UK MS Register

19/12/2025

Our offices will be closing from 4pm today and re-opening on Monday 5th January 2026.

Thank you to our participants and collaborators for all your support during 2025. Wishing you a Merry Christmas, and a happy and prosperous New Year 🎉

19/12/2025

What a fantastic way to end another year of the UK MS Register, hosting a group of MS Society Cymru staff, volunteers and fundraisers on a festive visit to our offices 🎄

We welcomed the group to Swansea University this week for a tour of the MS research labs with Dr Owain Howell, followed by a talk from Register PI Dr Rod Middleton.

Thank you to Ceri Ms-Society for helping organize this visit, and to Dr Howell and his students for providing such a fascinating explanation of the MS research currently being undertaken at Swansea 🔬

08/12/2025

Congratulations to Jess Smith and the team at Convey Law for raising over £6k for the MS Society 👏 🙌

We were delighted to welcome Jess and her father Mike to Swansea University back in August as part of an MS research visit, in partnership with the MS Society Cymru.

The funds raised by Jess and her team are vital for the work of the MS Society UK, and the UK MS Register, who are funded by the charity 🧡

Convey Law have raised a £6,609 for MS Society Cymru following months of fundraising activity, including their August Waggy Tails Walk at Kenfig Nature

08/12/2025

27/11/2025

There's a fantastic new blog post available on the MS Society UK website written by volunteer Susan.

Susan has completed some very impressive fundraising challenges for the charity over the last few years. She is also a participant on the UK MS Register, and a valued member of our Patient and Public Involvement group - the Brainstormers.

Read Susan's blog here 👇🧡

Susan reflects on the variety of volunteering she’s done with us, at both a local and national level. And shares the thrill of her recent skydive in aid of our Stop MS Appeal.

24/11/2025

PhD researcher Hannah Hollinger, from the University of Highlands and Islands, is currently recruiting to her study. The study involves an online survey that can be completed by individuals living with MS with the following eligibility criteria:

- RRMS
- Experience heat sensitivity
- Using a method of cooling
- Over 18
- Access to internet

If you have RRMS and currently use a method of cooling yourself please contact hannah.hollinger@uhi.ac.uk directly if you would like more information. Please also feel free to share this post with anyone who you think may be interested.

21/11/2025

UK MS Register lead Dr Rod Middleton is in London today at the National meeting of the ACORD Collaboration.

The ACORD Collaboration is made up of a variety of groups currently developing, running and reporting Multi-Arm Multi-Stage (M**S) platform trials in neurodegenerative conditions, such as , Parkinson's and Dementia.

Today's meeting was a great opportunity to hear updates on current M**S platform trials (such as Octopus), and also to learn about exciting innovations in neurodegenerative clinical trials.

19/11/2025

Earlier this month Rod from the Register joined MS-UK for an online information session. Attendees heard about the activities of the Register, and were also able to ask questions about how to get involved. You can read more about the event, or sign up to watch the recording, by following the link below.

Thank you MS-UK for inviting us along! MS-UK offer lots of different online activities tailored for people living with MS - visit their website to learn more: ms-uk.org
https://www.ms-uk.org/ms-register-introduction-session/

Our MS Register introduction session will explain how it works, and share how this valuable resource is helping shape the future of MS.

17/11/2025

This morning the UK MS Register team are hosting a Data Workshop at our offices in Swansea University. Here's project PI Dr Rod Middleton giving a brief overview of the Register, and explaining to our students how we use MS patient data for research.

We will be running more events like this next year, so if you are interested in learning techniques for using big data for research, please get in touch: researcher@ukmsregister.org

12/11/2025

We are very much looking forward to attending this MS Information day in Wrexham later this month 😊

It looks like a great opportunity to hear about the support on offer from the MS Society and learn about the latest MS research. Register below to reserve your spot 🧡

https://www.eventbrite.co.uk/e/ms-information-day-wrexham-flintshire-friday-28th-november-2025-tickets-1635260300579

31/10/2025

We have a number of new blogs available on our website 📣

In our most recent post we hear from Professor Klaus Schmierer at Queen Mary University of London about the AttackMS trial which has recently reopened.

This trial is the first study to treat individuals with suspected MS at the first demyelinating event. Read more here 👇

A UK clinical trial is testing whether rapid treatment with a highly effective multiple sclerosis (MS) drug (within just two weeks of the first presentation) could change the course of the disease. The AttackMS trial, led by Professor Klaus Schmierer at Queen Mary University of London, is the first....