Calum, Our Rae of Sunshine

19/12/2025

🤍🤍🤍🤍🤍🤍🤍🤍🤍🤍🤍🤍🤍🤍🤍
To the wonderful community who have always given Calum strength, courage and love. If you would like to come and celebrate our wonderful boy…

✨🤍🕊️💫🪽🤍✨
A celebration of life for Calum.
Tuesday 30th December
2.45pm
Masonhill crematorium

✨ No black or formal clothing ✨

14/12/2025

✨🤍🕊️💫🪽🤍✨

✨Calum William Rae✨

Our beautiful, caring, loving boy passed away peacefully last night with mummy and daddy by his side, holding his hands.

Please always talk about our boy, please always remember the memories, please always remember him.

Forever loved. ✨ Forever Six ✨Forever in our hearts.

07/11/2025

We burst into tears when Alan Carr named his charity as Neuroblastoma UK This is just so wonderful 🧡☀️🧡 thank you Alan for bringing such huge attention to an amazing charity working so tirelessly to find a cure for Neuroblastoma 🧡☀️🧡

Alan Carr 💛

What a moment.

We can’t tell you how grateful we are. We’ve adored watching you over the last three weeks; all the more so with that glimmer of hope that if you did well, it might just mean something big for our small charity. And you did it.

As our faithful Patron for 9 years, your commitment, compassion, and drive to bring hope to children and families facing this aggressive cancer have been nothing short of transformational. As a small charity with a big mission, you know how much this means to us.

For many years, we’ve known you to be generous, warm, empathetic, and unfalteringly kind, and we’re so pleased the nation agrees with us on that.

Now, we promise to do you proud. Our commitment to you is that through research, we will find better treatments and ultimately a cure for every child facing Neuroblastoma.

Alan, thank you. Team Neuroblastoma UK🎗️

29/09/2025

☀️🧡 A little Calum update 🧡☀️

Calum is doing well, and is having lots of fun being back at school with his friends.🥰

We spent the summer in London for the car r trial. Everyone there took such good care of Calum, especially all the dogs who came to visit him. 🧡

Initially, everything was going as expected and we were cautiously hoping it was positive signs. Unfortunately the scans have shown that the trial hasn’t cleared his 2 remaining areas on his bones. The team has said the cells could have been working just to keep things stable, but are no longer in his blood. We’ve taken some time just to try regroup after the news which of course devasted us.😢

We aren’t completely sure what will come next, we have a couple options we could do. But it is incredibly difficult to decide what to do. We will try of course with Calum’s team to make the best decision for him. We have another meeting this week to talk everything over again.🧡

Calum continues to be so resilient and never ever complains about hospital visits or hospital stays for treatment. He is so joyful and so so brave. We love you so much, Calum. ☀️🧡☀️

02/09/2025

This is always a fab night full of never heard before football stories🧡my cousin is organising in aid of Calums Cabin 🧡🧡

01/09/2025

🎗️Childhood cancer awareness month starts today 🎗️

🎗️ Today marks the start of Childhood Cancer Awareness Month — a time to come together, raise awareness of childhood cancer, and recognise the children and families whose lives are impacted by it.

Throughout September, we’ll be sharing the unique experiences of children and families affected by neuroblastoma. Through powerful personal stories and key facts, we’ll highlight the realities of this complex cancer, the strength shown by families every day, and how we’re working to create better treatments and brighter futures for children.

We’re here — for every child, every family, every step of the way.

🔬 Funding and driving ground-breaking research
💛 Supporting families at their most difficult times
📣 Campaigning for the change that children need

👉 Follow along on social media this month as we amplify family voices, raise vital awareness, and stand together in the fight against childhood cancer.

28/06/2025

☀️ A little Calum update ☀️

Hello, it’s been a while since we posted and we thought we would let everyone know how Calum is doing. He is doing great and is full of energy and carry on- not much change there. 😂 His appetite is back and he is no longer on his feeds, he just has his ng tube for us to top him up with water. Calum has just finished p1 and had an amazing year being at school as much as possible.🥰

Calum finished all 12 cycles of BIT chemo in April and coped so well throughout all cycles with luckily minimal side effects. The tumour has responded amazingly and is dead and barely visible on scans, almost like a scar now.🥰🥰 Calum still has the same 2 stubborn bone spots, they show up less on scans which is positive. Calum’s consultant was really pleased with Calum’s response, for relapse it has been a really good response.🧡

Calum’s consultant had brought forward the idea of Calum taking part in a CAR-T clinical trial at great ormond street, to try tackle these bone spots and any lingering cells. After going through eligibility, consents , health checks, we are so happy to say that Calum will be going forward with the clinical trial. 🥰 We have already been to London and are going back this week for more tests and scans then hopefully begin the treatment next week. We will be in London for around 3/4 weeks. There have been many promising CAR-T trials for children with relapsed neuroblastoma.🧡

Calum has had immune system cells removed and they have been engineered in a lab to recognise and kill neuroblastoma cells. Calum will have 5 days of chemo to make space in his bloods for the cells and then the engineered cells will be given back to him. It is expected he will become quite unwell and will be tough on his body. It’s hard knowing we are putting him through more treatment but we hope that this will work for him. 🧡

