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Indian Centre for Endometriosis - ICE

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Indian Centre for Endometriosis - ICE

ICE is an educational resource created to increase recognition about endometriosis and bridge the de

04/02/2026

This young woman suffered from catamenial pneumothorax — recurrent lung collapses occurring with every menstrual cycle.

The cause was diaphragmatic endometriosis — a rare but severe form of endometriosis where the disease had literally eroded holes through the diaphragm.

Each month, air escaped through these fenestrations into the chest cavity, leading to repeated lung collapse.

What you see here are true diaphragmatic defects created by endometriosis — not superficial disease, but advanced, destructive involvement.

We completely excised all endometriotic tissue and repaired the diaphragm primarily, restoring its integrity in a single definitive surgery.

✔️ No chest tube
✔️ No ICU admission
✔️ No thoracic surgery required
✔️ No further lung collapses

This is a reminder that endometriosis is not just a pelvic disease.
It can involve the bowel, bladder, nerves — and even the chest.

Breathlessness during periods is not normal.
Recurrent pneumothorax in young women is a red flag.
Severe period pain should never be ignored.

Endometriosis can be silent.
Or it can collapse a lung.

30/01/2026

I later had surgery with a BSGE surgeon; however, the excision was incomplete, and my pain returned within months. Further scans revealed deep infiltrating bowel endometriosis.

What began as a sciatic-type pain in my mid-twenties that worsened during my periods and had escalated in ways I couldn’t imagine. Back then, my GP dismissed it and advised me to stay on the combined pill. But, over the years, my symptoms became more and more debilitating, with severe bowel and period pain.

Later, when I stopped the pill for fertility reasons, the pain would escalate, and I would collapse multiple times during my menstrual cycle. I even underwent hormonal treatment, but it left me with terrible side effects.

Finally, after years of research, I consulted Dr Mangeshikar in India. At that time, I was at my worst mentally and couldn’t walk without aid, but after speaking to him, I knew I had to make the eight-hour journey to consult him.

20/01/2026

Endometriosis doesn’t wait for adulthood. What delays diagnosis is the assumption that severe pain in young patients is “normal,” part of puberty, or something they’ll simply outgrow.

When pain shows up early and repeats month after month, the body is signalling a problem. Dismissing it doesn’t make it disappear. It teaches young girls to doubt their own symptoms and endure pain that isn’t normal.

So break the cycle. Advocate for yourself, or for your child, because catching the disease early can change the course of the patient who has to live with it.

16/01/2026

Deep endometriosis can affect major pelvic nerves, causing sharp pain that’s often mistaken for sciatica or back problems. Nerve mapping helps surgeons locate and protect these nerves during surgery, so they can remove disease completely while preserving function.

This means less long-term pain, better recovery, and protected bladder, bowel, and sexual function. If you have radiating pain or pain with sitting and walking, it’s worth asking your surgeon about nerve mapping.

13/01/2026

Endometriosis for me was a walk-in guide to enlightenment; to perceive the real world!
Ironically, it hit me at the age of just 18!
Four years back, the lack of awareness regarding endometriosis among health professionals was even higher—especially when it came to treating a very young woman who you can’t suggest to conceive a baby!
My diagnosis came after a long battle of doctor-shopping until I finally found the right one. In the meantime, it reduced my quality of life to a point where I couldn’t walk more than 100 m without severe pelvic pain, or laugh too loudly, was often caged in the bathroom due to the gastrointestinal manifestations of the disease, and spent countless nights crying in pain.
I believe, like many others, this diagnosis took a toll on my perceived femininity and self-esteem—and funny enough, it also helped me choose romantic partners more wisely.
The diagnosis of endometriosis and the subsequent excision surgery also led me to discover a deeper truth: an underlying genetic disorder, where endo is a frequent comorbid condition.
This brutal experience taught me the significance of exercising your courage, believing in your own truth even when the world stands against you, and remembering that everything in life, including medicine, is fallible, always evolving, and may not have the entire picture yet!

26/12/2025

In endometriosis care, language shapes treatment. When different processes are grouped under the same label, important distinctions get lost. So do opportunities for precise care. Lesions and adhesions may appear together, but they behave differently and need to be understood on their own terms.

Clarity here isn’t just academic. It influences how scans are read, how surgery is planned, and how patients understand the source of their pain. When terminology is accurate, conversations become sharper, decisions more informed, and care more intentional.

24/12/2025

If you’re relying on painkillers just to get through the day, your endo pain needs a deeper look, not stronger medication. Endometriosis pain often comes from several sources at once, which is why a single pill rarely brings real relief.

Long-term improvement happens when each part of the pain cycle is addressed: inflammation, nerves, hormones, muscles, and the lesions themselves. A multidisciplinary plan isn’t “extra”—it’s the only way to break the survival loop and reclaim daily comfort.

22/12/2025

Your endo journey doesn’t end with menopause—that’s simply a new phase. This transition presents some risks, various benefits, and distinct decisions, particularly regarding pain management, HRT, and long-term health.

Working with a clinician who understands endo and menopause helps you avoid guesswork and build a plan that supports your symptoms, bone health, and overall wellbeing.

19/12/2025

Tubal endometriosis is one of the most under-discussed forms of endo, partly because its symptoms are subtle and its diagnosis is tricky. Many women only learn about it while investigating unexplained pain or fertility challenges, which can make the experience confusing and emotionally draining.

That’s why early awareness helps. Understanding how the tubes function, when symptoms matter, and why specialized imaging and expert surgeons make such a difference can guide you toward clearer answers and better outcomes.

05/12/2025

Most women taking endometriosis medication hear about meningioma risk from Google long before they hear it from a doctor. And that’s the worst way to learn something this serious.

The truth is more nuanced. Not every hormone works the same way. Not every treatment carries the same level of risk. And not every patient needs to worry.

What really matters is knowing which medications have evidence behind them, how long you’re using them, and whether your treatment plan makes sense for your stage of disease.

This is where clarity changes everything. When you know the facts, you can choose treatment with real informed consent.

If you’re unsure about your plan or want to talk through your options, you can always reach out for a consult.

04/12/2025

6 months post-surgery by Dr Abhishek Mangeshikar, and honestly, this has been the best decision. It gave me my life back!

I've been operated on twice previously , and this made me very skeptical about surgery.

But the way Dr Abhishek understood and heard me out patiently, the way he explained to me what and why he will be doing, and how that will improve my quality of life... all of itt put me at ease and provided great comfort.

After Dr Abhishek did my surgery, I finally am now living pain-free. My fear and anxiety around flare-ups are fone, alhamdulillah!

Dr Abhishek is indeed THE Endo Slayer!

02/12/2025

Sometimes, the toughest calls in endometriosis surgery aren’t about what we can remove, but what we should. Low re**al disease pushes that question right to the edge, because every millimetre matters for long-term function.

For surgeons, the real dilemma is this:
Where do we draw the line between conservative disc excision and radical segmental resection in low re**al DIE?

There isn’t a one-size-fits-all answer. It’s a judgment built on anatomy, experience, and an honest look at what will best serve the patient years down the line.

Address

Madhav Nivas, 8 Laburnum Road, Gamdevi
Mumbai
400007

Opening Hours

Monday	9am - 8pm
Tuesday	9am - 8pm
Wednesday	9am - 8pm
Thursday	9am - 8pm
Friday	9am - 8pm
Saturday	9am - 5pm

Telephone

+919820310483

Website

https://www.endometriosis-india.com/

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