20/07/2023
We are Ravi Jhawar and Neha Jhawar. As parents, we are writing to you with heavy hearts and a plea for help. Our two young children, Kenit and Medhansh, have been diagnosed with Hunter's Syndrome, also known as Mucopolysaccharidosis Type II (MPS II). Our world came crashing down when we received the diagnosis, and since then, we have been on a rollercoaster of emotions.
With your support, we were able to start Enzyme Replacement Therapy (ERT) for Kenit in March 2022, which is still ongoing. We were also able to start treatment for Medhansh in April 2023 with the support of some funds from corporate social responsibility (CSR). However, we find ourselves in a situation where we require additional funds to continue their ERT beyond August 23.