We hope with everything we have that Calum can tolerate the cells, and that they will get busy working to rid Calum of these spots. This boy is made of some tough stuff, we keep fighting on. 🥰🧡

21/03/2025

🥳🥳🥳Happy 6th Birthday 🥳🥳🥳

Our boy is 6 today and we have celebrated with our families, celebrating Calum and the latest scan results which have been positive , yes!! Calum spent his birthday at hospital but we made up for it with a little family party once we were home🥰🧡🧡

Calum’s tumour still has no migb uptake - which hopefully means it could be dead. His bone spots remain but are lighting up less again so they are responding. Receiving positive results just keeps us pushing on, what an amazing little man you are, Calum! 🧡🧡🥳

Calum is showing us everyday how resilient, brave, kind and caring he is. We celebrate you today and your wonderful courage having to still fight 2 years on. All we can try to do is cling on to hope that one day you can enjoy life like you should be able to. But for now, you are doing an awesome job getting through this and are doing it living your life full of fun and a little bit of craziness. 🥰🧡🥰

15/02/2025

🎗️On international childhood cancer day, we think of all our brave little friends battling this cruel disease of cancer, going though things no child should have to endure and our little friends who have sadly lost their battle. 🎗️

Today is International Childhood Cancer Day.🎗️

Cancer doesn’t care who it hurts including babies, children and young people of all ages.

Today we want to send all our love and strength to everyone affected by Childhood Cancer, and pay tribute to our inspirational awesome medical staff who do everything they can and more to cure our children, and if that’s not possible make their ending as gentle and dignified as possible.💛

Today we celebrate our superheroes and we send our love to you all and remember Team Jak are here always for anyone facing this journey.💙💜💛

31/01/2025

Please, please if you can sign this petition and share. 🧡🧡🧡
Andy had to go back to work 6 weeks after Calums diagnosis due to financial pressures. There is no financial support for families of seriously ill children for at least 12 weeks and even after this, there are huge delays in processing child disability allowance. It’s Never You are doing amazing work trying to campaign for parents of seriously ill children to receive financial support from day 1. In the most horrific time imaginable it’s just awful that financial pressures put more stress onto parents who are fighting just to get through each day for their child. 🧡🧡🧡

📢 This is it! The BIG petition! 📢 We need as many signatures as possible to make a real impact. This is our chance to demand change, to stand up for parents of seriously ill children, and to push for the support they desperately need.

🚨 Sign it. Share it. Spread the word. 🚨

Every signature counts. Every share helps. Let’s make this happen.

https://petition.parliament.uk/petitions/700285

01/01/2025

✨ Happy New Year ✨

We are going into 2025 with some more positive news. Calum’s latest scan results have shown the tumour has shrunk again to 5mm, his consultant thinks it may now be dead. The 2 bone spots are lighting up less on the migb scan so we hope this is a positive sign of them starting to respond to the chemo. We are so relieved Calum’s body is coping with the chemo and the cancer is responding. He’s doing amazing.🥰🧡

Calum is generally well, apart from some side effects during the chemo cycle. He is full of energy, fun and just as crazy as ever. 🥰 We had a lovely Xmas at home and Calum even got to join in at his nativity at school, which was emotional to say the least!🥰🧡

The plan is to continue this treatment as it is working, he will have more scans after another 3 rounds. We’re hoping with all our might that it’s more positive news.🧡

Thank you as always, for the kind and warm wishes for Calum. 🧡🧡🧡

29/11/2024

🧡☀️🧡 A little update on Calum 🧡☀️🧡

Calum has been mostly well with some side effects from his chemo cycles. His previous scans showed further shrinkage of his tumour but the bone spots remained unchanged. He has another chemo round next week and then we will have scans the following week, his team will then evaluate what to do next. We are beyond relieved he is responding to the chemo so far. 🧡

We unfortunately had an inpatient stay from Sunday to Thursday as Calum had a nasty viral infection. He wouldn’t walk and we were petrified but he is back to his crazy self. We went from worrying of another relapse, to viral, to various checks for any autoimmune diseases to possible lime disease. Safe to say it’s been an awful few days of worrying but luckily it is looking like it was viral. 🧡

Calum has been amazing as always and taking everything in his stride. He never complains of having to go to hospital and continues to cause havoc while he is there. All the team there are amazing and join in on his pranks and his fun. We are so lucky he has built such a special bond with everyone there. 🧡

We made some amazing memories on our first family hol since diagnosis to centerparcs. Calum was sick his ng the second day so he had a few days of seeing his wee face without his tube. We were so kindly funded a dry suit by Logan’s fund which allowed Calum to swim in water for the first time in nearly 2 years🥹 It was truly magical to see his face so happy to be swimming again and we will hold those memories close to our hearts always. 🧡

We pray and hope we will have some more positive results from the next scans. As always, your kind words and wishes really do give us a boost. Thank you so much 🧡☀️🧡