26/05/2020
What our patients are telling to the media about IDOI’s treatment:
- Before each subsequent treatment we do an MRI, which shows exactly that the tumor is decreasing.
- The studies show that thanks to the treatment, IDOI can significantly increase the average survival time of children with a malignant tumor of the brain. In addition, the treatment improves or restores the child’s neurological abilities.
- Around 90 percent of patients treated for IDOI-1 showed improvement, and a large group regained a significant part of their function and were able to go back to normal life - describes Michał Piłatowski.
Lo que nuestros pacientes le dicen a los medios sobre el tratamiento de IDOI:
- Antes de cada cita subsecuente hacemos resonancia, que muestra exactamente lo que pasa con el tumor y si disminuye.
- Gracias al tratamiento pueden aumentar significativamente la supervivencia promedio de los niños con un tumor en el tronco cerebral. Además, el método mejora o restaura las habilidades neurológicas del niño.
- Más del 90 por ciento de los pacientes tratados por IDOI-1 mostraron una mejoría, y un gran grupo recuperó una parte significativa de su función y podría volver a la vida normal, relata Michał Piłatowski.
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Read the full article (automatically) translated in English:
MAY 21, 2020. NEWS 24kurier.pl
PAGE 2
Balance between treatment and quality of life
Let's help Marek fight!
In May last year, we wrote about 6-year-old Marek, who parents raised money to fight a huge malignant tumor of the brain. It worked - Marek with his dad Michał every month fly to Monterrey, Mexico for chemotherapy. Unfortunately, around 80,000 are still needed for treatment.
- The treatment that Marek uses is special chemotherapy that is given directly to the tumor. It's risky and expensive but it works. Before each subsequent treatment we do an MRI, which shows exactly that the tumor is decreasing - communicates positive boy dad information.
In addition, Marek participates in rehabilitation every day, thanks to which he slowly regains health. In March this year, boy and dad flew to eighth chemotherapy, but by the coronavirus pandemic are stuck in Monterrey. The boy and his dad missed Easter and the birthday of Piotr (brother/son).
The problem is also with work because Michał Piłatowski was to leave for a week, not for three months.
- Fortunately, I have a great boss and let me continue to work remotely. It's difficult because we are 7 hours apart. My wife sends me photos and I based on emails and photos I work - adds Marek's dad. - Syn he misses his mother and brothers a lot.
He is sad that he tried it so many times to come back already and still can't. We sit for days in the apartment. We fear going out somewhere. Most stores are closed. Here it is peak incidence. To gather we have about PLN 80,000 left at the collection. This is the amount needed for treatment - he adds Mr. Michał.
Little Marek heals in The Instituto de Oncología Intervencionista (IDOI). The institute was created by a multidisciplinary team. Doctors Alberto Jerónimo Siller Aguirre and José Alberto García de la Fuente decided to lead practices after many cases of successful cooperation to help patients and give hope to children. The team consists of specialists and scientists from different fields, among others: oncology, interventional neuroradiology, pediatrics, anaesthesiology, intensive care, neurosurgery and research. Thanks to many studies and attempts to use many techniques, procedures and medicines for the treatment of various types of cancer.
Doctors from the center take care of very complex cases, which require extraordinary measures - such as with Marek.
Treatment is carried out at one hospital in Monterrey, in Mexico.
- Current treatment plan for the disease
The brand is called "Chemotherapy Super Selective Intravascular Artery Combination ", "IDOI-1" for short. Consists of two treatments in full dormant. According to the information from doctors, all served drugs are approved by the FDA, however, they are not used in such combination and this method nowhere else - the boy's dad explains.
The first treatment involves administration of drugs through a catheter inserted through the femoral artery (puncture into the femoral groin), which then goes to the brain as close to the tumor as possible. The method application is called IntraArterial (IA). The second procedure is the administration of medicines into the spinal canal - this is the IntraThecal (IC) method. - It is very important that everything the procedure takes 2-3 days. No it requires long and constant hospitalization - emphasizes Michał Piłatowski. - Then Marek can return to normal life in Poland. Treatment must be repeated at 3-5 week intervals.
Before each subsequent stage an imaging test is performed, magnetic resonance imaging. The study also shows indisputably the effectiveness of this method. Then before consultation is carried out at Clinica 0-19, during which you can learn about changes that have occurred since the last treatment, opportunities as they are, threats that have arisen, and set a plan for future action.
Mr. Michał points out that in this treatment the parent is a very important element of the whole process, hence the great emphasis is on informing him about what happens to the child in every treatment stage. Until recently the institute did not brag about its own achievements. Specialists focused to treat children. Only recently decided to "open out "into the world and officially show results of the first years of operation.
- The studies show that thanks to the treatment, IDOI can significantly increase the average survival time of children with a malignant tumor of the brain. In addition, the treatment improves or restores the child’s neurological abilities. Appear new imaging movies as well in practice it looks like this and you can see how different children from different countries cope with treatment and illness. An option has also been introduced for video consultation before the first arrival. This is a great convenience for many families to be able to make contact and talk easy from home about everything important - adds Michał Piłatowski.
A brainstem tumor (DIPG) is a disease that can in a short time change the child's life completely and take everything - from the capacity to performing daily tasks, through speech, movement for ability eating or drinking up to their own lives.
- That is why it is so important to maintain a balance between the applied treatment and the quality of life child. From the information provided by IDOI, around 90 percent of patients treated for IDOI-1 showed improvement, and a large group regained a significant part of their function and were able to go back to normal life - describes Michał Piłatowski.
With comprehensive and comprehensive treatment rehabilitation manages to stop the tumor. Recently, Marek succeeded in getting up from the cart himself, moment figure and wave to the camera. However, this is not the end. The aim of Mark and his dad is playing soccer on vacation. However, this will not succeed if there is no treatment, for which it is needed there are about 80 thousand zlotys.
Marek's treatment can be supported through donations on the official screenshot profile
https://www.fundacjasercadlamaluszka.pl/nasi-podopieczni/marek-pilatowski.html and through participation in numerous charity auctions on https://www.facebook.com/groups/zbiorkadlamarka
Karolina NAWROCKA