ACG Concept

ACG Concept ACG Concept is Malaysia’s first Lifestyle Advocate in aged care. We activate, prosper & treasure t

08/04/2023
其实“如何规划善终”就是预立护理计划(ACP)#请尊重我的意愿我的选择#记得要跟家人沟通#告诉他们你的规划
25/02/2020

其实“如何规划善终”就是预立护理计划(ACP)

#请尊重我的意愿我的选择
#记得要跟家人沟通
#告诉他们你的规划

如何規劃善終
三十道问题

馮以量
内容摘自于《善终》

*如果你在閱讀時心裡感到不舒服,建議把文章先收好,需要時,才借此引導你和家人。

我人生的最後一個夢想是得到善終。我常問病人及學生:“如果你只剩下三個月壽命,你如何安排生死?”總結大家的答案,可歸納為三個部分:臨終的照顧、葬禮的計劃、生前的遗愿。

在臨終關懷的服務道路上,我發現只有少數的病人可以完成所有規劃,主要原因是他們沒有足夠的體力去完成。能夠完成一些自己認為重要的部分,已經很棒了。

如果善終能夠為我們的關係帶來善別、為活下來的親友帶來善生,這一切是值得的。這也為何我常鼓勵大家要嚴謹看待如何規劃善終。

● 臨終的照顧

1.我是否要知道有關疾病以及壽命的預測?如果我想知道,我希望是誰來告訴我?如果我不想知道,那該讓誰代替我知道病情?

2.我是否要和醫生獨自討論病情、或者只讓親友和醫生討論病情?還是我們一同和醫生討論病情?(知道病情以及討論病情是兩回事。討論病情常會牽涉財務、治療、照料的課題。有些醫療團隊會提供家庭會議。那是由醫生、護士以及社工來主持會議,讓病人以及其家屬一同來商量決策。)

3.當病情已到了末期,我要堅持接受急救的治療、還是接受臨終關懷?(急救治療就是我希望繼續接受各種醫療以及搶救方法來嘗試延續我的生命。而臨終關懷就是我選擇不接受任何治愈性的治療,只在護理和減緩疼痛的治療之下,讓生命自然結束。)

4.如果我無法吞食,我是否要插鼻胃管來進食?(清醒的我可以嘗試和醫生溝通。如果感到不舒服,可以吩咐醫生拿走鼻胃管。只怕我昏迷時,無法為自己做決定,因此我最好先讓代言人知道我的意願。)

5。如果昏迷的我無法自行決定任何安排的話,我要誰來做我的發言人以及決策者?(最好的做法是你的照顧者也是你的發言人以及決策者。如果發言人、決策者和照顧者是三個不同的人,那會較易出現大家有不同意見的狀況。)

6.當我臥躺在病床需要被照顧,我想在哪裡被照顧?醫院、慈懷病院、療養院還是自己的家?

7.當我被醫生告知只有幾天壽命時,我想在哪裡去世? 醫院、慈懷病院、療養院還是自己的家?(被照顧以及去世的地方可以是不一樣的答案。有些人想要在醫院被照顧,卻想躺在自己床上離世。有些人想要在家裡被照顧,卻想在最後幾天有醫生、護士的全程照顧。)

8. 在我人生最後的日子裡,我希望那些親友可以伴在我身旁?也希望那些親友不要出現?(有些病人不希望一些親友看到他臨終衰退的樣子,所以他會婉拒親友的到訪,希望大家能夠在腦海中對他留下一個健康的印象。)

9.當我臨終時,我希望得到的護理是……?(請具體說出自己對護理的要求。譬如:每天身體整潔至少一次、頭髮以及指甲要定期修剪、每天要化妝、每天替我按摩手腳一次、口乾時用少許溫水滋潤、大小便之後要換尿布、每隔兩個小時翻動我的背部以免皮膚紅腫感染等等。)

10.當我臨終時,我希望得到的關懷是……?(請具體說出自己對關懷的要求。譬如:有人在日間/夜間陪伴我、有人與我聊天無論我是否有反應、說出你心中對我的不捨、拜訪時請送我一朵鮮花等等。)

● 葬禮的計劃

你可以為自己預先計劃喪禮的安排,並向家人和朋友表達自己的意願,以減輕他們的負擔及猜測,甚至免除發生衝突的機會。

1.我要葬禮的宗教儀式是佛教、道教、基督教、天主教、回教、猶太教、或無宗教儀式?葬禮進行的地點在哪裡?

