we will be meeting with the inspection team next week and will share our experiences of coproduction in Warwickshire and share the data / reports we have from families about their experiences.

❓*How do parent carers get their experiences heard?*❓
Parent carers (and children/young people and those working in the system) get their experiences heard is through the survey 💬 https://ofsted.smartsurvey.co.uk/p/AreaSend/10414225 this is open until 9am on TUESDAY 21st April - the more people who complete this the more representative it will be.

You can also add your (recent) experiences to our 💬feedback wall www.padlet.com/warwickshireparentcarervoice/feedback or email us with any information that you think we should share.

❓*What happens next?*❓
Week two is more preparation work with the inspectorsmeeting online with different groups and requesting further information and data following what they have identified as their 'key lines of enquiry' (these are shaped from the survey responses and the information that has been uploaded - the SEF and 'Annex A' - the WPCV Directors have a meeting scheduled with them on Thursday afternoon.

Week three is when they will visit the various settings that they have identified - in this week they will also meet with IMPACT (Warwickshire's Young Person's Forum for SEND). Then there will be a final meeting and then a letter will be sent to the Area Leaders outlining the result later in the year - this letter will be public and we will share it with you when it has been published.

❓*What has WPCV been doing this week?*❓

Our main role for this week has been to share the survey - thank you to everyone who has filled it in and shared it wider in our community.

We have also read through various documents to check that the position of Warwickshire Parent Carer Voice has been reflected accurately.

And whilst some things were cancelled due to the inspection we've been doing our usual work - we sent an evaluation survey to all the schools that have been part of the PINS project so we can develop a plan to continue this work now the project / funding has ended, we've been finalising our 2025/2026 annual report (this will be published next week). We met with the SEND Core Group (senior SEND leads) discussing both the inspection and SEND Reform work, had our regular catch up meeting with the SENDAR leads about any issues / changes, took part in the Mediation Service quarterly monitoring meeting and met to look at improving the information on the Warwickshire SEND Local Offer about the Annual Review Process. We also has some school engagement sessions and our first meeting of our School Parent Champions who will be supporting the continuation of parent carer engagement / coproduction in their schools.

15/04/2026

WARNING THIS IS A HARD WATCH - if you’re not in an emotionally strong place I would avoid it. I am feeling so many emotions watching this - sadness/ anger/ despair / frustration / gratitude for those that speak up ……. SEND Rights Alliance - Rachel Filmer

08/04/2026

Those in my group know I often advise to push back against school giving out detentions, as they simply don’t work and can in fact make the situation worse. Here are some brilliant alternatives I wish all schools would see and adopt for Autistic ( neurodivergent) young people.

I’m sure lots of this resonates. I think a lot about - it doesn’t matter that our kids are not doing exactly what we did...
06/04/2026

I’m sure lots of this resonates. I think a lot about - it doesn’t matter that our kids are not doing exactly what we did when we grew up . That acceptance is so important.

If you, or your family are really struggling right now over the Easter break, I want to share that this is very common for PDAers.

This is when as a PDAer myself, I know that my nervous system is doing exactly what it's designed to do.

My PDA children and I are highly attuned to people, places, and things. I don't miss a single thing. Everything goes in and is processed from a threat perspective.

Energy is my first language before spoken words. We feel into people, we sense shifts in atmosphere and intention that others may not even register. So when holidays come around, it's not just chocolate eggs and time off.

It's a shift in the energy of every person around us. It's routine dissolving and a threat to organic flow. It's the unspoken expectation to enjoy, to be grateful, to participate.

Sometimes it's more people in our space, which means our access to safety is compromised. It's dynamics changing, and our nervous system locks onto every single one of those changes.

I woke up up so tired I could barely function, and I knew why. The changes. My nervous system works in cohesion with my body to create what it believes is safety - be tired, withdraw from perceived threat. I have had to take things very slowly and very gently today.

And here's what's really important to understand: dysregulation isn't just about negative experiences. Dysregulation is anything that shifts us outside of our baseline.
Excitement is dysregulating. Joy is dysregulating. The threat response doesn't discern between excitement and fear. It just responds to escalation in the nervous system.

So if our PDA children are melting down, shutting down, or clinging harder than usual right now, that's not them being difficult. That is panic. That is a nervous system overwhelmed by the sheer volume of change, expectation, and sensory input that holidays bring. This is non volitional.

And if you're a PDA adult barely holding it together this weekend, I see you. We're not broken or weak or needing to build capacity or be more resilient 🤮.
We're highly attuned and that takes an incredible amount of energy to carry.

Here are a few gentle, practical things that help in our family and in my own life:

- In our home, I drop the expectations. If meals happen in the bedroom, that's okay. If meals are the same as every other day, there's a real wisdom in that. Predictability and familiarity are great friends to the nervous system.

- If my children are on a screen all day, that's okay. The screen isn't the problem. It may be the only thing that feels safe, predictable, and non-demanding right now.

- I lean into parallel presence instead of conversation. Just being in the same space without requiring engagement.
A drive with music on. Sitting nearby on my own device. Connection without demand.

