10/11/2025
🌿 Medical Gaslighting & Invisible Conditions 🌿
Something that comes up so often in counselling is the experience of not being believed when you’re trying to explain your own body.
People with conditions like Hypermobile Ehlers-Danlos Syndrome (hEDS), chronic pain, fatigue conditions, and other complex or less-visible health issues often find themselves moving through the medical system being told things like:
“It’s just anxiety.”
“Everyone gets tired.”
“You’re very flexible, that’s a good thing.”
“Your tests are normal… so it must be in your head.”
This is not only invalidating — it can be traumatic.
When your pain or symptoms are minimised, dismissed or questioned, it can create:
• Self-doubt (“Maybe I am making a fuss?”)
• Shame (“I should be coping better.”)
• Fear of seeking care (“What if they don’t believe me again?”)
• Emotional exhaustion
• A deep sense of being alone in your experience
This is what many people mean when they talk about medical gaslighting — not that healthcare professionals are deliberately causing harm, but that the impact of being unheard can be profoundly damaging.
And for those with hEDS, symptoms often fluctuate — one day you’re “fine”, the next you can’t walk, breathe comfortably, or sit without pain.
That inconsistency can make others doubt your reality, even when it is absolutely real.
⸻
If this is you — here’s what I want you to hear:
Your pain is real.
Your experience is real.
Your knowledge of your own body is valid.
Your voice deserves space.
You are not being dramatic, difficult, or “too much.”
You are advocating for yourself in a system that can be very hard to navigate — and that is strength, not weakness.
⸻
Ways to support yourself emotionally during medical journeys:
• Bring someone with you to appointments
• Write symptoms down beforehand
• Take photos/videos of flare-ups or mobility issues
• Ask, “Can you explain what you’re basing that conclusion on?”
• Remind yourself: You are allowed to seek a second opinion
⸻
And most importantly:
You deserve care that is compassionate, curious, and without judgement.
Your story matters.
Your pain matters.
You matter.
If you’re navigating this, I see you.
You’re not alone. 💛