2.我要的棺木是西式、中式還是環保式的?我的壽衣是哪一套?我是否想要有任何的陪葬品?

3.我要或不要哪位親友出席我的葬禮?(請寫在文件裡,列出親友的姓名、關係、還有聯絡號碼,以及說明為何不要某親友出席葬禮。)

4.有關葬禮的佈置,我要哪一張照片成為遺照?我喜歡哪一種花?我接受或不接受親友送的花牌以及花環?

5.有關親友給的帛金,該如何處理?用來作為葬禮費用的資助、還是捐給相關慈善機構?

6.我可以讓人瞻望我的遺容嗎?如果可以,有沒有特地指定的時間?(建議可以在安葬之前、說悼詞儀式等等。請注意不是每個人都想任何人瞻望遺容,要謹慎處理。)

7.哪一些親友是致悼詞的人選?(在還沒有去世前,請邀請他們在葬禮給予致悼詞,那會是一個又一個很感人的親密對話。)

8.如果我有一份致謝詞以及告別詞,我會請誰來唸出?或者請別人事先錄音或者錄影?

9.我希望哪些親友獻唱或播放的歌曲有哪些?我有哪些喜愛的聖經或佛經經文、詩詞歌賦等,希望有哪些親友為我誦讀?

10.我要如何被安葬?如果是土葬,我想要我的遺體被葬在哪個墓園?如果是火葬,我的骨灰想要被安放在哪個骨灰堂?如果是海葬或樹葬,我的骨灰想要被散落在哪裡?如已經做出安排,文件現放在哪裡?

● 生前的遗愿

死亡結束的只是生命,而非關係。即使我已經去世,親友仍會懷念我、或重溫過往美好以及珍貴的時刻。我希望我留下來的愛足夠讓親友們繼續活著、也希望我的精神能夠透過親友延續下去。

1.我要對哪些親友說感謝的話?

2.我要對哪些親友說寬恕的話?(我原諒你以及請你原諒我。)

3.我要對哪些親友說關愛的話?

4.我要對哪些親友說再見的話?

5.有哪些親友會因為我的離去而陷入憂鬱?我要留下甚麼支持或安慰話讓他們活下去?

6.我的人生裡有什麼是想要被親友傳承下去?(如人生哲學、個人修養、生活態度、面對逆境的能力、面對衝突的能力等等。)

7.我希望親友如何記得我?(如把我的微笑放在你的心裡、把我的照片放在你的錢包裡、難過的時候寫信給我、在節日時祭拜我、記住我是一個熱愛生命的人。)

8.我怎麼分配有紀念價值的物品給我的親友?

9.我已做遺囑?已告知我的受益人我存放遺囑的地點?

10.請告訴親友我人生的一句座右銘。我要把它寫在墓碑上?

請把這三個部分的答案存放好。如果你願意的話,不妨花一些時間用筆寫下來,甚至可以錄音或者錄影,好讓決策者或代言人跟隨你的意願去落實善終規劃。讓離去的人得到善終、讓彼此的關係得到善別、讓活著的人得到善生。

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——————————————————————————————

ACP简单3部曲:问、谈、计划

《问》
问自己:生活的价值观、憧憬的未来生活、当健康出现状况时,什么是你担心的部分...

《谈》
把想法和身边的人谈,让他们知道你的意愿和选择。当紧急发生的时候,身边的人不会感到慌张而不知所措

《计划》
须先把计划写下来/跟家人沟通,它将是一份爱的礼物

*除此之外,找1至2位委托人,当紧急发生;自己无法言语(昏迷/清醒却无法表达自己)时,他们是帮你履行你的意愿的重要人物。

以上是新加坡推广ACP的宣传短片,供参考:)


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ACG Concept Sdn Bhd 10th Floor, Wisma Mirama, Jalan Wisma Putra
Kuala Lumpur
50460

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Catalyst of Healthy Ageing, Inspired Lifestyle

ACG Concept is Malaysia’s first Lifestyle Advocate in aged care.

As the Lifestyle Advocate, we activate, prosper & treasure the nuances of ageing through an array of activities and programmes.

Our lifestyle programmes are designed to activate functional ability and well-being of individuals across the ageing spectrum from conception to ex*****on for corporations, NGOs and individuals in accordance to the World Health Organisation’s definition of “Healthy Ageing”.

Circles of 5 – Life Is Pretty Straight Without Circles