Enriching and enhancing the lives of those in Ireland who are living with Spina Bifida and/or Hydrocephalus, and the lives of their families and wider circle
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13/11/2025
We were so grateful to visit Dundalk yesterday to receive a cheque from one of our Dublin Marathon Runners.
Paul raised an incredible €6,450 for Spina Bifida Hydrocephalus Ireland while also completing his first ever marathon! Thank you to you all - Paul, Fiona, Aoife, and Grainne - the level of commitment a marathon takes for an entire family is so high and to do it while raising funds for a charity is even more admirable 💙
Reminder about our upcoming webinar for any parents who have children considering third level education in the next year or two! 🎓
Zoe will be hosting a Webinar on the 11th of November where she will talk about the transition from second to third level education information. this webinar is aimed at 5th and 6th year members and their parents/guardians.
Discuss your options with our Training and Education Team.
Online 7pm-8pm
November 11th
Email zcole@sbhi.ie to register
SBHI's What Works For Me programme is co-funded by the Government of Ireland, through the Department of Social Protection, and the European Union.
06/11/2025
Zoe will be hosting a Webinar on the 11th of November where she will talk about the transition from second to third level education information. this webinar is aimed at 5th and 6th year members and their parents/guardians.
Discuss your options with our Training and Education Team.
Online 7pm-8pm
November 11th
Email zcole@sbhi.ie to register
SBHI's What Works For Me programme is co-funded by the Government of Ireland, through the Department of Social Protection, and the European Union.
06/11/2025
The What Works for Me team delivered SBHI's pilot, Inclusive Recruitment Workshop last month.
This has been carefully crafted and delivered by our Employment Facilitator, Karen Chadwick. Thank You to International Cork for giving their Recruitment and Training team the time to do our workshop. The feedback has been fantastic, with staff learning and contributing lots on the day. We look forward to refining the workshop and working with more businesses in Ireland to support them in making their recruitment practices more inclusive, to offer more employment opportunities for those living with Spina Bifida, Hydrocephalus and other disabilities.
SBHI's What Works For Me programme is co-funded by the Government of Ireland, through the Department of Social Protection, and the European Union.
06/11/2025
28/10/2025
Thank you to every school, creche and workplace that took part in our ‘PJ for a Day’ fundraiser for this year’s and awareness week 💙🧡
Final count is still being counted but so far we can confirm over €400 has been raised! This will be an incredible addition towards providing supports and services for the Spina Bifida and Hydrocephalus community in Ireland 🫶🏻
26/10/2025
As Sunday comes to an end so does this year’s Spina Bifida and Hydrocephalus Awareness Week.
The final item on our lineup is a series of webinars from our Health Development and Promotion Officer, Anlin.
Thank you all to everyone who attended events, commented, liked, shared and fundraised for this year’s Awareness Week - It’s been a great week and we hope you had fun, learned and enjoyed! A reminder to everyone in our community that 💙
25/10/2025
Some pictures coming in from this year’s Spina Bifida Hydrocephalus Ireland Halloween Party 👻🎃 Awareness Week
25/10/2025
❓Are you a parent of a child who has Hydrocephalus?
❓Would you like to connect with parents who understand the stresses, fears & concerns?
❓Are you free this evening at 7pm?
As part of Awareness Week come join us via Teams for the first, of hopefully many, Parent Connects!
DM if you would like to join or email Noelle at njordan@sbhi.ie
24/10/2025
We are so sorry to hear about the sad passing of our former colleague and much loved member, Rosie Carey.
Rosie was somebody who made a great impression on many people and she will be hugely missed.
Our theme for this year’s Spina Bifida Hydrocephalus Awareness Week is . We chose this theme as it gives a chance for our community to reflect on why you matter and are important to us and your wider circle of family and friends.
As part of a project for tomorrow ( International Day of Spina Bifida and Hydrocephalus ) we would love if you could share with us the following:
>Reasons why you feel you matter
>Describe a time or reason you sometimes have felt you do not matter
Please feel free to comment reasons below, or if you would rather share them anonymously please email Noelle at njordan@sbhi.ie
23/10/2025
More photos from our Autumn Concert and Donor appreciation day for awareness week 2025 🧡💙
Address
National Resource Centre, Old Nangor Road, Clondalkin Dublin D22W5C1
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Contact The Practice
Send a message to Spina Bifida Hydrocephalus Ireland (SBHI):
This page has been created to raise awareness of spina bifida and/or hydrocephalus. We want to provide information and advice to those with the conditions as well as those who have family and friends with spina bifida and/or hydrocephalus.
Through this page you can also find information on our fundraising initiatives and how to become a volunteer with the organisation. We will also update this page with news on our conferences and seminars which take place throughout the year.
Spina Bifida is a relatively common condition, which affects about one in every 1000 children born per year in Ireland. Ireland has one of the highest incidences of Spina Bifida births in the world. Spina Bifida is the most common neural tube defect (NTD) which causes incomplete development of the spinal cord.
SBHI, Spina Bifida Hydrocephalus Ireland was established in 1968 by a small group of parents whose children had Spina Bifida and/or Hydrocephalus. These parents continue to dedicate their time to the association and are now elected volunteers on our Board of Directors as well as being elected to Branch Committees nationally. Today, SBHI has over 4 000 members and has branches in all four provinces, as well as a professionally run National Resource Centre based in Clondalkin, Dublin 22.
The mission or purpose of Spina Bifida Hydrocephalus Ireland is to provide information, support and advice to people with Spina Bifida and/or Hydrocephalus, their parents and carers, as well as to promote social inclusion and equality for people with Spina Bifida and/or Hydrocephalus in Irish society.
