Association for Multiple Endocrine Neoplasia Disorders - AMEND

18/12/2025

16/12/2025

Draw takes place tomorrow, Wed 17 Dec! Buy now at https://www.amend.org.uk/product/barri-affle-ticket/

09/12/2025

'US deal secures UK’s medicines access and supply for tens of thousands of NHS patients, with a wide range of ground-breaking new treatments to reach NHS front-line quicker'

https://www.gov.uk/government/news/landmark-uk-us-pharmaceuticals-deal-to-safeguard-medicines-access-and-drive-vital-investmentfor-uk-patients-and-businesses

29/11/2025

This year we have a new online way to give to AMEND, where you can donate any amount and "decorate" a virtual Christmas tree by choosing a light, bauble, or gift. Show your support this festive season by donating via our tree.

Donate any amount and "decorate" our virtual tree by choosing a light, bauble, gift or even the star on the top! You can leave a message to a loved one and a photo if you wish. Your contribution will be showcased on the tree, spreading cheer and inspiration to all who visit.

You can also send your loved one an e-card to see their Christmas Message on our tree and let them know you are thinking of them.

Donate here!
https://visufund.com/amend-christmas-tree-fundraiser
🎅🌲🎁

28/11/2025

‘Barry’ and ‘Barrioke’ lovers get your raffle tickets now! Our Celebrity Patron, Shaun Williamson, has agreed to record a festive, personalised, Christmas shout-out for the winner of our Christmas raffle - now nicknamed our Barri-affle! Enter now to be in with a chance to win a message for you, your loved one, or even your whole family!

You have until midday on Wednesday 17th December to buy your tickets, and the draw will take place later on the same day with the winner notified immediately. Tickets are £5 each. AMEND will coordinate your request with Shaun.

Buy tickets here https://www.amend.org.uk/news/

🎅🌲🎁

27/11/2025

PLEASE READ!
With Black Friday and Christmas rapidly approaching many of you will be making a lot of online purchases over the coming weeks.

You can do something extraordinary, by doing the ordinary - shopping online. No extra time, no extra effort, no extra cost.

When you shop online with participating retailers, they'll donate part of what you spend to your chosen cause. Whether you shop on your phone, laptop or tablet, you can earn free cashback donations for your cause.

The retailer just needs to know you are an easyfundraiser to give a donation, and they know this if you visit them from the easy fundraising website, app or Donation Reminder.

The Donation Reminder is for mobiles, tablets and PC’s. It will pop up when a donation is available as you shop. You need to keep the easy fundraising app installed on your phone to power the donation reminders.

Helen in the office says she cannot stress how easy it is to use and raise funds for AMEND at no cost. Helen raised over £4 last week on 2 purchases alone! Imagine if all our members did this?! Edited to add that Helen has since raised another £2 for free!

Sign up here.
https://www.easyfundraising.org.uk/panel/
🎅🌲🎁

15/11/2025

‼ Live Webinar on Medullary Thyroid Cancer!

Time is running out to register for our webinar on sporadic MTC which will be held via Zoom on Wednesday 19th November from 19:00-20:30. This event is FREE so register now so you don't miss out on quizzing our expert medical speakers.

📲https://us02web.zoom.us/webinar/register/WN_pocKAaNEQXK7qGd94GLpuw #/registration

10/11/2025

📣 Today is NET Cancer Day

Share this video, share your story, get involved, help raise awareness!

📲 https://incalliance.org/ncd-2025/

09/11/2025

‼️Tomorrow is NET Cancer Day!

By working with INCA, AMEND is not only helping to raise awareness of neuroendocrine tumours and their symptoms, but also striving to improve the time to diagnosis for these tumours and their care around the world. You can help too by completing the INCA SCAN survey this NET Cancer Day (available in 11 languages).

📲 https://incalliance.org/scan2025/

08/11/2025

With Christmas slowly approaching, AMEND is here for all your Christmas jumper/hoodie/t shirt needs!

Why not take a look and support AMEND during the holiday season. All profits from sales go to support the work of AMEND. Visit our sustainable store for your Christmas shopping! 🎁🎁

https://amend.teemill.com/collection/christmas-2020/

07/11/2025

Its nearly time for our last peer support meeting of the year. This virtual meeting is being held on Zoom on Thursday 20th November 7-9pm.

Join our volunteer Sophie for 2 hours of informal chat and meet others in similar circumstances.

Don't forget to book your place!

https://www.amend.org.uk/patients/support/events/regional-events/

It's good to talk!

06/11/2025

🤩 3-7 November marks Trustee Week!

The Trustee Board of AMEND are the critical friends of AMEND, helping to steer the charity in the right direction, ensuring its legal and financial compliance. Here we share the final 5 members of our current Board and you can find out more about them and why they wanted to get involved on our website. We thank them for all their support 🙏

If you're interested in a Trustee Board role, you'll find information about this there too!

📲 https://www.amend.org.uk/how-we-are-governed/