Calum, Our Rae of Sunshine

21/03/2026

✨ Happy Birthday in the sky, Calum ✨

Thank you for giving us the strength to try to celebrate you today by doing what you would have loved to do on your birthday. We know you were right there with us all day.🤍

Our hearts ache with a pain that gets worse everyday. But as friends and family have told us, grief is the price you pay for love. And we love you with our whole hearts, Calum.

Your light, your strength, your laugh, your kindness. It’s always with us forever and ever, our angel.

✨ Forever loved ✨
✨ Forever six ✨
✨Forever in our hearts ✨

27/02/2026

✨🌟 Happy Pokemon day, sweet boy 🌟✨

You will always be our Pokemon-Calum.

We hope you are flying high above with Charizard and having lots of Pokemon battles.

We hope you liked seeing all your friends at school celebrate you today.

We miss you, our beautiful angel. 🕊️

19/12/2025

🤍🤍🤍🤍🤍🤍🤍🤍🤍🤍🤍🤍🤍🤍🤍
To the wonderful community who have always given Calum strength, courage and love. If you would like to come and celebrate our wonderful boy…

✨🤍🕊️💫🪽🤍✨
A celebration of life for Calum.
Tuesday 30th December
2.45pm
Masonhill crematorium

✨ No black or formal clothing ✨

14/12/2025

✨🤍🕊️💫🪽🤍✨

✨Calum William Rae✨

Our beautiful, caring, loving boy passed away peacefully last night with mummy and daddy by his side, holding his hands.

Please always talk about our boy, please always remember the memories, please always remember him.

Forever loved. ✨ Forever Six ✨Forever in our hearts.

07/11/2025

We burst into tears when Alan Carr named his charity as Neuroblastoma UK This is just so wonderful 🧡☀️🧡 thank you Alan for bringing such huge attention to an amazing charity working so tirelessly to find a cure for Neuroblastoma 🧡☀️🧡

Alan Carr 💛

What a moment.

We can’t tell you how grateful we are. We’ve adored watching you over the last three weeks; all the more so with that glimmer of hope that if you did well, it might just mean something big for our small charity. And you did it.

As our faithful Patron for 9 years, your commitment, compassion, and drive to bring hope to children and families facing this aggressive cancer have been nothing short of transformational. As a small charity with a big mission, you know how much this means to us.

For many years, we’ve known you to be generous, warm, empathetic, and unfalteringly kind, and we’re so pleased the nation agrees with us on that.

Now, we promise to do you proud. Our commitment to you is that through research, we will find better treatments and ultimately a cure for every child facing Neuroblastoma.

Alan, thank you. Team Neuroblastoma UK🎗️

29/09/2025

☀️🧡 A little Calum update 🧡☀️

Calum is doing well, and is having lots of fun being back at school with his friends.🥰

We spent the summer in London for the car r trial. Everyone there took such good care of Calum, especially all the dogs who came to visit him. 🧡

Initially, everything was going as expected and we were cautiously hoping it was positive signs. Unfortunately the scans have shown that the trial hasn’t cleared his 2 remaining areas on his bones. The team has said the cells could have been working just to keep things stable, but are no longer in his blood. We’ve taken some time just to try regroup after the news which of course devasted us.😢

We aren’t completely sure what will come next, we have a couple options we could do. But it is incredibly difficult to decide what to do. We will try of course with Calum’s team to make the best decision for him. We have another meeting this week to talk everything over again.🧡

Calum continues to be so resilient and never ever complains about hospital visits or hospital stays for treatment. He is so joyful and so so brave. We love you so much, Calum. ☀️🧡☀️

02/09/2025

This is always a fab night full of never heard before football stories🧡my cousin is organising in aid of Calums Cabin 🧡🧡

01/09/2025

🎗️Childhood cancer awareness month starts today 🎗️

🎗️ Today marks the start of Childhood Cancer Awareness Month — a time to come together, raise awareness of childhood cancer, and recognise the children and families whose lives are impacted by it.

Throughout September, we’ll be sharing the unique experiences of children and families affected by neuroblastoma. Through powerful personal stories and key facts, we’ll highlight the realities of this complex cancer, the strength shown by families every day, and how we’re working to create better treatments and brighter futures for children.

We’re here — for every child, every family, every step of the way.

