OUCH (UK) - Cluster Headaches

18/11/2025

This year's OUCH (UK) Christmas cards have been so popular we quickly sold out of the first batch! Make sure you get yours - only £4 for a pack of 8. Raise awareness with our beautiful cards.
To purchase:

https://ouchuk.org/product/christmas-cards-0

13/11/2025

Shopping online this festive period? Raise free donations for OUCH (UK) when you shop 6,000+ stores online using Give as you Live Online! >

Shop online with Give as you Live Online and raise a money for OUCH (UK) the simple way.

04/11/2025

In case anyone missed it, here are the slide presentations from our June conference in Newcastle.

A huge THANK YOU to everyone who attended our conference on Sunday 8th June at the RVI in Newcastle and helped make it such a success. We'd also like to thank our sponsors, electroCore, for their generous support. Last but not least, to all our speakers on the day - thank you for your continued and valued support, expertise and advice. We really couldn't do it without you.

As promised we have added all the conference presentation slides to our website, Simply select the Meeting Presentations section on the Downloads page and they are all there as follows in PDF format:

Session 1. An overview of the diagnosis and treatment of Cluster Headache and The Trigeminal Autonomic Cephalgias by Dr Nicholas Silver, Consultant Neurologist, The Walton Centre, Liverpool.

Session 2. OUCH - Objectives and Initiatives by Dale Nolan, Trustee, OUCH, and Professor Peter Goadsby, Consultant Neurologist, King's College Hospital, London, Patron and Chair of OUCH (UK).

Session 3. Oxygen Therapy in Cluster Headache by Val Hobbs, Trustee, OUCH.

Session 4. Occipital Nerve Stimulation by Dr Ashish Gulve, Consultant in Pain Medicine, The James Cook University Hospital, Middlesbrough.

Session 5. My Journey through Cluster Headaches by Colin Simpson, Cluster Headache Sufferer. See also video below.

Session 6. Conference Keynote & Current Initiatives with: Professor Peter Goadsby, Consultant Neurologist, King's College Hospital, London, Patron and Chair of OUCH (UK), Dr Diana Wei, Consultant Neurologist, Senior Lecturer, Kings College Hospital, Dr Ravindra Inaththappulige.

You can also watch the video of Colin Simpson's journey with CH and Occipital Nerve Stimulation.

We hope you find these resources useful, they are very helpful to refer to when there was so much to take in on the day.

Best wishes
The Team at OUCH(UK)

https://ouchuk.org/news/view-slide-presentations-our-newcastle-event

04/11/2025

Win a £150 donation for your chosen charity! 🥳

To enter, complete a donation-raising shop via Give as you Live Online before midnight on Sunday 9th November > https://give.as/WHVQz

26/10/2025

We hope the problems with payments via the website have been resolved but please contact us if you do have any difficulties with payments.

24/10/2025

We're sorry we are unable to process payments through the OUCH (UK) website at present but we hope this issue is resolved very soon.

17/10/2025

Our beautiful OUCH (UK) Christmas cards have arrived and are now available to purchase:

https://ouchuk.org/product/christmas-cards-0

15/10/2025

Wow! Look at the length of Tracy's hair now! You may remember Tracy Wakefield shaved her head on New Year's Eve and planned to grow it until this New Year's Eve then have it shaved again. Due to travel plans at New Year Tracy is now bringing the head shave forward a few days to a week but it's definitely coming off!

If you can donate to Tracy's fundraiser you can do so via her 3 event challenge link:

Any amount is very much appreciated!

https://ouchuk.org/civicrm/pcp/info?reset=1&id=18

08/10/2025

Join OUCH (UK).

Our subscribed members, fundraisers and generous donors are vitally important to our charity. OUCH (UK) receives no government funding and relies on fundraising, membership subscriptions and donations to operate. The OUCH Advice Line is available free of charge and there is a wealth of information on our website with downloads available to print, plus access to read forum discussions.

You can help support OUCH with membership and fundraising events. Fundraising could be anything you like - a coffee morning, a climb, a run, an obstacle course, etc. You can create your own Personal Campaign Page on our website which means any funds raised come straight to OUCH.
The fundraiser fills in the details of their fundraising activity, funds target, optional thermometer, honour roll text, image etc.
If you are interested in taking part in an event to support OUCH, or have already registered for one, contact info@ouchuk.org for information/assistance to set up your Personal Campaign Page.
We are grateful for any funds raised so that we can continue running our Advice Line, keep our website updated, arrange conferences and print awareness booklets, leaflets and flyers. We hope to hear from some of you soon with your fundraising ideas.

You can join OUCH (UK) as a subscribed member for only £13 a year. There are members on the website forums who would love to hear from other sufferers 👍Join here:

Raising general awareness of cluster headache and offering support and guidance through our helpline and user forum

25/09/2025

Help Aaron Dodwell to raise funds in memory of his sister, Aneeka, who is remembered always in the cluster headache community. Here's his story:

Aaron's story.
I'm raising £800 to support the family of Andy McGuinness and to raise money for cluster headache awareness.

Thanks for taking the time to visit my JustGiving page.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, I will withdraw funds directly. It's the most efficient way to donate and saves time and costs.

On Sunday October 5th I'll be running my first ever marathon in Chester. It's something I've wanted to do for a long time. I want to raise money for two reasons, I lost my sister 8 years ago she suffered with mental health and depression but she also suffered with cluster headaches. These headaches are called su***de headaches, the pain is absolutely horrific and eventually it gets too much to live with, I just want to raise more awareness.

I also want to raise money for the family of Andy McGuinness. Andy passed away on September 4th after a couragous battle in hospital. This was devastating for the family, a lad who had a passion for fitness, walking, hiking, running, swimming and cycling would make this marathon look easy, after all he was Mr Ironman. "Andy's dad, Paul, has asked that the money I raise will be donated to charities that are close to their family's heart, in Andy's memory." This will include Hafod ( mental health ) the ambulance service and the police. I also want them to keep some money to help with funeral arrangements but again this is up to the family.

When I lost my sister Paul and his family were always there for me, I struggled with mental health and gambling at the time and Paul was always there to help me when I needed it, I will never forget that and I just want to give something back now.

Thank you for reading my page. If you can donate anything it would mean the world to me.

Time to get my running trainers on and I'll run my heart out.

Thank you

Iʼm raising money to Support the family of Andy McGuinness and to raise money for cluster headache awareness. Support this JustGiving Crowdfunding Page.

23/09/2025

Edward's 400k steps in October.

Edward Nesbitt has set up this fundraiser for next month - let's support his efforts:

"This October for my birthday month I will be aiming to walk 400,000 steps in order to raise some funds for OUCH UK. This charity offers free advice and help for people who have been diagnosed or may need help regarding Cluster Headaches. The main purpose of this is to raise essential funds and also raise awareness for this cause. Any donation big or small will be helpful towards my target. Thank you for reading this and please if you can't donate a share will go a long way."

Here's the link to donate to Edward's fundraiser:

Raising general awareness of cluster headache and offering support and guidance through our helpline and user forum

22/09/2025

Your online shopping could raise DOUBLE the normal donation thanks to our friends at . It's completely free to use - just click, shop and raise > https://www.giveasyoulive.com//charity/ouchuk?utm_source=charitytoolkit&utm_content=245971&utm_medium=post&utm_campaign=doubledonationssep25