UK MS Register

UK MS Register We are a ground-breaking research study designed to increase the understanding of living with MS in the UK. We urge everyone with MS to join us.

The UK MS Register which has been jointly developed by researchers at Swansea University College of Medicine and the UK MS Society is designed to provide a more accurate picture of the impact of MS in the UK. This globally unique research tool is the world’s first, for any condition, to combine anonymous and confidential information from patients, with clinical data and routine NHS information. The MS Register could have a profound effect, and transform the delivery of care and services for people with MS. The Register could
• Revolutionise the focus of MS research, opening new avenues to explore
• Get more accessible and targeted clinical trials for people with MS
• Get new and highly accurate evidence to present to government
• Get more targeted funding and support for people with MS
• Support future research into cause and cure

But the Register will only work if enough people with MS take part. You can be a part of the big picture, by putting MS on the map. Find out more and join now on our UK MS Register app or visit our website www.ukmsregister.org


UK MS Register feature on the BBC Website http://www.bbc.co.uk/news/uk-wales-13491173

Read Issue 1 of our newsletter January 2013 - http://www.ukmsregister.org/Newsletter/Read/Facebook/1

This morning the UK MS Register team are hosting a Data Workshop at our offices in Swansea University. Here's project PI...
17/11/2025

This morning the UK MS Register team are hosting a Data Workshop at our offices in Swansea University. Here's project PI Dr Rod Middleton giving a brief overview of the Register, and explaining to our students how we use MS patient data for research.

We will be running more events like this next year, so if you are interested in learning techniques for using big data for research, please get in touch: researcher@ukmsregister.org

We have a number of new blogs available on our website 📣 In our most recent post we hear from Professor Klaus Schmierer ...
31/10/2025

We have a number of new blogs available on our website 📣

In our most recent post we hear from Professor Klaus Schmierer at Queen Mary University of London about the AttackMS trial which has recently reopened.

This trial is the first study to treat individuals with suspected MS at the first demyelinating event. Read more here 👇

A UK clinical trial is testing whether rapid treatment with a highly effective multiple sclerosis (MS) drug (within just two weeks of the first presentation) could change the course of the disease. The AttackMS trial, led by Professor Klaus Schmierer at Queen Mary University of London, is the first....

24/10/2025
The UK MS Register team are finishing the week on a high at the MS Society Cymru Living Well Day in Cardiff! 🎉 The event...
24/10/2025

The UK MS Register team are finishing the week on a high at the MS Society Cymru Living Well Day in Cardiff! 🎉

The event has had a fantastic turnout with more than 70 people here so far. Talks today cover everything from MS research, diet, financial support and mental health.

Thanks to the Cardiff and Vale University Health Board and the MS Society UK for hosting this brilliant event 🙌

The MS Society UK 2026 grant rounds are now open for applications! 📣 Researchers can choose to apply for a range of awar...
21/10/2025

The MS Society UK 2026 grant rounds are now open for applications! 📣

Researchers can choose to apply for a range of awards including Catalyst, Project, Career Development and Data Discovery Awards 🏆

The MS Society is the largest charitable funder of MS research in the UK. The UK MS Register can be used by researchers applying for any of these Awards. If you want to learn more, or know of an MS researcher who is looking for funding then visit the MS Society website:

We're the largest charitable funder of MS research in the UK. Find out more about our application and review process.

📣 Today we’re at ECTRIMS Patient Day in Barcelona! The Register are proud to be a supporting partners of this important ...
26/09/2025

📣 Today we’re at ECTRIMS Patient Day in Barcelona! The Register are proud to be a supporting partners of this important event, which brings people affected by MS together with researchers, clinicians, and organisations from across the world 🌍

We’re here to listen, share, and connect — and to keep championing the role of real-world data and the MS community in shaping the future of research. If you're attending, come and say hi! 👋

In case you missed it, the UK MS Register has been part of the   2025 conference in Barcelona this week 🇪🇸Our team has b...
26/09/2025

In case you missed it, the UK MS Register has been part of the 2025 conference in Barcelona this week 🇪🇸

Our team has been busy presenting research through posters, ePosters, and talks, helping to highlight the importance of real-world data and the voices of people living with MS.

A huge thank you to everyone who takes part in the UK MS Register – none of this would be possible without you. Your contributions are helping move MS research forward and making a real difference.

We've had an incredibly busy and inspiring few days as exhibitors at the ECTRIMS 2025 conference in Barcelona! 🇪🇸🌍The UK...
25/09/2025

We've had an incredibly busy and inspiring few days as exhibitors at the ECTRIMS 2025 conference in Barcelona! 🇪🇸🌍

The UK MS Register team has been working hard to share the important role your data plays in MS research. From chatting with researchers and clinicians from around the world, to showing how your experiences are helping shape better care and understanding of MS – it's been non-stop!

Thank you to everyone who continues to take part in the Register – none of this would be possible without you. 💙

17/09/2025

We’re looking for Elected Trustees to join the MS Society Board.

We’re keen to broaden the experience and thinking on our Board. We welcome applications from anyone who can bring fresh perspectives. And if you have lived experience of MS, particularly of more advanced MS, your insight would be invaluable.

You don’t need to have been on a Board before. We’ll share the interview questions in advance. And our recruitment team welcomes you to contact them about the role before applying. If you are appointed, we'll support you with a comprehensive induction. And you’ll be paired up with an experienced Trustee buddy. They’ll help you learn how things work in the boardroom.

Find out more: https://mssoc.uk/46Ghsly

🎉 We're exhibiting at   in Barcelona, 24th - 26th September!If you are visiting please come and say hello 👋 Whether you'...
16/09/2025

🎉 We're exhibiting at in Barcelona, 24th - 26th September!

If you are visiting please come and say hello 👋 Whether you're a researcher, clinician, or part of the MS community, we’d love to talk MS research.

📍 Stand N14, NPO Village
📅 ECTRIMS Congress, Barcelona
🔍 Let’s connect and make sense of MS!

Could a citrus extract improve Cognition and Fatigue in Multiple Sclerosis (MS)?A team from Swansea University are condu...
15/09/2025

Could a citrus extract improve Cognition and Fatigue in Multiple Sclerosis (MS)?

A team from Swansea University are conducting research on the effects of citrus extract supplementation on cognition and fatigue in people diagnosed with Relapsing Remitting Multiple Sclerosis (RRMS).

If you have RRMS and would like to register your interest to take part in this study please follow this link: https://research.sc/participant/login/dynamic/96F5A07C-108E-4576-B01B-86F6FC57A6EA

Address

Data Science Building, Swansea University Medical School
Swansea
SA28PP

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