🔬 Funding and driving ground-breaking research
💛 Supporting families at their most difficult times
📣 Campaigning for the change that children need

👉 Follow along on social media this month as we amplify family voices, raise vital awareness, and stand together in the fight against childhood cancer.

28/06/2025

☀️ A little Calum update ☀️

Hello, it’s been a while since we posted and we thought we would let everyone know how Calum is doing. He is doing great and is full of energy and carry on- not much change there. 😂 His appetite is back and he is no longer on his feeds, he just has his ng tube for us to top him up with water. Calum has just finished p1 and had an amazing year being at school as much as possible.🥰

Calum finished all 12 cycles of BIT chemo in April and coped so well throughout all cycles with luckily minimal side effects. The tumour has responded amazingly and is dead and barely visible on scans, almost like a scar now.🥰🥰 Calum still has the same 2 stubborn bone spots, they show up less on scans which is positive. Calum’s consultant was really pleased with Calum’s response, for relapse it has been a really good response.🧡

Calum’s consultant had brought forward the idea of Calum taking part in a CAR-T clinical trial at great ormond street, to try tackle these bone spots and any lingering cells. After going through eligibility, consents , health checks, we are so happy to say that Calum will be going forward with the clinical trial. 🥰 We have already been to London and are going back this week for more tests and scans then hopefully begin the treatment next week. We will be in London for around 3/4 weeks. There have been many promising CAR-T trials for children with relapsed neuroblastoma.🧡

Calum has had immune system cells removed and they have been engineered in a lab to recognise and kill neuroblastoma cells. Calum will have 5 days of chemo to make space in his bloods for the cells and then the engineered cells will be given back to him. It is expected he will become quite unwell and will be tough on his body. It’s hard knowing we are putting him through more treatment but we hope that this will work for him. 🧡

We hope with everything we have that Calum can tolerate the cells, and that they will get busy working to rid Calum of these spots. This boy is made of some tough stuff, we keep fighting on. 🥰🧡

21/03/2025

🥳🥳🥳Happy 6th Birthday 🥳🥳🥳

Our boy is 6 today and we have celebrated with our families, celebrating Calum and the latest scan results which have been positive , yes!! Calum spent his birthday at hospital but we made up for it with a little family party once we were home🥰🧡🧡

Calum’s tumour still has no migb uptake - which hopefully means it could be dead. His bone spots remain but are lighting up less again so they are responding. Receiving positive results just keeps us pushing on, what an amazing little man you are, Calum! 🧡🧡🥳

Calum is showing us everyday how resilient, brave, kind and caring he is. We celebrate you today and your wonderful courage having to still fight 2 years on. All we can try to do is cling on to hope that one day you can enjoy life like you should be able to. But for now, you are doing an awesome job getting through this and are doing it living your life full of fun and a little bit of craziness. 🥰🧡🥰

15/02/2025

🎗️On international childhood cancer day, we think of all our brave little friends battling this cruel disease of cancer, going though things no child should have to endure and our little friends who have sadly lost their battle. 🎗️

Today is International Childhood Cancer Day.🎗️

Cancer doesn’t care who it hurts including babies, children and young people of all ages.

Today we want to send all our love and strength to everyone affected by Childhood Cancer, and pay tribute to our inspirational awesome medical staff who do everything they can and more to cure our children, and if that’s not possible make their ending as gentle and dignified as possible.💛

Today we celebrate our superheroes and we send our love to you all and remember Team Jak are here always for anyone facing this journey.💙💜💛

31/01/2025

Please, please if you can sign this petition and share. 🧡🧡🧡
Andy had to go back to work 6 weeks after Calums diagnosis due to financial pressures. There is no financial support for families of seriously ill children for at least 12 weeks and even after this, there are huge delays in processing child disability allowance. It’s Never You are doing amazing work trying to campaign for parents of seriously ill children to receive financial support from day 1. In the most horrific time imaginable it’s just awful that financial pressures put more stress onto parents who are fighting just to get through each day for their child. 🧡🧡🧡

📢 This is it! The BIG petition! 📢 We need as many signatures as possible to make a real impact. This is our chance to demand change, to stand up for parents of seriously ill children, and to push for the support they desperately need.

🚨 Sign it. Share it. Spread the word. 🚨

Every signature counts. Every share helps. Let’s make this happen.

https://petition.parliament.uk/petitions/700285