Indian Centre for Endometriosis - ICE

Indian Centre for Endometriosis - ICE ICE is an educational resource created to increase recognition about endometriosis and bridge the de

14/10/2025

Did you know endometriosis and its treatments can quietly affect your bones?

Hormone therapies, o***y surgery, and long-term low estrogen can all contribute to bone density loss, increasing your risk of fractures, joint pain, and long-term mobility issues.

Even if your scans look “normal,” changes can happen silently over time. Regular monitoring, weight-bearing exercise, calcium & vitamin D, and open conversations with your specialist are key to protecting your bones.

Bone health isn’t separate from endo care, it’s part of the bigger picture of living well with this disease.

10/10/2025

Surgery of any kind can feel overwhelming, especially when you don’t know what to expect. What helps is walking through it step-by-step with your doctor: from how to prepare, to what recovery really feels like after endometriosis excision surgery.

Because when you know what’s coming, you can focus on healing instead of worrying. So don’t be afraid to ask questions, talk to your care team, and share your concerns or fears. It’s all part of taking care of yourself.

07/10/2025

Breast tenderness can feel confusing, especially if you’re living with endometriosis.

Hormone swings in endo can trigger swelling, fibrocystic changes, or lumpiness. For many, the discomfort comes and goes with their cycle, and both breasts feel heavy or tender at the same time.

But sometimes, changes can signal something that needs attention: pain that’s persistent, one-sided, or accompanied by lumps or skin changes. Knowing the difference matters because endometriosis involves chronic inflammation, and early awareness helps you take proactive steps for your health.

Track your breasts across your cycle, perform regular self-checks, and speak up if something feels off. Awareness is your first line of care, not panic.

30/09/2025

Ovarian endometriomas, often called “chocolate cysts,” are not just harmless growths. They signal more severe endometriosis, bringing pain that lingers, fatigue that drains, and fertility challenges many do not see coming.

Even when they appear on scans, the bigger picture is often missed: their impact on ovarian reserve, IVF outcomes, and daily life. Surgery can help, but it also carries risks that must be balanced with long-term goals.

Living with endometriomas is not only about removing a cyst. It is about ongoing care, careful planning, and ensuring your pain and priorities are truly heard.

26/09/2025

Struggling to focus, forgetting words mid-sentence, or feeling mentally “foggy”?
For many women with endometriosis, these aren’t random lapses, they are part of the disease.

Inflammation, disrupted sleep, chronic fatigue, and even hormonal changes can all affect the brain. Yet because the symptoms are invisible, they are often brushed aside as stress or anxiety.

Understand why brain fog is real in endometriosis, how it shows up, and what can make a difference.

"They are not just "bad periods. " For far too long, women living with endometriosis and adenomyosis are told their pain...
25/09/2025

"They are not just "bad periods. " For far too long, women living with endometriosis and adenomyosis are told their pain is “normal.” I was one of them. I endured debilitating cramps, heavy bleeding, fatigue, and depression for years; these symptoms eroded my quality of life, bit by bit. Yet, time and again, I was dismissed, gaslit, or handed painkillers as if they could mask a condition silently wreaking havoc on my body.

And it's not just me. This is the reality for millions of women: a cycle of disbelief and delayed diagnosis. When doctors do not listen, the consequences are profound.

Finally, after years of searching, I found a doctor who not only recognised my suffering but also validated it in Dr Abhishek Mangeshikar. For the first time, I was treated with compassion and given options. Together, we decided on a partial hysterectomy, a choice that carried both fear and hope. The outcome has been life-changing.

The surgery gave me back something priceless: my quality of life. I can now move through my days without the constant shadow of pain. I can show up for my family, my work, and myself with energy and clarity. It should not take years of struggle, dismissal, and advocacy to reach this point.

My story is just one among countless others. It highlights the urgent need for better awareness, research, and training so women’s voices are believed the first time. No one should have to fight this hard to be taken seriously. Because breaking the silence around endometriosis and adenomyosis is not just about treatment. It is about dignity, equality, and the right to live without unnecessary suffering.

24/09/2025

Recurring UTIs that never show up on culture?
For some women, the issue is not infection at all, it is bladder endometriosis.

Urgency, burning, even blood in urine can flare with your cycle, yet routine scans and urine tests often miss it. The result is months or years of antibiotics without answers.

Bladder endometriosis is rare but real. And when overlooked, it quietly chips away at daily life.

Learn the signs that matter, why it is often missed, and what to ask for if the tests keep saying “normal.”

