Huntington's Disease Association of Ireland

16/12/2025

We are extremely proud of Sarah Tabrizi, a member of our Scientific Advisory Board, for being named one of Nature's 10: Ten people who helped shape science in 2025.

Sarah is highlighted as a "Huntington’s hero" for "leading the clinical efforts to treat the devastating brain disease."

The acknowledgement by the prestigious journal Nature of Sarah Tabrizi and her work places Huntington's disease at the forefront of scientific discovery.

Read Nature's 10 here: https://tinyurl.com/Nature-10-Tabrizi

16/12/2025

“This trial is an exciting step for regenerative medicine and its potential to change the course of Huntington’s disease,” Leslie M. Thomson, Principal Investigator

CIRM award will support first-of-its-kind clinical trial in humans

13/12/2025

Congratulations to Dr. Sarah Gunn, University of Leicester who has been awarded a Wellcome Trust grant of £1.96 million for her work "Advancing Support and Care for Emotional Needs and Distress in Huntington's Disease" (ASCEND HD)

Families affected by Huntington's Disease can experience psychological trauma over generations. Many family members are impacted by depression, anxiety, grief, anger and irritability with little support available.

Dr Gunn's team aim to provide support and improve recognition and understanding of the complexities around mental health and wellbeing for families affected by Huntington's Disease.

As the project progresses Dr Gunn intends to share findings with international collaborators and the European Huntington Association

A new grant has been awarded to expand mental-health support for people affected by Huntington’s disease, aiming to fill critical gaps in psychological care and improve well-being across Europe.

🔗Read the full article: https://eurohuntington.org/2025/12/09/new-research-grant-to-improve-mental-health-support-for-people-affected-by-hd

10/12/2025

This week, we’re grateful for progress — the discoveries that moved HD science forward in 2025. 🧬💙

This year brought:

✨ Many trials hoping to find drugs to slow or halt HD

🧠 Fresh insights into how HD works at the cellular level

🔬 Advancements in understanding the role of somatic expansion

Each study, each dataset, each step brings us closer to treatments that change lives.

To every scientist, participant, and supporter: thank you for pushing HD research forward. The future feels brighter because of you. 💙

09/12/2025

Sandra, HDAI Financial Wellbeing Officer joined disability activists and our umbrella group Disability Federation of Ireland today at Leinster House to call for 'basic financial security, dignity and rights for people living with disability'.

HDAI's Financial Wellbeing Service aims to support people impacted by Huntington's Disease to maximise income.

The cost of a hereditary disability on multiple family members over generations leaves many families susceptible to financial hardship.

A crowd of disability activists braved the stormy weather today to demand what the Government failed to deliver: basic financial security, dignity and rights.

Disabled people's voices were united n calling for an emergency winter payment for people with disabilities and showing that they will not accept second-class treatment.

Thank you to everyone who showed up. We have made our position clear and we'll follow up to demand a Government response

09/12/2025

Ern-Rnd European Reference Network for Rare Neurological Diseases Webinar today on the importance of Genetic Counselling for Rare Genetic Disease diagnosis. See below:

Rare Diseases Ireland European Huntington Association

⚠️Updated time! Now at 1:00 PM CET.
💻 Upcoming on “The Importance of Genetic Counselling in the Diagnostic of Rare Neurological Disorders”
📅 9th December
🗣️ Maria Judit Molnar, Semmelweis University, Budapest, Hungary

Sign up 👉https://t1p.de/csc39

Joint with the European Reference Network for Rare Neuromuscular Diseases and the European Academy of Neurology

08/12/2025

We are thrilled to share the exciting news that Eva Woods PhD researcher, McMackin Lab, Trinity College Dublin has won yet another award for her research.

This is a big one! The Human Biology Project Fellowship from the Huntington's Disease Society of America

This funding is a of huge benefit to Eva's important work and serves as recognition for the support, commitment and collaboration she provides to the HD community in Ireland.

We need dedicated funding for Huntington's Disease research in Ireland to ensure such talented researchers can achieve their goals and remain within their field of expertise.

Neurological Alliance of Ireland (NAI)
Rare Diseases Ireland European Huntington Association Ern-Rnd European Reference Network for Rare Neurological Diseases Neuroscience Ireland

08/12/2025

It was a real pleasure to see so many family members and friends at our Dublin annual lunch on Saturday.

Thank you to Dr. Deborah Mclntyre, Consultant Neurologist, St James's Hospital and Royal College of Surgeons in Ireland for coming along to speak about her outreach work with people affected by who are excluded from general health and social care services.

Also to Eva Woods HD Researcher at McMackin Lab Trinity College Dublin for her research, collaboration, support and awareness raising.

We always enjoy the great hospitality at Sparks Bistro

07/12/2025

06/12/2025

03/12/2025

Did you know that 1 in 5 people living in Ireland has a disability?
Today is International Day of Persons with Disabilities and NAI are happy to show their support for those living with (& their families, friends,carers) a disability

29/11/2025

'Science keeps pushing forward'

HDBuzz keeps us informed!