21/01/2026
Two Days. One Mission. Real Change for Rare Disease Patients.
🎯 The 6th International Conference on Rare Diseases 2026 brings together policy, science, innovation and patient voices to turn knowledge into action.
🌍 Over two high-impact days, leading European and international organisations, including EURORDIS, EPF, INSERM, EJP RD, national rare disease institutes, universities and hospitals — will shape the dialogue on what comes next for rare diseases in Europe and beyond.
🔊 DAY 1 | Global Landscape & the WHO Resolution
• Global priorities in rare diseases & WHO actions
• International collaborations and national implementation models
• Regulatory science & innovation pathways
• Therapeutic development and evidence generation
• ERNs: challenges and opportunities
• Access, HTA & health-system preparedness
🔊 DAY 2 | Greece in the European Rare Disease Ecosystem
• National initiatives & status update: registries, Orphanet Greece, JARDIN, Rare Disease Map
• The need for a National Programme: “Genetic Care for All”
• Strengthening Greece’s role in ERNs & Clinical Trials (2025–2027)
• ERDERA & Greek research capacity — connecting Greece with Europe
• Data, Orphacodes & digital readiness
• Access & HTA - preparing for Joint Clinical Assessment (JCA)
💬 Every session is designed to move from discussion to measurable outcomes.
📍 Technopolis City of Athens – Gasholder 1
📅 Monday, March 30 (Live-streamed) & Tuesday, March 31, 2026 (Hybrid)
👉 Be part of the change.
🔗 https://bit.ly/4qjoVyd
The 6ᵗʰ International Conference on Rare Diseases on Rare Diseases is organized by Rare Diseases Greece (RDG), member of EURORDIS-Rare Diseases Europe and Boussias Events.