Multiple Sclerosis Association of Kenya - MS Kenya

Multiple Sclerosis Association of Kenya - MS Kenya MS-Kenya is an organisation that brings together people with, those affected by and professionals de

Multiple Sclerosis Association of Kenya, abbreviated as MS-Kenya is an organisation that brings together people with, those affected by and professionals dealing with Multiple Sclerosis (MS) and a similar disease called Neuromyelitis Optica (NMO). This includes, but is not limited to, patients living with the conditions, their families, care-givers, neurologists, physiotherapists and nutritionists. Objectives:
To acquire and share information on Multiple Sclerosis and Neuromyelitis Optica. To provide support and relief to people affected by MS and NMO. To act as a link to other Multiple Sclerosis Societies and Associations worldwide. To lobby and create awareness on MS and NMO
To promote research into Multiple Sclerosis and allied conditions for the benefit of all. To encourage people affected by MS and NMO to attain their full potential as members of the association by improving their quality of life.

A study led by the National Multiple Sclerosis Society in the USA, confirms there are * twice* as many people who need s...
20/02/2019

A study led by the National Multiple Sclerosis Society in the USA, confirms there are * twice* as many people who need solutions to the challenges of MS

Makes one wonder…about the MS disease burden in other countries…..Africa….

In 2005 I was diagnosed with MS and over the past 13 years, I have met hundreds of people who also live with this disease. Almost every single person I know tells me they have a loved one or a friend who has it too.

True lesson on generosity towards a neighbour managing Multiple Sclerosis, in the US....Good neighbours for 10 years! Se...
01/02/2019

True lesson on generosity towards a neighbour managing Multiple Sclerosis, in the US....Good neighbours for 10 years! See video below:

Steve Hartman tells us about an unusual ritual in one Utah community that has bound residents together, to come to the aid every evening of a neighbor with m...

19/10/2018

Interesting insights on Wellness; Living well with MS

Good article in increasing evidence that MS is not necessarily a "no pain" illness
21/09/2018

Good article in increasing evidence that MS is not necessarily a "no pain" illness

Experts unveil research that shows the extent of pain suffered by many MS patients. Lack of sleep and severe fatigue are among the effects.

Our friends over at Can Do MS hosted this webinar this Tuesday and it had some very illuminating points.
07/09/2018

Our friends over at Can Do MS hosted this webinar this Tuesday and it had some very illuminating points.

Roz Kalb (psychologist) and Megan Weigel (nurse practitioner) discuss how MS can affect dating, relationships, and family planning through real-life scenario...

... because pain demands to be felt. It keeps you in that moment and forces you to focus inside when there is so much el...
04/09/2018

... because pain demands to be felt. It keeps you in that moment and forces you to focus inside when there is so much else going on around you

Although pain and MS unfortunately go hand in hand, the right treatments can help you find relief. Here are five natural options you can try at home.

Thank you National MS Society USA for sharing very useful informational resources on MS with patients in Kenya!We are st...
30/08/2018

Thank you National MS Society USA for sharing very useful informational resources on MS with patients in Kenya!

We are stronger together!

"One of the terms I found most confusing soon after my diagnosis is 'stress'. Every time I had a relapse, I was asked wh...
28/08/2018

"One of the terms I found most confusing soon after my diagnosis is 'stress'. Every time I had a relapse, I was asked whether I was stressed and not once did I ever know how to respond. I considered the term so subjective it communicated little.

See, I grew up at a time when it was cool to be seen to be busy and seem stressed, so much we wrote it in our application letters, 'works well under pressure'. Having had MS for years now, I've had to admit it is way cooler to have peace of mind"

-L'or Musambayi, MS Kenya Vice Chairperson

For those who have come to the same realization or getting there, here are some tips for dealing with those circumstances that push you physically, mentally and emotionally, beyond your ability to cope in a healthy way.

Clarisa Walcott, 40, of Portland, Oregon, gets stressed every six months, when she’s scheduled to get her infusions of Rituxan, an intravenous drug used for the joint pain and swelling that she experience with her multiple sclerosis.

No matter our individual challenges as human beings, or as People Living with MS/ NMO, there is such power when we coura...
27/08/2018

No matter our individual challenges as human beings, or as People Living with MS/ NMO, there is such power when we courageously speak out.

Power to encourage others,
Power to direct what research focuses on,
Power to advocate for progressive changes to laws and health policies,

Diagnosed as a teenager, Sidney Sterling has been the University of Miami cheer captain for three years, despite being told by a doctor that cheerleading — let alone going to college — would be a stretch. Here’s how she keeps reaching for her dreams, despite her serious diagnosis.

Receiving a diagnosis of MS, especially while living in a country where there's little to no access to any medication fo...
26/08/2018

Receiving a diagnosis of MS, especially while living in a country where there's little to no access to any medication for any illness, leave alone Disease Modifying Therapies for MS, can sound like a death sentence.

DO NOT PANIC!

Here's some advice for newly diagnosed patients and their families, and some for the MS veterans too

We are stronger together! 😊

Real patients offer advice and encouragement to those recently diagnosed with multiple sclerosis.

The National MS Society has just committed funding for 9 high-risk pilot research grants to quickly test novel ideas…One...
08/08/2018

The National MS Society has just committed funding for 9 high-risk pilot research grants to quickly test novel ideas…One of the questions the grants seek to investigate is: -
Does religion/spirituality help people with MS to cope?

The latest about MS treatments, related legislation, updates on the Society, and people living with MS.

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51930
Nairobi
00200

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