02/03/2026
Independent voices must be included, and transparency must come first.
All members of the endometriosis community deserve access to information about all community-led awareness events across the island of Ireland - including public meetings hosted by every political party. Patients should decide for themselves how they engage.
Charities representing this community must remain accountable to patients above funding pressures. Calling out government failures is not divisive - it is responsible advocacy.
For decades, people with endometriosis have endured dismissal and medical neglect. Excluding community voices only reinforces that harm.
2026 must reflect change - inclusive leadership, equal representation and respectful collaboration for all.
🎗️ March is Endometriosis Awareness Month — a time to reflect and a time to keep pushing forward.
Over the past year, we’ve seen important progress. Updated clinical guidelines have been pushed forward, a long-awaited framework has finally been launched, and endometriosis has become a continuing topic of conversation in political circles and the media.
These steps matter, but they are only the beginning.
For too many people in the community, daily reality has not yet caught up with policy announcements or headlines. Long diagnostic delays, gaps in care, and misunderstanding of the condition remain common. Too often, people are dismissed, misdiagnosed, or left without appropriate support — both by society and within healthcare systems.
March is a reminder of why our voices are so important 💛
This month is not only about raising awareness of the condition itself, but about highlighting:
• the true impact endometriosis has on lives
• the systemic issues within healthcare
• the lack of understanding among medical professionals
• and the stigma and misinformation that still exist
March gives us the space to unite our voices, continue the conversation, and demand better care, better education, and real change for our community.
Progress has started, but this is just one step in a long journey — and together, we keep going 💪