20/08/2022
An update on Issac and how everything went in America . Issac had lots of scans and he is waiting for the results. From what doctors can tell so far, he's most severe OCNDS diagnosed so far and they are running some research to find a way to improve his quality of life for individuals as severe as Isaac is . Doctors have said to keep up hope , for in the future, in next few years they may be able to improve his quality of life as to enable Issac to maintain as much independence as possible .
Isaac may also have one other syndrome called CHARGE syndrome beside OCNDS but that is not confirmed yet.