This morning we started the day in the same way we start every day - a pot of tea, a game of Uno and Connect Four with some PDA jousting around who will kick whose arse first. This is one of our many anchors across the day to check in and coregulate.

- This is less common now that my children are older, but where my children are escalated, I try to match their energy rather than force calm. That doesn't mean escalating with them. It means meeting them where they are. A strong, steady voice that says "this IS a lot, yes..your big feelings are so smart and protective" will land more than a whisper telling them to calm down.

And if and when they're in shutdown or meltdown, I've learned that making space for that process is more helpful than offering solutions. Additional input in that moment is more for the nervous system to process, which can heighten the threat response.

- As a PDA adult, I meet myself with radical acceptance and not resistance. The more I judge and criticise myself for struggling, the more my threat response escalates.

- I externalise what's weighing on me. I write it down, put it in a note on my phone, close it, and walk away, have a chat out loud with myself or message friends. Getting it out of my head and somewhere else creates just enough psychological distance from the pressure.

- I give myself permission to withdraw. Cancel plans. Keep communication minimal. It’s self preservation.

- I weigh up the cost vs benefit - are we really happy and enjoying the way we're spending our time over the holiday season? What is our true experience of this? Who are we pleasing? What is the cost and is it truly worth going to the local event, family BBQ, etc? We are not our children, and our children are not us. We are living different lives, in different bodies with different wants and needs. Our children aren't necessarily missing out because they're not spending holidays the way we did.

- In the grand scheme of things, all that is life, how important is this?

And if the only thing I can do today is rest, then I rest. Deep rest. That is enough.

While I understand plenty of onlookers might judge us and be all about building capacity and modelling, etc..those same people aren’t bringing their energy around my children - I am. What I carry shows up in my parenting and so I feel a responsibility to be as compassionate and gentle with myself as I am with my children and to say "No thank you" to unsolicited advice, no matter how well intentioned.

I hope you’re able to be gentle with yourselves, with your children and with each other.

KF

03/04/2026

In April and May, the Council for Disabled Children and the Department for Education are partnering to host a series of online and in-person engagement events as part of the SEND Reform: Putting Children and Young People First consultation.

These events are an important opportunity for anyone with an interest in the consultation to share their views on the proposals - including parents and carers, local authorities, schools, early years and further education settings, and social care and health representatives.

Each event will provide an overview of the consultation areas and the vision for reform, followed by breakout groups to discuss key consultation themes – you can choose the groups that are of most interest to you. These breakout sessions will be:

- Working together to respond to needs early
- Parents as partners in the system
- Inclusive mainstream system
- Specialist support and EHCPs
- Support across the whole system and join up between organisations
- Accountability, redress and appeals
- Recording needs across all layers of support

Space at events is limited so that conversations can be meaningful and the content will be the same at each event. Please only register for one of these events, so that as many people as possible can take part.

All dates, details and booking information are available here: https://councilfordisabledchildren.org.uk/work-us/events-training/events-training-calendar/send-reform-putting-children-and-young-people

Supported Internships are a great step forward for some young people with SEND.
30/03/2026

Supported Internships are a great step forward for some young people with SEND.

Today we’re celebrating !

And the amazing achievements of young people with special educational needs and/or disabilities (SEND) across Warwickshire who are gaining new skills, growing in independence and shaping their futures through supported internships. 🙌

Ryan and Luis both completed internship placements at the Crowne Plaza in Stratford-upon-Avon. With hands-on experience and personalised job-coach support, they discovered their strengths, built confidence and progressed into employment and further training.

Their journeys show just what’s possible when young people are given the right opportunities and the right support.

Read their full story and find out how supported internships are transforming futures - link in first comment 👇

21/03/2026

Young people with SEND leading the way in Warwickshire! 🌟

Over the last 12 months, we've spent over 290 hours listening to, learning from and working alongside young people with special educational needs and/or disabilities (SEND) in Warwickshire. 💬✨

Our young people are not only contributing — they’re leading.

IMPACT, our Young Person's Forum for SEND, is enabling young people's voices to shape SEND services in some really important ways:

🗣️ Young people now sit as representatives on the SEND & Inclusion Partnership Board and the Autism Partnership Board, making sure decisions are guided by lived experience.

🎓 IMPACT has been invited back three times to present at the Regional SEND Leadership Course, sharing how youth voice is making a real difference in Warwickshire.

At the most recent session, they presented for a full hour and then confidently answered questions for another 30 minutes. They’ve already been invited to return again!

📄 Young people’s feedback is directly influencing new Education, Health and Care plans. Following their input through the Multi‑Agency Quality Assurance Review Panels (MAQAR), the order of Section A in new plans is changing to better reflect who the young person is — their story, their views, their aspirations.

One of our own IMPACT members has already received a reissued plan written in this new, more person‑centred format. This is a big step forward in making sure young people are truly heard.

We’re so proud of every young person who has shared their time, experiences and ideas. Your voices are driving change, shaping services, and helping make Warwickshire a more inclusive place to grow up. 💛

If you'd like to be part of this change, register your interest today! Check the link in the comments for more info 👇

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Stratford-Upon-Avon

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