UK MS Register

28/04/2026

Our colleague Rory at the MS Tissue Bank ran the London Marathon last weekend....dressed as a brain! 🧠

Rory has raised an incredible amount of money for the MS Society UK and there is still time to donate via the JustGiving page 👇

Help Rory Turkmen Smith raise money to support Multiple Sclerosis Society

24/04/2026

We're wrapping up with some more fantastic feedback from our participants.

There's never been a better time to join the UK MS Register and start contributing your experiences to research.

Find out more: ukmsregister.org/Account/Register

22/04/2026

It's and we are marking the occasion with a new blog now available on our website.

This time we hear from Register participant Rachael on how taking up fitness and getting involved in MS research has helped her regain a sense of control following diagnosis.

Read Rachael's story here:

When Rachael was diagnosed with MS in May 2022, the news felt overwhelming and at first, she chose not to tell anyone. Processing the diagnosis privately, she searched online for information and stories from others living with MS. But instead of reassurance, she often struggled to find positive or h...

20/04/2026

This we celebrate the power of patient informed research — and the people behind it.

The work of the UK MS Register couldn't happen without our participants sharing their experiences, and helping shape our understanding of multiple sclerosis.

If you’re living with MS, this could be your moment to make a difference. Take this opportunity to explore how you can get involved and be part of something bigger: ukmsregister.org

17/04/2026

Some of the Register team are travelling to Manchester this weekend to be a part of this MS Information Day 🤩

Thank you Greater Manchester South West MS Society for inviting us along - it looks like it's going to be a great event! 🧡

SALFORD, GREATER MANCHESTER – The MS Society is inviting the local community to a multiple sclerosis (MS) Information Day held at the Copthorne Hotel in Salford Quays on Saturday, 18 April 2026. The event will feature special guest and MS Society Ambassador Kerry Riches who made history in 2023 as...

01/04/2026

Good wishes for Spring from all of us at the UK MS Register 🐣🌷

Our offices will be closing today, 1st April at 4pm, and reopening at 9am on Wednesday 8th April.

If you contact us during this time we may be a little slower than usual in responding, but will get back to you as soon as we can 🙏

27/03/2026

New study now recruiting 📣

PhD researcher Richard Edwards from University of Wolverhampton is currently looking for participants to take part in his study. Richard is looking into time to MS diagnosis and the effect waiting times have on patients. Participants can take part remotely.

If this sounds of interest to you, please contact Richard for more information: r.c.edwards2@wlv.ac.uk

25/03/2026

The team are in Sheffield today at the EuroQol UK & Ireland Regional Meeting 2026.

UK MS Register clinical lead, Dr Richard Nicholas, is presenting the work we have been doing on the EQ-5D questionnaires.

24/03/2026

The Register team have just returned from the Multiple Sclerosis Trust conference in Leicestershire.

As in previous years this proved to be a fantastic opportunity to share the work of the Register and connect with a wide variety of people within the MS world. We were proud to showcase our research though our posters and presentations, and welcomed so many engaged visitors to our stand. 👋

It was also a pleasure this year to share a stand with the MS Pregnancy Register😊 Thank you MS Trust team for another great conference! 🎉

24/03/2026

Patient registries may sound technical, but they are actually one of the easiest ways people living with a long-term condition can get involved in research. By sharing their own experiences of everyday life, either directly or via their healthcare team, they can help researchers find answers to ques...

20/03/2026

Congratulations to UK MS Register senior analyst Dr Jeff Rodgers who is today showcasing his work at Brain Conference 2026 in London🙌

Jeff has been studying Register data and is presenting a poster titled 'Emulating a pseudo-trial of Baclofen and Sativex for MS spasticity using the UK MS Register'.

We could not do this work without our amazing community of people with MS who contribute to the Register - thank you 🎉🥰

19/03/2026

Did you know that the UK MS Register host the expression of interest for the Octopus trial? This is a revolutionary trial that will transform the way we test treatments for Progressive Multiple Sclerosis (MS).

You can read the latest update from the trial here:

We know many of you have been waiting a long time. We are very grateful for your patience and for staying with us. Your support helps make this trial possible. Thank you to those of you who gave us feedback via the Octopus Waiting List Survey. We are currently reviewing your feedback and will use