UK MS Register

27/03/2026

New study now recruiting 📣

PhD researcher Richard Edwards from University of Wolverhampton is currently looking for participants to take part in his study. Richard is looking into time to MS diagnosis and the effect waiting times have on patients. Participants can take part remotely.

If this sounds of interest to you, please contact Richard for more information: r.c.edwards2@wlv.ac.uk

25/03/2026

The team are in Sheffield today at the EuroQol UK & Ireland Regional Meeting 2026.

UK MS Register clinical lead, Dr Richard Nicholas, is presenting the work we have been doing on the EQ-5D questionnaires.

24/03/2026

The Register team have just returned from the Multiple Sclerosis Trust conference in Leicestershire.

As in previous years this proved to be a fantastic opportunity to share the work of the Register and connect with a wide variety of people within the MS world. We were proud to showcase our research though our posters and presentations, and welcomed so many engaged visitors to our stand. 👋

It was also a pleasure this year to share a stand with the MS Pregnancy Register😊 Thank you MS Trust team for another great conference! 🎉

24/03/2026

Patient registries may sound technical, but they are actually one of the easiest ways people living with a long-term condition can get involved in research. By sharing their own experiences of everyday life, either directly or via their healthcare team, they can help researchers find answers to ques...

20/03/2026

Congratulations to UK MS Register senior analyst Dr Jeff Rodgers who is today showcasing his work at Brain Conference 2026 in London🙌

Jeff has been studying Register data and is presenting a poster titled 'Emulating a pseudo-trial of Baclofen and Sativex for MS spasticity using the UK MS Register'.

We could not do this work without our amazing community of people with MS who contribute to the Register - thank you 🎉🥰

19/03/2026

Did you know that the UK MS Register host the expression of interest for the Octopus trial? This is a revolutionary trial that will transform the way we test treatments for Progressive Multiple Sclerosis (MS).

You can read the latest update from the trial here:

We know many of you have been waiting a long time. We are very grateful for your patience and for staying with us. Your support helps make this trial possible. Thank you to those of you who gave us feedback via the Octopus Waiting List Survey. We are currently reviewing your feedback and will use

13/03/2026

Great to be asked to be involved in this blog from the European Committee for Treatment & Research in Multiple Sclerosis team!

Follow the link to read what Register lead Dr Rod Middleton has to say about patient registries and their importance in real-world research.

Patient registries may sound technical, but they are actually one of the easiest ways people living with a long-term condition can get involved in research. By sharing their own experiences of everyday life, either directly or via their healthcare team, they can help researchers find answers to ques...

08/03/2026

Happy International Women’s Day 2026! 💜

At the UK MS Register, we’re proud to work alongside so many incredible women — members of the MS community, researchers, clinicians, and colleagues, just some of whom are pictured below.

Today we celebrate your achievements, and the impact you continue to make in improving understanding and support for people living with MS.

Thank you for everything you do. 🌟

04/03/2026

🌸 Our Spring questionnaires are now live on the UK MS Register!

If you’re living with MS, your experiences matter. By taking part, you’re helping to shape research, improve understanding, and make a real difference to the MS community. Log into your account here: https://ukmsregister.org/Account/Login

Haven’t signed up yet? It’s quick and easy to get involved — simply visit our website to register and take part: https://ukmsregister.org/Account/Register

Thank you for being part of the MS Register community 💛

11/02/2026

Today is International Day of Women and Girls in Science, a time to acknowledge and celebrate the women and girls shaping the future of science. 🔬✨

At the Register, we’re committed to amplifying diverse voices in STEM, highlighting the groundbreaking work being carried out by women, and supporting the next generation of female researchers 🙌

06/02/2026

Living with MS in the UK?
You’re not alone — and your experience matters.

By joining the UK MS Register, you can help improve understanding, care, and research for people with MS now and in the future.

You can join if you:
✔ Live in the UK
✔ Are 18 or over
✔ Have a confirmed MS diagnosis

Add your voice: https://ukmsregister.org/Account/Register

26/01/2026

New study from researchers at University of Birmingham looking into the experiences of pregnant women with MS.

More details below 👇