22/09/2025

Endometriosis pain isn’t always confined to the pelvis... it can affect nerves, too. That’s why symptoms like radiating leg pain, tingling, or numbness often get mistaken for sciatica.

Here’s the catch: if you have endo and standard “sciatica” treatments aren’t working, it could be nerve-related endometriosis. In these cases, seeking a neuropelvology or endo-aware specialist is key.

The right diagnosis opens the door to targeted care, relief, and restoring mobility.

18/09/2025

Inflammation is your body’s natural alarm system. But when it sticks around for too long, it starts affecting everything. From endometriosis to adenomyosis, chronic inflammation quietly impacts energy, hormones, digestion, and even mood.

Systemic inflammation can make daily life exhausting, even when your scans look “normal.” Recognising it is the first step toward managing it.

Anti-inflammatory strategies like diet, gentle movement, proper sleep, and working with endo-aware doctors can help you reclaim energy and improve quality of life.

15/09/2025

Recurring UTIs with negative cultures are frustrating. For some women, the real culprit is not infection at all but bladder endometriosis.

Bladder endo can mimic infections almost perfectly: urgency, frequency, burning, and sometimes blood in the urine. Routine ultrasounds often miss these lesions, and urine cultures come back clear. As a result, many women are prescribed repeated courses of antibiotics that do not address the underlying disease.

What helps is suspicion and the right tools. Protocol-based pelvic MRI or cystoscopy can detect bladder involvement, and early referral to an endometriosis specialist is key.

If you have UTI-like symptoms that return despite antibiotics, it is worth asking: Could this be endometriosis? The right diagnosis changes the course of care.

10/09/2025

Endometriosis is not just about painful periods. It is about the birthdays not celebrated. The jobs left behind. The relationships quietly strained.

Some grief is loud. This one is not. It slips in quietly, in the form of fatigue, fear, and endless waiting rooms. You look fine on the outside, so the world assumes you are.

But here’s the truth. Endo grief is real. It builds in the silence of late diagnoses, inconclusive scans, and treatment that arrives too little, too late.

The good news is, it doesn’t have to stay this way. With earlier referrals, better imaging, and care teams who see the whole person, the story can change.

Awareness is the first step. Listening is the second. Both can rewrite how women with endo live their lives.

I’ve been living with endometriosis for over 10 years. My symptoms began more than a decade ago, but it took seven years...
08/09/2025

I’ve been living with endometriosis for over 10 years. My symptoms began more than a decade ago, but it took seven years before I was finally diagnosed.

In 2021, I received my diagnosis and had my first surgery in Australia, but it only gave temporary relief.

When my symptoms returned with full force, I spent a year researching and connecting with advocates and surgeons worldwide. Finally, I travelled to India for excision surgery with Dr Mangeshikar.

Before surgery, my life had shrunk around the disease. I had to pause my degree, reduce work hours, cancel plans, and spend most of my free time resting. The mental torture of chronic pain, combined with being gaslit by doctors, left me exhausted.

My days leading up to, during, and after menstruation were ruled by debilitating pain, heavy periods, crippling fatigue, and painful bowel movements. Painkillers, heat packs, and my TENS machine became a lifeline on the worst days.

Dr Mangeshikar’s expertise and meticulous care were life-changing. He addressed my surgical needs and gave me confidence throughout the process.

The financial burden of chronic illness is immense, and flying overseas for proper care should never have to happen. But today, 18 months post-surgery, I am pain-free. I have energy, can exercise, and recently completed a multi-day bucket-list hike. My life is no longer ruled by endometriosis.

My message to other endo warriors is that there is hope. Trust yourself, know your body, and never stop fighting for the care you deserve.

[Endo warriors, Endo journey, endometriosis awareness, endometriosis, endometriosis survivor, endometriosis community, endometriosis update, endometriosis support group, Dr Mangs, Dr Abhishek Mangeshikar]

Address

Madhav Nivas, 8 Laburnum Road, Gamdevi
Mumbai
400007

Opening Hours

Monday 9am - 8pm
Tuesday 9am - 8pm
Wednesday 9am - 8pm
Thursday 9am - 8pm
Friday 9am - 8pm
Saturday 9am - 5pm

Telephone

+919820310483

Website

Alerts

Be the first to know and let us send you an email when Indian Centre for Endometriosis - ICE posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Practice

Send a message to Indian Centre for Endometriosis - ICE:

Shortcuts

Share

Share on Facebook Share on Twitter Share on LinkedIn
Share on Pinterest Share on Reddit Share via Email
Share on WhatsApp Share on Instagram Share on Telegram

Category