Neuroendocrine Cancer Ireland - NET Patient Network

Neuroendocrine Cancer Ireland - NET Patient Network Neuroendocrine Cancer Ireland is Page for information about Neuroendocrine Cancer in Ireland

Neuroendocrine Cancer Ireland is Page for information about Neuroendocrine Cancer in Ireland and the NET Patient Network, an organisation of Neuroendocrine Tumour (NET) patients in Ireland. NET Tumours include; Carcinoid - Functioning and Non-Functioning Pancreatic Tumours - Multiple Endocrine Neoplasias (MEN) - Gastrinomas - Insulinomas - Glucagonomas - Pheochromocytomas - VIPomas - Goblet Cell Carcinoids

Please join our Main Facebook Group is here. https://www.facebook.com/groups/neuroendocrine.cancer.ireland.support/

This Group is Private, only members of this group can read posts here ...... but we also a have Group for Patients who want to discuss issues in even more Privacy, with other Patients. AFTER you join the main Group above and get excepted into the group, please ask an Admin to join the Net Patients Only Group. No Caregivers or Family members allowed, so discussions are between NET Patients ONLY.

This year’s ENETS-INCA NCD Educational Webinar is scheduled to take place on November 12th, at 16:00 CET. Below you will...
24/10/2025

This year’s ENETS-INCA NCD Educational Webinar is scheduled to take place on November 12th, at 16:00 CET.
Below you will find the link to register for the event and more information on the agenda.

The traditional ENETS & INCA NET Cancer Day Educational Webinar will be held on November 12th, 2025, from 16:00 to 18:00 CET.

14/10/2025

This is an urgent call out for volunteers for our NET Patient event on November 14th and November 15th.

We are very grateful to the 7 people who have kindly offered their help, but we need at least another 5 people to kindly help out.

Please remember that our event is getting bigger and better each year, this is because of the hard work of the committee and volunteers.

In order for this year's event to be a successful event we all need to work together.

Volunteer duties include meeting and greeting people, guiding people to their seats, counting the number of people who attend each part of the events, helping out at the tea and coffee station on Saturday etc.

If you can help us, please send an email to info@netpatientnetwork.ie

Thank you

06/10/2025

Please take the time to do this INCA Global Survey.

The only way that things are going to improve and that we can get the most up to date care & treatment, is if we have the facts to back up our need for it.
Please, take 15 minutes to fill it out.

Do us a favor,
do yourself a favor,
do other NET Patients a favor,
fill it out please.

https://inca-scan.limesurvey.net/936189?lang=en

Thanks 🙂

[📢INCA is launching the Global Survey! 👉Calling to NET patients and caregivers 👉Calling to healthcare professionals ✔Share your experience to assess the gaps in NET awareness, diagnostics, and access to treatments and care across the globe. 📌The Global Survey comprises a questionnaire for NET patients/caregivers and a questionnaire for clinicians – available.

03/09/2025

Our annual NET Patient event is been held on Friday November 14th and Saturday November 15th.

In order for the event to be a success again this year we need volunteers to help out.

We will need people to help for the following:

Friday night dinner.

Saturday event.

Saturday lunch.

If you or your family members would be willing to volunteer please send an email to:

info@netpatientnetwork.ie

28/08/2025

Congratulations to our NET Patient Network Committee member Justin Winters who has been appointed Patient Advocate for the Centre of Excellence NET's clinic in St Vincent's Hospital. 🎉🎊

14/08/2025

There is a charity cycle this Friday, August 25th and a third of the funds raised are going to NET Patient Network.

The video below will give you more information, including a section with Mark McDonnell, Chairperson of NET Patient Network.

If you would like to contribute to three worthy causes, here's the link to their Go Fund Me page.

https://gofund.me/f2afe8e9

Address

Coolock

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