Thalidomide Voice

06/12/2025

Due to the pressure of Christmas and work loads we’re delaying the supporters meeting until after the new year. We’ll have a new date soon.

02/12/2025

Hi everyone - Zoom call Thursday 11th December at 6pm UK time. Agenda to follow. Please like and share. Let us know via email info@thalidomidevoice.org if you’d like to join and we’ll send you the link

08/11/2025

We are aware about the online article in the Mail which suggests that Diageo could be a very attractive company to be taken over.

This might have massive ramifications for our community both in terms of opportunity and also of risk.

When Nick Dobrik and Phil Williams were on the NAC they had insisted on the Trust formulating a contingency plan in case of such an eventuality.

Firstly this must be dug up from the Trust’s archives.

And secondly we hope and expect that the Trust will be in touch with all the beneficiaries with a communique reassuring us about the immediate steps they are taking to mitigate the circumstances.

Lastly the ask of Diageo must include all future income stream payments are placed in an escrow account that guarantees those payments being made to the Trust.

29/10/2025

ENGLISH THALIDOMIDERS ONLY - HAVE YOU COMPLETED THE HEALTH GRANT EVALUATION SURVEY? The joint team from RAND Europe and the University of York are undertaking an independent evaluation of the Health Grant (for the English DHSC), and are currently conducting a survey of beneficiaries living in England. Agne and Liz who are leading the research would like to thank everyone who has already completed the survey and let you know that YOU CAN STILL TAKE PART. You can complete the survey in three ways:
1. online by following this link - https://www.smartsurvey.co.uk/s/healthgrant/
2. by telephone - call Liz Newbronner on 01904 321630;
3. and by post - to request a survey form please ring Liz or contact the research team at sociology-thalidomide-study@york.ac.uk
smartsurvey.co.uk
The Health Grant Evaluation survey 2025

Please take a few minutes to take our survey.

29/10/2025

Please take a few minutes to take our survey.

07/10/2025

ENGLISH THALIDOMIDERS ONLY - HAVE YOU COMPLETED THE HEALTH GRANT EVALUATION SURVEY? The joint team from RAND Europe and the University of York are undertaking an independent evaluation of the Health Grant (for the English DHSC), and are currently conducting a survey of beneficiaries living in England. Agne and Liz who are leading the research would like to thank everyone who has already completed the survey and let you know that YOU CAN STILL TAKE PART. You can complete the survey in three ways:
1. online by following this link - https://www.smartsurvey.co.uk/s/healthgrant/
2. by telephone - call Liz Newbronner on 01904 321630;
3. and by post - to request a survey form please ring Liz or contact the research team at sociology-thalidomide-study@york.ac.uk

Please take a few minutes to take our survey.

21/09/2025

Hi folks

Of interest to Thalidomide Trust beneficiaries

There is a webinar with trustees this Tuesday Sept 23rd at 17:30. We would urge as many beneficiaries as possible to attend and make their voices heard. If you haven't reserved your place please email engagement@thalidomidetrust.org

We will have a meeting for supporters and friends the day after so that you can discuss any concerns or issues that arise.

The meeting will be this Wednesday, September 24 at 18:00 UK time. A link will be sent to all participants ahead of the meeting.

Kind regards

Thalidomide Voice

10/08/2025

Hi folks, it's high summer and it's high time we put out a newsletter. Here it is – enjoy reading and please help us to further our campaign by paying particular attention to Mikey Argy's article:

https://translate.google.com/translate?js=n&sl=auto&tl=en&u=https://cloudhost.email/w/j1kxGaYc3FBqM5i3v0wzrw

25/05/2025

Hi everyone - Zoom call for our friends and supporters this TUESDAY MAY 27 at 18:00 🕕 UK time. Agenda and link to follow. Lots to talk about. Pls ❤️ and share.

30/03/2025

Supporters & Friends:

Thalidomide Voice will be holding a Zoom call this WEDNESDAY APRIL 2 at 18:00 UK time.

Please email info@thalidomidevoice.org for the link. 🔗

Agenda to follow. Speak soon.

Please share.

Geoff
Mikey
Nick
Guy
Rowland

13/02/2025

LAST CHANCE:
Beneficiaries of the UK Thalidomide Trust have until tomorrow to complete the feedback survey. Make your voice count - complete it and send it in.