Phaeo Para Support UK

Phaeo Para Support UK PPSUK is a part of AMEND

Phaeo Para Support UK provides information and support to anyone living in the UK affected by phaeochromocytoma and paraganglioma tumours and inherited syndromes (PPGL).

Good luck to our two runners in this Sundays Great North Run. Carly and Martin are taking on the worlds biggest half mar...
04/09/2025

Good luck to our two runners in this Sundays Great North Run. Carly and Martin are taking on the worlds biggest half marathon and raising funds for AMEND.

They will be joining 60,000 other runners on the 13.1-mile journey from Newcastle upon Tyne to the stunning South Shields coastline.

Best of luck from all of us at AMEND, we hope you enjoy the day and can’t wait to hear how it goes.

If anyone would like to sponsor Carly and Martin and hear a little bit more about why they are running here is a link to their fundraising page:
https://www.totalgiving.co.uk/mypage/carlymartin

🏃‍♀️🏃‍♂️👟🎽🤞

Our next in person peer support meeting is being held on Saturday 27th September from 12– 2pm at The Curious Cow, Killin...
03/09/2025

Our next in person peer support meeting is being held on Saturday 27th September from 12– 2pm at The Curious Cow, Killinghall, Harrogate, HG3 2AP

Join our volunteer, Emily for 2 hours of informal discussion and peer support. These meetings are very informal and supportive. Anyone affected by MEN or PPGL syndromes can attend. Patients, family, carers, friends – all are welcome!

One recent attendee of a peer support meeting said, “Amazing to get the chance to talk to people about my daughter’s condition and get some real-life answers from them. Really well ran by the volunteers and everyone was included in the discussions”.
Why not come along and meet others who know how you feel?

Please register for the meeting using the following link.
https://www.amend.org.uk/patients/amend-support-services/events/regional-events/

Our next online peer support meeting is scheduled for Thursday 7th August 7-9pm. Please come and join our volunteer Char...
29/07/2025

Our next online peer support meeting is scheduled for Thursday 7th August 7-9pm. Please come and join our volunteer Charmaine for 2 hours of informal chat and meet others in similar circumstances.

If you are in any doubt about signing up here are a few recent comments from meeting attendees:

‘It was so wonderful to connect with others who understand’

‘This was my first meeting. I found Charmaine very helpful, sympathetic, and knowledgeable. It was good to know there is a support network’

‘It was very uplifting to be able to connect with others going through similar challenges. Gill was very welcoming and accommodating, she opened conversations and made everyone feel comfortable sharing their stories. Really well done’

Don't forget to book your place!
https://www.amend.org.uk/patients/support/events/regional-events/

It's good to talk!

Address

Tyler House, 58-66 Morley Road
Tonbridge
TN91RA

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